Justine

Arsenal, Woman 💚🤍💜, lesbian, railway worker, proud Jersey Bean. Fighting incurable metastatic GOJ cancer.

[Sam Millar @SamMillar72]

Been paid off 3 days before Christmas holidays due to there not being enough work after the year. Full qualified floor layer with 9 years experience, if anyone knows of any flooring companies taking on.

Failing that, happy to do absolutely anything. RTs appreciated

[Justine @jussymc]

@TicketmasterCS That worked. Thankyou!

[Justine @jussymc]

@TicketmasterCS @big_neilly I’ve got the same problem? Help!

[Justine @jussymc]

@FooFightersUK @foofighters @TicketmasterUK The link isn’t working. So annoying.

[Justine @jussymc]

9 1/2 hours in the queue for David Bowie V&A tickets, and they’ve bloody sold out. It said i was number 7132 at 10am, so how did it take over 9 hours to not let me book tickets. Really poor @V_and_A

[Justine @jussymc]

So it’s definitely the Gastro-oesophageal cancer that’s spreading through my lymph nodes, and not the neuro-endocrine cancer. Shit doesn’t even describe how I’m feeling tonight. I had almost convinced myself that it was the N-E, the lesser of two evils. #FuckCancer @ThanksCancer

[Justine @jussymc]

@jk_rowling @lumos @JamesChiavarini Done! What a kind and generous thing to do.

[Justine @jussymc]

@MissProntotype It was thick and curly before, but nothing like this now. I literally cannot do anything with it. I’m refusing to get it cut until I can tie it up. My nails are growing really well too.

[Justine @jussymc]

@MissProntotype How has your hair actually got length? Look at this pic of mine, from behind, at the weekend. It’s just growing in really tight curls. I wish I had some length.

[Justine @jussymc]

@birdsnestsblog @AldiUK @LidlGB Yep! 😋😋😋

[Justine @jussymc]

I’m sorry @AldiUK , but the fact that I can just walk into @LidlGB & buy fresh cronuts from the bakery, means they beat you hands down. I still ♥️ you, but I’m not in ♥️ with you anymore.

[Justine @jussymc]

@DishSmichri They are brilliant at Christie’s. If it’s neuro endocrine cancer, it’ll, hopefully, be a better prognosis than with the GOJ Mets. They’ve said if it stays stable, I could live for years more. If it’s the GOJ, then the prognosis is pretty poo. Hopefully know soon. And Thankyou.

[Justine @jussymc]

Scan results today. No spread & largest lymph node has shrunk. Docs now think it may be mets of Neuroendocrine cancer, not mets of gastro-oesophageal cancer, so waiting for a gallium pet scan. Its good news, but so confusing too. Thought I had my head around it. #FuckCancer

[Justine @jussymc]

@DishSmichri I’m on a similar path to my mum. She had GOJ cancer too, and breast cancer. I had pre & post op chemo, & total extended gastrectomy for the GOJ. They removed the endocrine tumour during that op, they didn’t know it was there until then. Just waiting for a gallium pet scan now.

[Justine @jussymc]

@MissProntotype Hi! Got back from NY a couple of weeks ago. It was amazing, I wish we could have stayed longer. When do you go? I’m waiting for an appointment for a gallium pet scan. Apparently they will know for sure after that.

[Justine @jussymc]

@DishSmichri Original diagnosis was GOJ cancer, but they also found an endocrine tumour during surgery to remove my stomach. As the mets to my lymph nodes are not behaving in the way they would expect the GOJ mets to, they are now thinking it may be mets from the neuroendocrine tumour.

[Justine @jussymc]

@snufflewort My hair has grown back really thick and curly, which apparently means people can bounce their hands on my head, or run their fingers through it. So feckin anniying!

[Justine @jussymc]

@werthemods Best of luck for tomorrow, don’t let the scanxiety get to you. X

[Justine @jussymc]

Hi @ROWNTREES Please, please, please would you make packets of Fruit Gums that only have the yellow ones it them. You would make me sooooo happy if you did this. Love you 😘😘😘

[Justine @jussymc]

@rossell_sarah @ThanksCancer Metastatic Gastro oesophageal junction cancer. It’s recurred in my lymph nodes. Not suitable for immunotherapy, but will have chemo further down the line, & hopefully any trials I can get on. I’m well at the moment though. Hope you’re doing ok.

[Justine @jussymc]

Had ct scan on Mon. Got a call today (how quick?). Cancer spread is really slow, which is brilliant news. Means I can’t be biopsied for the trial they want me on tho. But I’m still on the list for that trial further down the line, so today is a win! #FuckCancer @ThanksCancer