Julie Campbell

Marketing professional / Living with #LongCOVID #LongCOVIDawareness

[Julie Campbell @julesmoore7]

@Jay96809922485 @TenetLion @maddenifico Not only does he kick them out of the room, he calls them “Piggy” - who can forget that one? He said, “Quiet, quiet piggy” to Bloomberg News reporter Catherine Lucey while wagging his finger.. The most class-less president ever. Embarrassing.

[Julie Campbell @julesmoore7]

It mentions neurologic symptoms such as headaches, fatigue, and difficulty thinking or concentrating -- I wonder if balance and coordination issues are included? And, blurred vision? Muscle spasms?
While I have many more chronic health problems from COVID, I've felt since early on in my LC journey that so much of this was nervous system related. I just knew it. I think it’s both the central nervous system and peripheral nervous system. Can it be?
#LongCovidAwareness #LongCovid
@DrPutrino @VirusesImmunity

[Julie Campbell @julesmoore7]

@ThePOTSPostman So true.
I hate the feeling that I have to explain the rest and preparation we must go through for a short visit with a friend. And then the two or more days of recovery afterwards. I guess I want them to know how important they are to me.

[Julie Campbell @julesmoore7]

I think you have to take it as encouraging.
I wish they hadn’t started with “Also, a little bit off topic” — that’s the part that hurts most. Off topic? Really?
I am glad you reached them. I am sure you reached many more who didn’t speak up. Please never stop trying. Thank you for all you do.

[Julie Campbell @julesmoore7]

Such a great point!!

[ThePOTSPostman @ThePOTSPostman]

One of the hardest things to explain about chronic illness is that being used to a symptom doesn’t make it mild.

It just means you’ve experienced it enough times to stop reacting the way healthy people would.

Those are two very different things.

[Julie Campbell @julesmoore7]

@ThePOTSPostman Such an excellent point! 💯!!!

[Julie Campbell @julesmoore7]

@MEMO_1035_960 @AlanLevinovitz That is 100% incorrect. I had Long Covid before vaccines were even available.

[Julie Campbell @julesmoore7]

@DaniBeckman @Transl_Psych @NaturePortfolio Congratulations!! 👏👏Thank you for all your hard work and everything you do! 💕

[Julie Campbell @julesmoore7]

@AnciraBecky Sending well wishes and strength. ❤️

[Amy Proal, PhD @microbeminded2]

Check out these talk summaries from our recent PolyBio Symposium👇

Highlights include that four groups — Tim Henrich (UCSF), Marcus Buggert (Karolinska), Nicolas Huot (Institut Pasteur), and Esen Sefik (Yale) — presented different lines of evidence (human gut biopsies, non-human primate models, humanized mice) all pointing to the same conclusion: SARS-CoV-2 persists in #LongCovid gut tissue and adjacent lymphoid structures, and that persistence drives ongoing immune dysregulation.

[Julie Campbell @julesmoore7]

@meighanstone @AlanLevinovitz @WIRED 👏🏻👏🏻👏🏻 Thank you!!

[Billy Hanlon @bhanlon15]

WBUR: 'The scope of long COVID is bigger than we think, Mass. researchers say'

“I think Long Covid is a serious national and global problem that demands attention from governments and international bodies" - Dr. Ziyad Al-Aly

https://t.co/qzQrTDDsB8

[Julie Campbell @julesmoore7]

@mmpadellan @Mags00021130 👋

[Dr. Sean Mullen @drseanmullen]

There are now more than half a million scientific publications related to COVID-19 and a rapidly growing body of evidence linking SARS-CoV-2 infection to immune dysregulation, microvascular injury, autonomic dysfunction, clotting abnormalities, viral persistence, and measurable cognitive changes.

And to the people constantly sick, exhausted, dizzy, forgetful, exercise intolerant, waking up to feeling like you got hit by a truck on the daily or suddenly developing strange inflammation, heart issues, GI problems, or “mystery” symptoms after repeated infections…

At some point you and society as a whole must confront the reality that repeated infection with a vascular and neurotropic virus was never as harmless as everyone wanted it to be.

I choose to live in reality.

That virus is still here. It is still spreading through the air. And it is still associated with long-term vascular, immune, and neurological consequences for many people.

Protecting yourself from that threat — through cleaner air, better ventilation, filtration, vaccination, and high-quality masks in high-risk settings — also reduces your risk from many of the other respiratory pathogens constantly circulating around us.

And if you are tired of watching people suffer while being told this is “normal,” then start demanding urgency.

Ask why Long Covid clinics are closing instead of expanding.
Ask why immunologists, virologists, neurologists, vascular scientists, and pathologists are not being funded at Manhattan Project scale to investigate viral persistence, immune dysfunction, clotting, mitochondrial damage, and cognitive impairment.
Ask why billions can appear overnight for almost anything else, but millions living with chronic illness are told to “pace themselves” and move on.

Support researchers (the ones who are still focused on Long Covid that don’t conflate the disease)
Support clean air initiatives (two strong efforts happening in Illinois right now! Help us!!).
Support disability advocacy.
Pressure institutions to improve indoor air quality.
Stop mocking people for protecting themselves.
And stop accepting “everyone is sick all the time now” as a normal feature of modern life.

[Julie Campbell @julesmoore7]

@drseanmullen @jfalek 👏🏻👏🏻👏🏻 Exactly!! Thank you.

#LongCovidAwareness #LongCovid

[Julie Campbell @julesmoore7]

@1goodtern Unbelievable. Actually it IS believable….so sad. Thank you for sharing.

[Julie Campbell @julesmoore7]

@atranscendedman So happy for you. I saw your response to someone else about your profile and book! I’ll definitely take a look. You give me hope! 💪🏼

[Julie Campbell @julesmoore7]

@lisawhelan @CAPublicHealth 👏🏻👏🏻

[Julie Campbell @julesmoore7]

@1goodtern Exactly. Very sad.

[Julie Campbell @julesmoore7]

@AnciraBecky No……😢