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@DavidFischer King

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Started developing nausea and vomiting as well as neuropathy from this treatment but its fine i will not waiver

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@Av8rLady Yes God is good

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Unfortunately . gbm progressed for me after 7 doses od anktiva, avastin and pd l1 t -hak qith 93 percent optune usage.getting kicked out of the trial sadly.

To my fellow blue light warriors . Dont get discouraged by this. Stay strong and lets keep going!

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@ScottHarvey014 You got this! 15 months in for me. Initially given 6-8 months

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@mcuban thank you for making cosr plus pharmacy. Literally saving my life from glioblastoma!
Oncologist started me on a drg called pazopanib, would have costed me 4000 for 30 day supply. Got it from your pharmacy gor 1200 for 3 mon supply. Thank you!

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@Av8rLady Thank you! And yes i was!! Been taking the meds for 6 days now and still wearing optune

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@Av8rLady By Gods grace m my oncologist hasn’t given up and pursued single patient access for me for a drug called ulixertinib and pazopanib to target a specific marker on my tumor which are CIC and SuFU deep deletion

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@Av8rLady @LoriMills4CA42 Yes it clearly works for lyphopenia and is clearly safe. Makes no sense

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@LoriMills4CA42 Atleast for lymphopenia!!!!

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@thehealthb0t For gbm it’s not th end all be all yet. But i hope it gets approved for lyphopenia

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@PK_Fund Thank you!! All in ?Gods hands

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@PK_Fund My oncologist has me on ulixertinib and paxopanib to target specific markers of my tumor

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@PK_Fund Also still on optune

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@PK_Fund I was part of the trial. Unfortunately my gbm progressed after 4 months on the trial

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@HollensbeAmanda There are long term survivors on nothing but finished the stupp protocol

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Oh yes! Actuqlly got as high as 3.9 with the higher limit rangeof 4. So my ALC is now pretty solid

Thank you brother for the prayers and encouragement !!
My oncologist is pursuing single patient access with another trial that involves ulixertinib. Hes hoping the targeted therapy will be more effective for me. But ive been kicked out of the quilt anktiva trial unfortunately

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@LoriMills4CA42 @HollensbeAmanda You guys got this!!! Will pray!🙏
My MRI after 3 doses of anktiva, NK cells and avastin is stable after my recurrence!

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@HollensbeAmanda Oh okay.. may have been a good move! Cuz after 1 week of radiation i had a 6cm cyst form where my tumor was initially removed.

If its any consolation
The cyst removal went so much smoother than the initial tumor removal. Walked out of the hospital in 2 days!