Hi #LongCovid community! Analysis is about to start on the @id_cure dataset but we need many more responses!
If you haven’t filled this out, please do so by Jan 31st! And please RT & circulate as widely as possible, including to providers treating LC!
https://t.co/QAlrZ54iJF
Our new preprint:
"In immunocompromised individuals & those at least aged 65 years, access to at-home COVID tests, telemedicine, & rapid Paxlovid delivery reduced the ... need for ICU care;
this has the potential to reduce the cost of COVID care."
https://t.co/PvDybEavlE
1/3
After 3 long, hard years of tireless work, our cross-campus, multi-discilinary academic team reaching our goal: State of CT support to scale up CR Boxes for every classroom in Connecticut! 💪🌬️💫💫
This passion project started from the point of care at @uconnhealth 🏥where I have been treating people living with MS since 2017 as a neuro-immunology nurse practitioner. 👩⚕️
When the 🦠 pandemic struck, my immunosuppressed patients were vulnerable - majority females with families and many educators that work in our CT Schools. 👩🏫👦🧒 [https://t.co/u1dVpgMRoV]
I looked at the mitigation efforts in these hubs of our communities and saw a gap - no air purifiers in schools, while @JohnsHopkinsSPH and @HarvardChanSPH recommended this intervention.[https://t.co/LX9zc5G02u]
We’re happy to announce a new @patientled preprint out today, on machine learning phenotypic with high-dimensional #LongCovid symptom data!
We used a dataset of 162 symptoms in 6,031 participants to explore making clusters of Long Covid patients. 1/
https://t.co/CJMbLu7zA2
Little has been published on accessing care #longcovid. @leticiasaurus and colleagues have a fantastic protocol paper that can help guide others in the field:
https://t.co/AKrZdvqzDS
Additionally we want to highlight the incredible mechanistic review by @MichaelPelusoMD & Steve Deeks also published in Cell this week. We hope these two articles help pave the way for coordinated, robust research on Long COVID and all IACCIs. /10 https://t.co/mhG5wFqfaI
For better or worse, I'm back on this app. However, the best part is that I have access to early insight from experts like @putrinolab, @resiapretorius and others. This evidence will (should) be transformative for the field.
Was swamped this week, but wanted a moment to talk about this #LongCovid work that was finally published. I’m grateful to @resiapretorius and @ArneauxK for leading this incredible work and to all the co-authors who contributed. Honored to be included.
https://t.co/7px0LRv9OG
1/
Published this week in @CellCellPress, “A call from patient-researchers to advance research on Long COVID” - authored by PLRC members, all with lived experience of #LongCovid and related infection-associated chronic conditions 🧵 1/
https://t.co/4AJyU6how4
In our new @NEJM article, @DrZackaryBerger and I offer advice to providers on how to successfully write doctors’ notes to ensure people w #LongCovid receive workplace accommodations and fight common fear of fakery & of the disability con. 1/3 #CripTheVote https://t.co/pGScWXkQ3o
Breaking my Twitter hiatus to share some important research.
Latest in @Nature find replicating (meaning active) Covid-19 in brain and body tissue in 44 autopsy patients up to seven months out from acute infection. See thread for details and link.
I think #MedTwitter and #PHTwitter have an ethical and moral obligation to not and try to shut down clinics and systems that corral chronically ill people (again, including cancer and Long Covid patients) into lifestyle management instead of serious biophysical medical care