Dåve

Truth. Integrity.

[Dåve @lcbarbarian]

THIS deserves a retweet.

Especially after the dehumanizing and "othering" bullshit response we got from the white knight.

AND especially NOW, when folks are dismissing real patient concerns and trying to minimize their existence.

There is so much folks don't know.

[feligni @Virus2Host]

David Putrino, along with other “saviors” like Akiko Iwasaki etc authored the “roadmap” document which laid out the foundation to “opening up” the USA “safely” which was just a “LET IT RIP” white paper (policy document). In other words these people are pro infection schills.

[Dåve @lcbarbarian]

@AlbaDocherty @uht_fresh Haven’t watched - I suspected this would be the case

[࿐࿐Alba ࿐ @AlbaDocherty]

"Long Covid Labs techbro Austin Walker came out last week saying one of these so-called Tx cured him & name dropped RTHM"

Now there's another "founder" bro pushing this shit.

Predatory & unconscionable @RTHM_Health @patientled paying shills to influence Long Covid patients.

[Dåve @lcbarbarian]

@SethAbramson They are ugly as sin

[Dåve @lcbarbarian]

@jonahmcgarva Trippy

[Dåve @lcbarbarian]

And look at the direction things have gone….

[Remarks @remarks]

JUST IN: 🇺🇸 More Americans now use marijuana daily than drink alcohol or smoke cigarettes.

[Dåve @lcbarbarian]

@DebHolloway @miketweetchap @calirunnerdoc Thanks Deb, I’m just tired of the narrative building. We need to continue to at least try and keep this space honest.

It’s subtle, but people chip away at what is real u til there is nothing left.

And we are real close to that moment.

[Dåve @lcbarbarian]

@dryostradamus @loscharlos Their will be live coverage of his upcoming rthm cameo

[Dåve @lcbarbarian]

I think it’s funny how @Loscharlos who led the brigade on inclusivity and access is now shilling for rthm clinic.

Well, maybe sad… not funny.

[Peter Ginsburg @pwginsburg]

@lcbarbarian Oh wow, a PEM seminar! Humm. I wonder. Why did RTHM delete their price schedule on their website? The Google Ai oracle says: "RTHM Clinic costs $1,080 a month, and has a 3-month minimum commitment. In addition, there is a $1,500 one-time onboarding fee."

[Dåve @lcbarbarian]

@ktho641521 It’s also about being exaggerative and hyperbolic in order to drum up a fantasy narrative.

These people are NOT being attacked.

They are putting their shit out on social media where not all patients are as stupid as they depend on.

[Dåve @lcbarbarian]

Well, just because you “feel” threatened by the truth, doesn’t mean you are being attacked.

[Just Here For The News @ktho641521]

@lcbarbarian Why do they feel the need to defend themselves? If they're not doing anything wrong, why do they care who criticises them?

[Dåve @lcbarbarian]

I love how he dismissed studies that show higher prevalence of #longCovid saying, those other studies are wrong - but then used an array of percentages describing the vaccine's protection from it - saying, it depends on the study and landing on 90%

They used us to sell vaccines, while hiding our own issues with them.

The folks with #longcovid have been left by the wayside, abandoned and shoved into broader disease buckets that will never be solved.

And they are dying.

Conflation, the conflation we patients speak of served this.

[Mike Z @MikeZ____]

@ashishkjha @ashishkjha did you already forget about all of the lies you told about #LongCovid? Here’s a video of you selling out sick Americans.

[Dåve @lcbarbarian]

Who needs wheels anyways.....?

[Jammer @acrossthemersey]

@lcbarbarian If these guys were in charge centuries ago, we wouldn’t have invented a wheel.

Congrats, ANOTHER study that confirms to patients, their exertion issues exist (offering no therapeutic or clinical value) so now what? Really nailing that coffin shut alright.

[Dåve @lcbarbarian]

Um, nobody is saying “don’t bring researchers together”

Can anyone stop straw-manning?

For just one moment please?

[Michael Chapman @miketweetchap]

I appreciate the respectful tone. And yes, I do think we need to keep questioning whether we're doing things the right way. Six years without effective treatments is devastating, and no patient should be satisfied with where we are today.

But I don't think the answer is to stop bringing researchers together. I think the answer is to make those meetings better, more collaborative and more focused on translating science into treatments.

I wish we were in a position to make every session freely available online. Unfortunately, we're not. This is the first edition of a non-profit conference, organised by a very very small team, and we're still working hard to close a significant funding gap.

Bringing hundreds of researchers together from around the world is expensive, but I still believe it's worthwhile if it helps accelerate progress.

After the conference, the recordings and the science will speak for themselves. I hope you'll judge us on what was actually presented and discussed, rather than on assumptions beforehand.

And if we're going to continue this conversation afterwards, I hope we can all agree on one thing: that speakers, researchers and patients deserve to be challenged respectfully, not personally attacked. I think that's a standard all of us can support.

Please reach out again after the Conference. I'd like to do something to proof the value of the Conference to you.

All the best!

[Dåve @lcbarbarian]

@miketweetchap @calirunnerdoc Michael, who do you think the small group is?

It’s patients.

Don’t call them “social media accounts” that’s minimizing and dismissive and even dehumanizing.

Own your words - They are patients.

WE ARE PATIENTS

[Dåve @lcbarbarian]

Good….

[Dåve @lcbarbarian]

@AlbaDocherty Undeniably

[Dåve @lcbarbarian]

Don’t worry bud, the experts have your back.

[LUCIΞN | DARKTIMES @LucienDorman]

There are really only two questions:

1) What exactly is PEM, and how do we prevent it and reverse baseline loss?

2) What is driving the illness?

Answer them 🙏
#MECFS #LongCOVID