I’ve had Dysautonomia for 43 years. It’s rough. It waxes and wanes. There are absolute treatments that do help but they’re different for everyone. For me, treatments that have helped the most are IV fluids, Propranolol, Ivabradine, and getting MCAS under control. Gluten free diet. And most of all, treatment for Sjogren’s Disease (it’s a common cause of this mess). Again, meds are different for everyone here). Seeing the best physicians you can that specialize in it help a lot too. It’s all very overwhelming, I know. Take it one step at a time. We need better treatments and help. ❤️🩹
@_ME_Julie@DiaryofaSickGrl Hmmm. I am also an EDS patient. There is no fix or actual treatment for it. It’s a condition you learn to live with and mitigate symptoms.
@sampleswill In Florida, some HOA’s state that if you are found to have chickens, they have the legal right to take your property. Know what you’re signing with HOA’s.
@DiaryofaSickGrl This is true for me as well. I have to wear shoes with orthotics after breaking both feet. Clothes that aren’t too hot. Very little makeup.
@DiaryofaSickGrl It can be a Pernicous Anemia 9(a kind of B12 deficiency thing). It causes burning mouth Ami g other things. B12 shots got rid of that for me.
@RealTalk8386 Just finished planting a flower garden, in honor of our little dog that died last summer. I cannot wait to see all of the blooms. Gladiolus, Dahlias, Peonies, Daisies and wildflowers. Will add some pretty stones and waterers for bees and butterflies.