KFry

[KFry @KFryKC]

Save the Date for our 5th Annual A Cure for Charlie Pickleball Tournament.

Registration and sponsorship details coming soon.

#ACureforCharlie #RareDisease #kansascity #giveback #pickleball @ChickenNPickle @SLC6A1_Connect

[KFry @KFryKC]

This right here sends me into a deep state of hopelessness.

The last week I have been searching for educational options for Charlie. And let me tell you, they are already bleak. The system is already telling me it’s time to give up on my 7 year old. He’s 7, this is cruel!!!

[ABC News @ABC]

NEW: The White House has pulled the expected Thursday signing of the executive order to dismantle the Department of Education, sources told ABC News. https://t.co/6tYwaSSpBa

[KFry @KFryKC]

.@repcleaver @senhawleypress @SenEricSchmitt Medicaid is a lifeline! People with disabilities rely on Medicaid services to support them in their daily lives. But about 711k people are waiting for Medicaid services. We need MORE funding, not less. #ProtectMedicaid and save lives!

[KFry @KFryKC]

Come see us tonight @taylorswift13 @tkelce @Chiefs @KSHB41 @newheightshow @taylornation13 @KCStar @KansasCity

[KFry @KFryKC]

1 MINUTE AGO: Travis kelce & GF Taylor Swift ENJOY BIRTHDAY PARTY in Kan... https://t.co/HouStVx7BN via @YouTube

@taylorswift13 @taylornation13 that’s my house!!! #acureforcharlie

[KFry @KFryKC]

@nat_dutton35 @christinakeen89 68th Terrace and Wornall in Brookside!

[KFry @KFryKC]

Amazing to see our house getting some love. Addie would flip if @taylorswift13 saw this.

[KFry @KFryKC]

@christinakeen89 This is my house!!!! 68th Terrace and Wornall. #acureforcharlie

[KFry @KFryKC]

Charlie was just 4 mo old when we knew something was wrong. It took a 1.5 yrs to finally get answers on what was wrong w/ our little boy.

Today is 5 years from receiving
Charlie’s diagnosis of #SLC6A1.

I didn’t come this far to only come this far.

#rare #cure #kids

[KFry @KFryKC]

@LNEagleVB Thank you all so much!!!

[KFry @KFryKC]

#TurningLemonsIntoLemonade

1. Post a video of yourself sucking on a lemon slice trying not to make a funny face, if you make a face, you donate $10.

2. Donate here: https://t.co/QzhIAhMTl6

3. Challenge: Tag 2 friends in your post

@LNEagleVB you’re up!!!

[KFry @KFryKC]

https://t.co/x3OYqcW734

[KFry @KFryKC]

AFC Championship Squares Time. $20 per square and a chance to win one of these amazing prizes from @kendrascott, @TitosVodka, @overlandparkscheels, Dots Tee’s and @kellyswestportinn!

https://t.co/kIo30mygTs

All proceeds go directly to #acureforcharlie

Let’s go @chiefs.

[KFry @KFryKC]

Order yours and help #Acureforcharlie

https://t.co/BxQORXHohs
@taylorswift13 @Chiefs @taylornation13

[KFry @KFryKC]

https://t.co/RS2JuVll8g

Tune in for our story on ⁦@KSHB41⁩ today. Thank you so much ⁦@ElyseSchoenig⁩ for sharing our #Acureforcharlie journey, love for ⁦@taylorswift13⁩ and ⁦@tkelce⁩ and our #brooksidecandycanelane lights display.

[KFry @KFryKC]

Don’t forgot today and tomorrow anyone who shops online at @KendraScott & uses this code will benefit #acureforcharlie. SLC6A1 Connect gets 20% back.

We are also hosting an in person event tonight at the KC plaza store from 5-7.

Please join us - https://t.co/LPMVqs9K0i

[KFry @KFryKC]

Two things at once?!? @tkelce

Now you can finish that shopping list and help us out.

Come in to the @KendraScott location on the plaza in #KC this Thursday or shop online Thursday & Friday and 20% of sales will be donated back to #ACureforCharlie and #SLC6A1 research.

[KFry @KFryKC]

Come see our house @tkelce and @taylorswift13. Our worlds collided when you two started dating so we had to spice up our lights for you. #Swifties live here! #kansascity #brookside

[KFry @KFryKC]

Cheering on our @Chiefs, meanwhile Charlie’s odds are on the black and white team.

@NFL @nflnetwork @kcwolf #germany #nflgermany #ACureforCharlie

[KFry @KFryKC]

@swifferupdates I wish our girls could have seen her and given her these sweet notes.

https://t.co/vmP1S3lIfO