Know Rare

We are all RARE 💙💛
We are a rare disease community made by people just like you.

👇 Get support & insights from real people living with rare disease👇

[Know Rare @know_rare]

Introducing the new look and feel of Know Rare 💛

We are a rare disease community made by people just like you.

Coming soon to https://t.co/JGS4ImjAZf

#raredisease #rarediseaseadvocacy #rarediseaseawareness #KnowRare

[Know Rare @know_rare]

Get help on your rare disease journey 💛💙
Articles, interviews, podcasts, and more - all designed to help you learn more about living and thriving with a rare disease.

🔗 Sign-up today at https://t.co/JGS4ImjAZf

#raredisease #rarediseaseadvocacy #rarediseaseawareness #KnowRare

[Know Rare @know_rare]

Is someone you love going through a Bullous Pemphigoid (BP) flare?
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Send us a DM or visit https://t.co/djod8n5I5k for more information.⁠
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We're here to help. 💛💙⁠
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#BullousPemphigoid #raredisease #KnowRare

[Know Rare @know_rare]

Let Know Rare help connect you to specialists for your #WarmAutoimmuneHemolyticAnemia (wAIHA) 💛💙

Know Rare has helped many people with wAIHA connect to specialists and researchers, and may be able to help you.

Visit https://t.co/aOwDEKdyfJ for more information!

[Know Rare @know_rare]

Know Rare is a platform dedicated to supporting those living with rare disease. 💛💙

🔗 Sign up on https://t.co/JGS4ImjAZf today and discover a supportive space with people that truly get it.

#raredisease #rarediseaseadvocacy #rarediseaseawareness #KnowRare

[Know Rare @know_rare]

It turns out Jacob’s mutation was only in him—neither I nor my husband had it. It was dominant, meaning that only one copy of the gene was mutant.

Jacob’s mutation is in a gene called #USP7

📌 Read more on Orah Lasko's story on the Know Rare Blog: https://t.co/MDzuJSPOAd

[Know Rare @know_rare]

#BullousPemphigoid (BP) flaring? 💭
Get to see a leading specialist right away and access the potential treatments they're studying.

Send us a DM or visit https://t.co/zekbRcQyjr for more information.

We're here to help. 💛💙

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#raredisease #rarediseaseawareness #KnowRare

[Know Rare @know_rare]

Get help on your rare disease journey 💛💙
On https://t.co/JGS4ImjAZf, we provide access to articles, interviews, podcasts, and more - all designed to help you learn more about living and thriving with a rare disease.

#raredisease #rarediseaseawareness #KnowRare

[Know Rare @know_rare]

Sign up to Know Rare to get support on your health journey 💙💛

The Journal on https://t.co/JGS4ImjAZf is designed to help you track, communicate, and connect with health care providers, caregivers, and loved ones.

#raredisease #rarediseaseawareness #KnowRare

[Know Rare @know_rare]

We are a rare disease support platform made by people just like you 💛💙

Chat instantly with real people who understand you. Our Rare Allies understand your journey… because they’ve traveled it as well.

🔗 Sign-up today at https://t.co/JGS4ImjAZf

#raredisease #KnowRare

[Know Rare @know_rare]

Know Rare can help connect you to specialists for your Bullous Pemphigoid (BP) 💛 💙⁠
⁠
🔗 Send us a DM or visit https://t.co/djod8n5I5k

⁠
#BullousPemphigoid #raredisease #rarediseaseawareness #rarediseasewarriors #KnowRare

[Know Rare @know_rare]

Take this #FeelGoodFriday to stretch, reset and... help your kidneys?! 🤩

🔗 Read the full blog covering the "Effects of a 6-Month Yoga Program on Kidney Function and Quality of Life" on The Know Rare Blog: https://t.co/NM7Nrpi3Tw

#raredisease #kidneydisease #KnowRare

[Know Rare @know_rare]

🔬Beneath the Surface: How dermatologist Prince Adotama, MD, is changing the way we think about rare disease and our skin

🔗 Read more on Prince Adotama, MD's story on The Know Rare Blog: https://t.co/iqKPX5wjFV

#skinhealth #raredisease #rarediseases #rarediseaseawareness

[Know Rare @know_rare]

Living with FSGS: Like many rare diseases, Focal Segmental Glomerulosclerosis (FSGS) is full of surprises, but the main surprise often occurs at diagnosis.

🔗 Read the full story on The Know Rare Blog: https://t.co/odv5iID2q9

#FSGS #FocalSegmentalGlomerulosclerosis #KnowRare

[Know Rare @know_rare]

Know Rare can help connect you to specialists advancing treatments for Propionic and Methylmalonic Acidemia. 💛 💙

🔗 Send us a DM or visit https://t.co/fdhu42reNO for more information.

#MethylmalonicAcidemia #PropionicAcidemia #KnowRare

[Know Rare @know_rare]

Living with Greig Cephalopolysyndactyly Syndrome 💙💛

🔗 Read the full story on The Know Rare Blog: https://t.co/sdcq7Roweo

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#GreigCephalopolysyndactylySyndrome #raredisease #rarediseases #specialneedsfamily #specialneedsmom #rarediseasewarrior #rarewarrior #KnowRare

[Know Rare @know_rare]

Know Rare can help connect you to specialists for your Bullous Pemphigoid (BP) 💛 💙

Send us a DM or visit https://t.co/djod8n5I5k to learn more.

#BullousPemphigoid #raredisease #dermatology #KnowRare

[Know Rare @know_rare]

Let Know Rare help connect you to specialists for your Myositis.💛💙

🔗 Send us a DM or visit https://t.co/fh8uVgJjVH to learn more.

#myositis #raredisease #KnowRare

[Know Rare @know_rare]

RARE TIPS: Planning for Pregnancy When You or Your Child has a Rare Genetic Disease 💛💙 by Elizabeth Kearney, MS, CGC, MBA

🔗 https://t.co/6dMA1Nr7ia

[Know Rare @know_rare]

Let Know Rare help connect you to specialists for your Myositis.

Know Rare has helped many people living with rare diseases connect to rare disease specialists and may be able to help you too. 💛💙

🔗 Send us a DM or visit https://t.co/XKlg8fPvk9 to learn more.

#myositis