Jess

25, Qualified Physiotherapist. Diagnosed with Functional Neurological Disorder Feb 2018. The reality of living and working with FND 🌺

[Jess @JessFND]

Raising awareness and reducing stigma one PowerPoint at a time 🙋‍♀️
Got FND? Me too! You are not alone. 💪🌺

[Jess @JessFND]

@fnd_me Looks fantastic! I have the same problem during a flare in that I can run but not walk! I found I could crawl and walk backwards too! 🧠 #FND #FndAware

[FND Portal - is no longer on X @FndPortal]

"Physio for FND is not like physio for muscle weakness. It’s about showing people how to access normal movement when that is proving impossible... We’re aiming to change people’s ideas about what is possible with this condition."

https://t.co/8mLx6iiFGJ

[FNDHopeUK @FNDHopeUK]

Anthony’s dreams were coming true, until FND got in the way. He waited years to access the right treatment.

Please share his story & raise awareness of FND using #FNDandUS.

Find out more at https://t.co/v4znyJIIqz

#FNDandUs #LetsTalkFND
@tonesqueFND
@fndhope

[David L. Perez MD, MMSc, FAAN, FANPA @DavidLewisPerez]

Framework for understanding the pathophysiology of #FND. We highlight relationships between symptoms - constructs - circuits. Roles for emotion processing / salience, agency, attention, interoception & perceptual inference / predictive processing.

https://t.co/9AkDtmuUPw

[Jess @JessFND]

@Livingmybestlyf I agree it’s defiantly the first warning sign of a possible “flare”! It’s so so difficult to pace, especially when you forget what I feels like to feel well and then when you do the sense of freedom and wanting to do everything is hard to ignore!

[Jess @JessFND]

Fatigue - feeling like your whole body is being dragged downwards. Like your dragging a heavy weight behind you, each movement effortfull. Reminding myself to take a step back, slow and steady. It’s all going to be okay 👌🏻🌺#FND #FNDAware

[Jess @JessFND]

@JillianCarson7 I wish you all the best! Remember you are not alone 🌟

[Jess @JessFND]

In shock realising Iv had no physical symptoms since February. Recovery is possible 🙌🏻 there is hope 🌤 #fnd #fndAware

[Jess @JessFND]

@JillianCarson7 Hi Jillian :) I found https://t.co/3D9yYnKp40 really helpful in understanding what’s going on. On a professional level I looked in detail into current literature and research surrounding it and set a treatment plan for myself as I would if treating any other patient with FND 🌟

[Jess @JessFND]

@FndRecovery I think understanding what’s going on in my brain really helped reduce the fear and anxiety surrounding my symptoms. Daily exercise and mindfullness plus a good diet, Iv lost over a stone in weight and never been so healthy! 😊

[Jon Stone @jonstoneneuro]

Occupational Therapy consensus recommendation for FND led brilliantly by @CNicholsonOT. Packed full of practical suggestions over 17 pages (open access in long version). OT has so much to offer people with FND. https://t.co/a4nhRqtVfy

[Rachel McMurray 💙 @RachMcSLT]

Communicating with people when wearing a mask can be challenging for both parties 😷 Never underestimate facial expression and lip reading as facilitators of communication! Here are some simple tips which can help 👍🏻 @LPTAdultSpeech @RCSLT @LPTnhs @FinchSlt @rennie1d

[Jess @JessFND]

With everything going on at the moment I’m trying to stay positive. So today I competed 5 full days at work for the first time in months! 5 full days with only 2 days of symptoms 🥳 bring on the next week 💪🏻🌺 #FND #FNDAware

[FND Action @FNDAction]

Imaging study provides insights on functional neurological disorder https://t.co/QeGEjeep11 #FND

[Jess @JessFND]

Slurred speech with difficulty getting words out today. Hasn’t happened in a while so always comes as a little shock to those around me at the time! Still managed to have a very productive day at work, highlighting the importance of non verbal communication! 🤗 #FND #FNdAware

[Jess @JessFND]

Woke up feeling weird. I couldn’t quite put my finger on why, and then I realised. I have energy. My brain isn’t fuzzy. Iv lost track of the number of days I had been fighting this “flare”. I’m determined to make the most of the day. In a sensible, paced way of cause 😂 🌦 #fnd

[Jess @JessFND]

So it’s been a tough few weeks. My fatigue levels have been horrendous and I lost my beloved dog jasmine after 13years. Taking it step by step and trying to look to the future ⛅️#FNd #mentalHealthMatters

[Jess @JessFND]

@PWtherapist So very true!

[Jess @JessFND]

@ERobins47603244 @HulyaMcConville Hi eve :) I’m okay how are you? I wasn’t diagnosed at Salford Royal I was diagnosed at the John Radcliffe in Oxford. I still have “episodes” but am able to work full time, would be happy to talk over DM, I’m just very aware everyone’s journey is so very different :) xx

[Jess @JessFND]

Trying to remind myself that having symptoms is not a sign of weakness. It takes strength to acknowledge and accept that today I am limping, that my arm is spasming, brain not working. Tomorrow will be different. And if it’s not, that too is okay ⛅️ #FND #FNDAware

[Jess @JessFND]

@Aspie01787322 It is possible yes as I’m lucky enough to really love my job! 🥳

[Jess @JessFND]

Better day today. Successfully back at work for a half day. I may be limping but at least my arm has calmed down and the pain is bearable! Acknowledging and celebrating each little step forward. Positivity and pacing💪🏻🎉 #FND #FNDAware