Lymphoma Coalition

Global network of lymphoma patient organisations sharing resources & best practices; acting as a central hub for reliable information.

[Lymphoma Coalition @knowyournodes]

📣Lymphoma Coalition’s 10th Global Patient Survey on Lymphoma & CLL is now open. Patients and care partners, visit the link to share your experience and insights today.

https://t.co/CITT5iXyKc

#lymphoma #CLL #lymsm #CLLsm

[CLL Advocates Network @CLLAdvocates]

Inspired by the #ASCO Annual Meeting with 50,000+ participants, attended by our Steering Committee members, Brian Koffman &Peter Haggert.Collaboration drives progress🤝. #ASCO #PatientAdvocacy #CancerResearch #GlobalHealth #CLLAN #CLLAdvocacy #CLL #Leukemia

[VJHemOnc @VJHemOnc]

🎥 @LornaWarwick (@knowyournodes) shares findings from the Lymphoma Coalition’s 2024 global patient survey comparing the decision-making experience in patients with large B-cell #lymphoma undergoing stem cell transplantation versus #CARTCell therapy:

👉 https://t.co/guxhUSD5zq 👈

#LYMsm #NonHodgkinLymphoma #ImmunoOnc #HemOnc

[Global Colon Cancer Association @GlobalCRC]

Global collaboration is key to improving cancer care 🌍
At the GCCN Annual Meeting in Lyon, leaders aligned on priorities, launched the Close the Loop report, and looked ahead to 2030.
No one organization can do this alone.
Read more: https://t.co/2HyC7yGezU
@IARC @FT3Program @uicc @InternationalKidneyCancerCoalition
@WorldBladderCan @WOCCnews
@GlobalC22403 @ABCGlobalAll
@knowyournodes @InternationalBrainTumor Alliance
@worldpcc

[CLL Ireland @CllIreland]

At this weeks #AllIrelandCancerSummit in Dublin
Alliance Party MP Sorcha Eastwood, whose husband was diagnosed with a rare lymphoma, said: “What you want as the person, as the patient, as the family, is a sense of control and a sense of a plan.”
@knowyournodes

[Lymphoma Coalition @knowyournodes]

❓How can current Health Technology Assessment (HTA) frameworks better address the realities of rare diseases?

On May 20 at ISPOR 2026, Marjorie Morrison, Director, Policy & Advocacy at Lymphoma Coalition, will join the panel discussion A Rare Dilemma: How to Fit an Unfittable Into Current HTA Paradigm in Philadelphia, USA.

The session will explore global perspectives on rare disease access, evidence uncertainty, reimbursement challenges, and the evolving role of HTA systems.

Representing the patient perspective, Marjorie will discuss the important role patient organisations play in supporting HTA bodies, reducing uncertainty, and helping improve equitable access to care.

✅ Learn more: https://t.co/vgAo4SiFsm

[S.E.F.H @sefh_]

🆕 💉 🔄¿Cómo abordar con el paciente el cambio de un medicamento biológico?

📘 Nueva guía práctica de @BioSim_es con participación de la @sefh_ y otras sociedades científicas, para mejorar la comunicación y la adherencia en el “switch”

💉 Explicaciones claras sobre qué es un biosimilar
💉 Cómo abordar el intercambio con el paciente paso a paso
💉 Recomendaciones prácticas sobre qué hacer (y qué evitar)

🔗 Guía completa "Entendiendo los biosimilares. ¿Cómo abordar el intercambio (switch) con los pacientes?" https://t.co/XWtAVVZidu

[Acute Leukemia Advocates Network (ALAN) @AcuteLeuk]

🧬 World Immunization Week
The immune system plays a key role in protecting our health.
In leukemia, this system can be affected —
making awareness, prevention, and early attention even more important.

#WorldImmunizationWeek #LeukemiaAwareness #KnowledgeIsPower

[Global Cancer Coalitions Network @GlobalCCN_org]

📍 GCCN meets in Lyon for the Annual Meeting 2026!
Reviewing achievements, celebrating the launch of the Close the Loop report, sharing best practices & shaping the future of global cancer advocacy together 👏

#CancerAdvocacy #PatientAdvocacy #CloseTheLoop

[VJHemOnc @VJHemOnc]

At #EBMT26, we spoke with @LornaWarwick (@knowyournodes) who shared insight into learnings from patient experience data and discussed discrepancies in patient versus clinician priorities when managing #DLBCL.

