Kabuki UK Charity

Kabuki UK was set up in 2012 to address a lack of UK-based information and support for Kabuki Syndrome, a rare genetic disorder. We are a voluntary, non-profit

[Kabuki UK Charity @KabukiUK]

Amazing new sensory room created by Sunderland AFC for their SEN spectators https://t.co/L3XQ1DPyKy

[Kabuki UK Charity @KabukiUK]

This video gives informaiton about knowing your rights when it comes to healthcare and the NHS.
https://t.co/ZjwxDtxp2P

[Kabuki UK Charity @KabukiUK]

The link to the Family Day tickets will be posted soon, just sorting it out so that its nice and simple

[Kabuki UK Charity @KabukiUK]

M&S are developing a range of clothing with kids with additional needs in mind. There is a FB Group here https://t.co/WiZR3DMrqR

[Kabuki UK Charity @KabukiUK]

Need help travelling on the train? The Assisted Travel Service is so helpful. Find the phone numbers here https://t.co/XAKNfbuP8P

[Kabuki UK Charity @KabukiUK]

Whats your story? If you would like to add it to the website please get in touch, there are some to read here https://t.co/v0tqUtXlRP

[Kabuki UK Charity @KabukiUK]

Sensory friendly cinema screenings, find one near you here https://t.co/n6tyFN5bx9

[Kabuki UK Charity @KabukiUK]

A huge thank you to Ellesmere Guiding for their Christmas Carol singing which raised over £100

[Kabuki UK Charity @KabukiUK]

There is a new Wow Moment on the website https://t.co/vB7qLi5eIo

[Kabuki UK Charity @KabukiUK]

Possible evidence that a Ketogenic diet may help people with Kabuki Syndrome https://t.co/HZ5tVQxX3i

[Kabuki UK Charity @KabukiUK]

Have you been refused assessment for an EHCP? Here is the link to IPSEA's guidelines on what to do next. https://t.co/7ZDFRDyMgG

[Kabuki UK Charity @KabukiUK]

Check out this Q&A with Dr. Hans Bjornsson, featured on BioMed Central Blog!: https://t.co/f2zBfgyAmp…/epigenetics-chromatin-cli…/

[Kabuki UK Charity @KabukiUK]

Here are some "Wow Moments" which our members have told us about, if you have one send a picture & tell us about it https://t.co/GLfGe3wQmo

[Kabuki UK Charity @KabukiUK]

Great episode of Get Well Soon on CBeebies at the moment about having an Echocardiagram https://t.co/guo5o3U3ZR

[Kabuki UK Charity @KabukiUK]

Here are some of our members stories, if you would like to send yours in just get in touch https://t.co/v0tqUtXlRP

[Kabuki UK Charity @KabukiUK]

Don't forget about the Grant Schemes, here is the link https://t.co/2qKvI5IWLz

[IPSEA @IPSEAcharity]

See what our Legal Team think about the amendment & download our Transition Timeline resource here: https://t.co/csRPSU0bRr (2 of 2)

[Scope @scope]

.@ElliotDunster highlights @scope concerns about proposed reductions to support for those in the ESA WRAG #welfarebill

[Contact @contactfamilies]

Listen to our podcast on supporting your child through bullying issues & how the school can help. http://t.co/B7IxR15xPj

[Kabuki UK Charity @KabukiUK]

Amended regulations extend the timeline for transition from a statement to an EHC plan to 18 weeks. You can see what IPSEA think here;