Joanne Tully

💫 100% Disney Addict 💫 Wife & Mam to two wonderful girls, one being an amazing Neurofibromatosis (NF) Warrior. 💙💚 Trustee at the Childhood Tumour Trust

[Joanne Tully @joannetully776]

Hey! I just came across this. I thought you might be interested in entering for a chance to win a holiday to Orlando! : https://t.co/5ulG5Du1fj

[Joanne Tully @joannetully776]

Just want to say a big thank you to @nessie66Martin for organising this & to Cpt Simon & Cabin Crew Chloe for doing the message, it’s really put my girls at ease about their 1st flight, I hope they will be on board our flight from Gatwick to Orlando in December @British_Airways

[Joanne Tully @joannetully776]

💙💚

[Joanne Tully @joannetully776]

That’s my girl! x

Thank you so much to all the sixth form & staff who donated their loose change, it means a lot & it makes a huge difference to those living with #Neurofibromatosis!

@ponthigh6th @PontHigh

[Joanne Tully @joannetully776]

@nessie66Martin Absolute natural x

[Joanne Tully @joannetully776]

Well done Shani, you are an absolute natural, loved seeing you tonight in @BBCCasualty x

[Joanne Tully @joannetully776]

@adamsmet66 @BBCCasualty @Pete_Levy @KirstyLMitchell @elinor_lawless @daisyandukes Well done Shani, you are an absolute natural, I watch Casualty every week but tonight was my favourite x your talent definitely runs in the family, can’t wait to see your next casting xx

[Joanne Tully @joannetully776]

@leedsrhinos What time do you think you will pass Otterburn Primary School, we’re about 1 mile outside of the village of Otterburn, the children would love to come out & cheer you on?

[Joanne Tully @joannetully776]

Way to go everyone, you are amazing, super proud of you all especially Bethany! Big thank you to Joe, @inspirajoep Rosie, Charlotte & Georgia of @inspiraforlife @NCS for this amazing 2 week experience for our Teens, they have learnt so much & made lots of new friends & memories!

[Joe Philipson @inspirajoep]

Time for some celebration. Mario Kart, Jack box games, lights camera and action! What an awesome group on #NCS this summer.

[Joanne Tully @joannetully776]

@Adam_Pearson our NF Warriors would love you to join them baking with @AMrsbunthebaker 🧁

[Joanne Tully @joannetully776]

Go Bethany, blindfold climbing challenge! 🥰

[Joe Philipson @inspirajoep]

Epic challenge day today! Our teams completed a whole host of challenges today, all in the hopes of getting enough points to win a pizza party 🥳

[Joanne Tully @joannetully776]

That’s my girl, always helping! 🥰

[Joanne Tully @joannetully776]

This baffles me too, itwould make far more sense if they all did & it give patients, members etc so such more support, let’s do this!

[Joanne Tully @joannetully776]

@loustar76 @ChildhoodTT @altontowers It was so lovely to meet you yesterday, thank you so much for being a wonderful Patron for our Charity x 💙💚 x

[Joanne Tully @joannetully776]

Happy birthday lovely lady! x @loustar76

[Joanne Tully @joannetully776]

@ChildhoodTT Love it xx

[Joanne Tully @joannetully776]

#NeurofibromatosisAwarenessDay

A lot of Medics haven’t even heard about NF & we spend a lot of time as parents educating them, which is very worrisome!

Hard to say, even harder to live with!

#EndNF #BenignIsNotFine #Tumours #ICanSayNeurofibromatosisCanYou
@ChildhoodTT

[Joanne Tully @joannetully776]

That’s my girl! x 💙💚 x

[Joanne Tully @joannetully776]

@ChildhoodTT @AMrsbunthebaker It certainly is, thank you x

[Joanne Tully @joannetully776]

@AMrsbunthebaker @ChildhoodTT Aww, thank you! I’ve got no idea how it worked! x