To learn more, watch the full interview here:

👉 https://t.co/uqMoNFffPU 👈

#LYMsm #Lymphoma #HemOnc

[Lymphoma Coalition @knowyournodes]

1 DAY TO GO! April 21 marks AML World Awareness Day 2026

Acute myeloid leukemia (AML) is a complex and often aggressive blood cancer — raising awareness and improving understanding is essential to support patients and caregivers at every stage of the journey.

This year’s campaign focuses on:
• Increasing understanding of AML, from early signs and diagnosis to treatment and survivorship
• Supporting patients and caregivers throughout the journey
• Amplifying lived experiences and strengthening the global community

Explore the interactive resource and learn more:
🔗 https://t.co/JAwlFe11rY

Get involved:
• Discover key information about AML
• Share the resource with your network
• Help raise awareness by joining the conversation

hashtag#KnowAML hashtag#AMLWorldAwarenessDay

[Lymphoma Canada @LymphomaCanada]

Today, we honour the caregivers, the partners, parents, siblings, and friends who stand with lymphoma patients through every challenge and milestone. Thank you for all you do. Learn more about Lymphoma Canada Peer-to-Peer Mentorship Program: https://t.co/dNmWFhtDnU

[LymphomaAction @LymphomaAction]

What happens after you finish treatment for #Lymphoma?

We've recently updated our information on follow-up after treatment, including what it is, what to expect and how it can help you. Find out more 👉 https://t.co/56oBjLxnfc

#BloodCancer #HodgkinLymphoma #NonHodgkinLymphoma

[Natacha Bolaños @BolanosNat]

Last days to complete the Global Patient Survey on #Lymphoma and #CLL. Data provides critical evidence on patient experiences and needs, helping to improve care and inform healthcare decision-making.
Link: https://t.co/TIq7OFc8kK
#Lymphoma #CLL #lymsm @LymphomaEx @knowyournodes

[VJHemOnc @VJHemOnc]

It's always a pleasure speaking with the lovely @LornaWarwick, CEO of the Lymphoma Coalition (@knowyournodes)!😊

Today, we heard about the patient perspective in the era of patient experience data, the importance of integrating PROs into registry data, & more.

#LYMsm #Lymphoma #HemOnc #Hematology @TheEBMT

[AELCLES @aelcles]

Hoy participamos en la presentación del documental #EnlazandoHistorias sobre #LinfomaNoHodgkin con
@roche_es representando a estas personas y sus familias y cuidadores.
3 historias de esperanza y vida con #LNH
#Linfoma #Oncohematología

[Women in Lymphoma - [email protected] @WomenInLymphoma]

Series 18 (Spanish) of #WiLingWednesdays is coming 🎉
🗓️ Starting May 13
💻 Free educational webinars
🧠 DLBCL, CLL, cell therapies & Hodgkin lymphoma
Regional experts sharing insights on innovation, clinical practice & access in lymphoma.
📌 Don’t miss it!
#womeninlymphoma

[Lymphoma Canada @LymphomaCanada]

The Global Patient Survey (GPS) on Lymphoma & CLL is designed to drive positive change for people affected by lymphoma and CLL, both globally and here in Canada. Will you add your voice today? https://t.co/5GpJCc3vEA

[LymphomaAction @LymphomaAction]

Healthcare professional working with people affected by #Lymphoma?

Access training, find clinical trials and patient support resources all in one place 👉 https://t.co/z53vSkTjqT #LymSM

[Women in Lymphoma - [email protected] @WomenInLymphoma]

“Being part of WiL connects me with inspiring professionals who motivate me to stay engaged.”
— Adalgisa Condoluci

Knowledge. Support. Inspiration.

That’s what makes this community powerful. 💜
#WomenInLymphoma #InternationalWomensDay

[LymphomaAction @LymphomaAction]

This week, we attended a Parliamentary reception organised by the Blood Cancer Alliance (BCA), of which we are a member to discuss all things #Lymphoma.

Find out more 👉 https://t.co/VJKpZ5Ubj5