Kat Southwell (nee Lee)

Former IT & data geek, now @metupukorg Patient Advocate, trying to navigate living while dying #inflammatoryBreastCancer

[Kat Southwell (nee Lee) @KatKinLee]

@JuJu4dignity @AshleyDalton_MP I’m really interested in why you think this as I have the opposite opinion from the cancer work I’m in. Genuinely interested in the context?

[Kat Southwell (nee Lee) @KatKinLee]

@RachelReevesMP Great news and I’m sure will be enjoyed by many people 👏

[Kat Southwell (nee Lee) @KatKinLee]

@DHSCgovuk I’ve found treatment/appointments etc massively different to two years ago

[Kat Southwell (nee Lee) @KatKinLee]

@NAoMe_news Presumably this is only for de novo patients?

[Kat Southwell (nee Lee) @KatKinLee]

@DrNeilStone 👋 also totally in remission for incurable breast cancer since 2021 😜

[Kat Southwell (nee Lee) @KatKinLee]

@elonmusk Imagine the outcry of Brits abroad on holiday trying to get hospital treatment

[Kat Southwell (nee Lee) @KatKinLee]

@DeniseHaynes17 @METUPUKorg Thank you so much for sharing the photo. We are trying hard to get the infographics into GPs to raise awareness, Kat (one of the METUPUK trustees)

[Kat Southwell (nee Lee) @KatKinLee]

@bccww I always think of one of the METUPUK volunteers who has over 90 fractures across her skeleton before she was finally diagnosed metastatic 😞

[Kat Southwell (nee Lee) @KatKinLee]

@METUPUKorg @AshleyDalton_MP

[Kat Southwell (nee Lee) @KatKinLee]

@DHSCgovuk @wesstreeting @10DowningStreet Really important progress to finally have a cancer plan back again! And commitment to Metastatic data 💪

[Kat Southwell (nee Lee) @KatKinLee]

@Rayy16x @TicketmasterUK I feel like this is happening to everyone. Happened to me and friends this morning and then again this afternoon

[Kat Southwell (nee Lee) @KatKinLee]

@wesstreeting Always the case that people bundle in for “what about x disease…” instead of focussing on what this announcement is. A National cancer plan (which the tories removed) is a great step forward to get back to prioritising cancer. And written by @AshleyDalton_MP with stage 4 cancer

[Kat Southwell (nee Lee) @KatKinLee]

@CallumNattress @wesstreeting Students aren’t wanting to go into Oncology as their specialism once they have done rotations

[Kat Southwell (nee Lee) @KatKinLee]

@shedman66 @wesstreeting The Tory government got rid of a national cancer plan which was a disaster starting to happen

[Kat Southwell (nee Lee) @KatKinLee]

@NAoMe_news @NATCAN_news Great news @abcdiagnosis was a huge advocate of radiotherapy in the metastatic setting.

[Kat Southwell (nee Lee) @KatKinLee]

@DHSCgovuk @wesstreeting What I really care about is how will the amazing work getting towards actually having data on metastatic cancer patients be delivered. I’ve seen more action on this by NHS England than any other area or audit to date.

[Kat Southwell (nee Lee) @KatKinLee]

@AshleyDalton_MP @METUPUKorg Thank you so much @AshleyDalton_MP I know that Jo was committed to working on issues impacting patients. She also was very aware that you didn’t ask to become a figure head for the metastatic breast cancer community but we were so grateful when you amplified our voices ❤️💔

[Kat Southwell (nee Lee) @KatKinLee]

@METUPUKorg @AndyBurnhamGM Thank you @AndyBurnhamGM I know Jo really valued your support and championing of such great improvements in Greater Manchester cancer care 💔

[Kat Southwell (nee Lee) @KatKinLee]

@Lee_Hollinworth @abcdiagnosis She loved this photo!

[Kat Southwell (nee Lee) @KatKinLee]

@JenniferHaught4 @METUPUKorg Sending love to you all. The grief that cancer teams must continually experience is rarely talked about 💔