Karen Howard 🇺🇦

[Lizzy H @hopefullizzy]

https://t.co/RGR1hV4kCF

Thank you @MEActNetUK

This made me tearful, it’s so powerful.

[Daniel Missailidis, PhD @DanMissailidis]

YESSS!!!! Congrats Chris Ponting and team

[Hippymum @Baybabe75]

This is appalling

[The Labour Party @UKLabour]

Nigel Farage said Andrew Tate is an “important voice” for men.

Andrew Tate said women should “bear responsibility” for being sexually assaulted.

Reform UK has no credibility when it comes to standing up for women and girls.

[Adam @ABrokenBattery]

Karen Hargrave - @KarenLHargrave on BBC The World at One talking about her husband, James with severe #MECFS and the new government delivery plan which lacks any concrete tangible solutions, also includes a representative from BACME.

https://t.co/Id74TUMJNk

[Karen Hargrave @karenlhargrave.🦋.social @KarenLHargrave]

A shame not to get the opportunity to correct the record with the guest interviewed after this (IYKYK), but if listeners remember one thing from this Radio 4 segment I hope it’s this 👇

[Oonagh Cousins @oonagh_cousins]

The ME/CFS Final Delivery Plan is out. As expected, it doesn’t deliver.

Karen breaks down the big gaps, small wins, and what comes next. 👇🏻

It's deeply disappointing, but this is not the end. @ThereForME_UK will keep fighting for action, not words.

[Emma 💛💙🇩🇰🇬🇧🇪🇺 @MonkEmma]

I was asked to take a look into this tweet, cos, well, it’s Andrea Jenkyns!🤷🏼‍♀️

So first - the substance of the story…

1/20

[𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 @DrNighatArif]

Pain relief is available for gynaecological procedures in the NHS.
Always question why you are NOT offered it!

In the NHS, There is & should be access to topical lidocaine injection, spray, entonox, and it should be routine.

For pelvic exams, never agree to put your hands underneath you to help the practitioner. This is a red flag for a wrong-sized speculum.

Here ⬇️I explain why it’s a teaching & equipment issue with the practitioner and NOT you being the problem
Compassion and care is a basic requirement

[#MEAction Scotland @meactionscot]

We have been asked to share the following update about Karen Gordon.

Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.'

https://t.co/iAwmtN9Bsi

#MyalgicEncephalomyelitis #VerySevereME #pwME

[terry christian @terrychristian]

This is great

[Larry the Cat @Number10cat]

A woman in a burqa has never done me any harm. Women wearing burqas haven't told me lies to get me to vote for them. They haven't cost me money by mismanaging businesses. They haven't got drunk and spouted abuse. Men in suits did though; maybe we should ban suits?

[Tessa Munt MP 🔸 @tessamunt]

It’s 30 June….the ME Delivery Plan is a no-show. It’s unacceptable.

#pwME have been left in darkness for too long. I’m with @HelenMorganMP:

‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’

[James Rebanks @herdyshepherd1]

Farmers are totally perplexed

1950-1990 cheap food
1990-2010 oh shit that crashes nature
2016 green BREXIT
2020-23 public goods for public £
2024 not quite enough £
2025 we’ve lost interest - can you do cheap food and nature with no funding?

This wasn’t on anyone’s bingo card

[James Rebanks @herdyshepherd1]

Can someone explain to me how we can cheapen food, end farm support, retain domestic food production, have food security and create a more sustainable and nature friendly farming system?

No?

OK thanks

[All On The Board @allontheboard]

Sending love to everybody affected by ME/CFS. It’s a long-term condition with a wide range of symptoms. Unless somebody has this condition they don’t know how exhausting it can be.

#MEAwarenessDay #MECFS #MECFSAwareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

[Naomi Harvey “PhD Witch” #WearAMask @Naomi_D_Harvey]

Neglect of #MECFS patients has been going on for decades yet the answer is #StillTheSaME. There is never any funds for research & care. This has to change! Fund #MECFS research now!
@AshleyDalton_MP @leicesterliz @stephenctimms @JoPlattLeigh @EdwardJDavey @tessamunt @sajidjavid

[DecodeME the ME/CFS Study @DecodeMEstudy]

This #WorldMEday we want to take a pause & recognise the challenges, stigma & neglect that many #pwME face. We hope that #DecodeME can pave the way forward in accelerating research into M.E./CFS & will help to set a standard in research to include voices of pw lived experiences.

[Dominic with ME/CFS @dog178234]

Dear @BillGates,

ME/CFS is the most underfunded disease in the world with the lowest quality of life. Can you help us?

There is no cure. We are waiting in our beds to die

[Tessa Munt MP 🔸 @tessamunt]

I’m so delighted that all 72 LibDem MPs signed this letter to @wesstreeting @AshleyDalton_MP asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay