Today marks a monumental victory for the Duchenne community. HHS has officially added Duchenne muscular dystrophy to the Recommended Uniform Screening Panel (RUSP)—the national list of conditions recommended for newborn screening across all states.
Huge shout out to this fantastic panel of adults with SMA for sharing their stories this morning. You’ve taught just all so much!!! we hear you and thank you! @CureSMA @CureSMA2024
In this new blog article, ASNR Member Dr. James Sulzer draws from his own experiences with his daughter Livie to discuss important gaps in #neurorehabilitation research & clinical care for pediatric traumatic brain injury.
https://t.co/sUc4jqtJNP
#TBI#neurotwitter#neuroscience
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https://t.co/PUNgGbdHdN
So grateful to partner with such wonderful organizations that help to make our education programs happen
📚📖 they wrote an incredible note about the recent program in Buenos Aires 🫶🏻
You can read it in full 🔗 https://t.co/gMkSFKWLMD
#ame#sma#FameArgentina
Just published in the Journal of Clinical Medicine: a review of the various patient-reported fatigue scales applied in SMA, considering the limitations and advantages of each measure.
https://t.co/y30zNpyRI2 @jackiemontesPT@Columbia@ColumbiaUnivDPT@columbianeurons