📢Do you work in virtual wards / hospital at home services? Share your experiences for research which aims to improve access to medication.
University of Southampton are investigating access to medication for people in the last year of life in these services, in a Marie Curie-funded research project. If you work in these services, we'd love to hear from you.
👉Please complete this short survey and share with colleagues. https://t.co/HSIQdp5u3Y
Myself & @Sarah_Stan_ are delighted to announce that the Palliative Care Journal Club Toolkit is now available on the @mariecurieuk website.
Chat to us during the @hospiceuk conference for more information. Come to our lunchtime session on 26/11
https://t.co/rnkPOpLSnS
#hapc
My article in today’s Sunday Times @thetimes about how ethnic minorities are treated in an already overstretched health system and my fears that the rushed
#AssistedDyingBill will exacerbate health inequalities https://t.co/pbx7KcP9Zx looks like this on the page
#buyApaper
Nothing to see here. Just an article saying palliative care services may be cut to ‘balance books’ a week after the TIA Bill Impact Assessment laid out how much money assisted dying will save the NHS.
The rejection of the amendment to allow hospices & care homes to opt out of assisted dying will have complex impact
One that shouldn’t be overlooked is the impact on those who are fearful of being pressured into AD and so will be fearful of accessing these places of care…and in the case of hospices gold-standard care for those with the most sig need
We can’t avert our eyes from the needs of such groups&only consider those who want AD
There is lots we can do to bridge this gap but so far supporters of the #AssistedDyingBill seem to be sticking to minimising any concerns
Our letter in @thetimes highlights this
And as always I’m happy to discuss how this can be done @kimleadbeater 🙏🏽
This is huge
Toby Porter, CEO of Hospice UK, did a great job of clearly pointing out the complexity of hospices not having the oppo to opt out
If some staff don’t want to be involved
And managers/trustees do (esp if it impacts finances)
What to do? You can’t run the service without staff…you have to look after them
If hospices/care homes can’t opt out, what can the staff do? The evidence from other countries shows taking part in AD affects staff in a sig way, it is distinct from any other part of clinical practice, it feels and is different, AND causes a lot of moral distress esp when those most vulnerable are not adequately safeguarded (ie they ‘choose’ AD cos they can’t make ends meet/not wanting to burden their kids who are disabled and struggling themselves/domestic abuse victims wanting a way out)
I wouldn’t be someone who consciously objects to being involved from a pall care perspective … and the vast majority of my colleagues are not against AD in principle … but the lack of safeguards in this bill esp for the most vulnerable, the lack of acknowledgement of why relying on training/clinician or remote panel judgement is wholly inadequate, will make it really hard/not possible for us to shoulder that burden.
Which means, again, both those wanting AD and those not will be impacted negatively
#AssistedDyingBill
@JamillaHussain1@Jess4Lowestoft@sarahditum I am so sorry (& somewhat appalled) to hear this happened Jamilla, and for the impact on you and others who gave their time & resources to attend.
Me & many other disabled people @TheNotDeadYetUK have been making this #noise & opposing the legalisation of assisted suicide for years
And until our voice, our concerns, our fears have truly been heard, we will keep making the noise & I'll keep posting:
https://t.co/KOoAi5m7Jz
Read and watch this whole thread, but in particular watch Dr Jamilla Hussain explain that individual stories, while important, are not enough. We have to consider the population as a whole when considering law change.
@nmdacosta I haven't seen anything else Nikki and I was specifically looking. Thank you for your reporting and commentary yesterday. It seems to have made all the difference