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Is someone you love going through a Bullous Pemphigoid (BP) flare?
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Let Know Rare help connect you to specialists for your #WarmAutoimmuneHemolyticAnemia (wAIHA) ππ
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It turns out Jacobβs mutation was only in himβneither I nor my husband had it. It was dominant, meaning that only one copy of the gene was mutant.
Jacobβs mutation is in a gene called #USP7
π Read more on Orah Lasko's story on the Know Rare Blog: https://t.co/MDzuJSPOAd
#BullousPemphigoid (BP) flaring? π
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Get help on your rare disease journey ππ
On https://t.co/JGS4ImjAZf, we provide access to articles, interviews, podcasts, and more - all designed to help you learn more about living and thriving with a rare disease.
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Sign up to Know Rare to get support on your health journey ππ
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We are a rare disease support platform made by people just like you ππ
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π¬Beneath the Surface: How dermatologist Prince Adotama, MD, is changing the way we think about rare disease and our skin
π Read more on Prince Adotama, MD's story on The Know Rare Blog: https://t.co/iqKPX5wjFV
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Living with FSGS: Like many rare diseases, Focal Segmental Glomerulosclerosis (FSGS) is full of surprises, but the main surprise often occurs at diagnosis.
π Read the full story on The Know Rare Blog: https://t.co/odv5iID2q9
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Know Rare can help connect you to specialists advancing treatments for Propionic and Methylmalonic Acidemia. π π
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Let Know Rare help connect you to specialists for your Myositis.ππ
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RARE TIPS: Planning for Pregnancy When You or Your Child has a Rare Genetic Disease ππ by Elizabeth Kearney, MS, CGC, MBA
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Let Know Rare help connect you to specialists for your Myositis.
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