Lee Bullen

[NIHR Research Delivery Network @NIHRrdn]

Our agile research delivery teams support the delivery of research in a variety of settings.

On #InternationalNursesDay, Research Nurse Cheryl Clements from our #NorthWest team explains her pride in being able to offer patients in hospices the opportunity to #BePartOfResearch

[Health Innovation North West Coast @innovationnwc]

Congratulations go to Cheshire and Merseyside Greener Practice @NHSCandM, Central Liverpool PCN, Vauxhall Health and @brownlowcentral for their Primary Care sustainability achievements.
@arc_nw
#nwcawards #LCRinnovation

[Health Innovation North West Coast @innovationnwc]

With only a few days until #NWCawards we want to wish our finalists good luck.
Those shortlisted for Capacity building in Research are: @PrimaryCare24, @WirralSurgery @mageefrcs, and Katy Cleece from @WeAreLSCFT
We look forward to seeing you on Thursday!

[Health Innovation North West Coast @innovationnwc]

Those shortlisted for Industry collaboration - primary care award are:
> @LSCICB @CytedHealth & cancer alliance
> Safe Steps Ltd
> @WUTHnhs, @nhsUHLG, @innovationlaura, @moretonmeolspcn, @MarineLakeMP

Good luck to all for Thursday evening when the winner will be revealed. #nwcawards 🏆

[Health Innovation North West Coast @innovationnwc]

Wishing good luck to the finalists for #nwcawards Innovation in workforce culture: @LancasterMedics, Innovation Team @CCCNHS and @bay_medical

We look forward to crowning the winner in this category on Thursday evening.

@arc_nwc

[Prof Greg Irving @gregjirving]

Online free NIHR Primary Care Deep End Research event - come and join us!

Should be a great event!

👇

https://t.co/bRNBTmyXfx

[Prof Greg Irving @gregjirving]

⁦Glorious day in Westminster. @edgehill @EHU_FHSCM Medical Students presenting outputs from their @NIHRresearch Intership outputs at “Posters in Parliammet” ⁦@edgehill_HRI⁩

[NIHR School for Primary Care Research @NIHRSPCR]

🚨 The Hidden Workload Study is live! 🚨 @StGeorgesUni @GPPACT are exploring the vital but often unseen work #clinicians do beyond patient consultations in #generalpractice. Join them in uncovering the hidden workload! 🩺

🔗 Learn more: https://t.co/ptzoNy5WRL

@GeorginaSPCR

[Mersey and West Lancashire NHS Research @MWLNHS_Research]

Look out for the Winter Edition of our Research Newsletter! If you would like to subscribe please email either [email protected] or [email protected]

[Prof Greg Irving @gregjirving]

📣EXCITING NEW JOB OPPORTUNITY

EHU are recruiting a Senior Mental Health Research (Professor / Reader) linked to the prestigious NIHR Mental Health Leadership Award.

This package includes :

✅ Fully funded NIHR project to lead
✅ A team of post doctoral researchers to lead
✅ Conferences covered
✅ Fully funded research leadership training at the Univeristy of Oxford

👇

https://t.co/v9KJMQ5N8M

Deadline 10th January 25.

Please get in touch if interested [email protected]

https://t.co/O1Bv7qobLf

[Cure Leukaemia @CureLeukaemia]

The innovative ATICUS network, funded by Club 10, aims to revolutionise the landscape of clinical trials for children battling blood cancer. With your support, we can pave the way for innovative treatments and provide children with hope ❤️

[Edge Hill University @edgehill]

We’re proud to announce that EHU has been awarded £2.5m to expand its expert research into the mental health of children and young people.

The @NIHRresearch announced the grant today as part of its Mental Health Leadership Award: https://t.co/msYaR3aapZ

#WorldMentalHealthDay

[SAPC @sapcacuk]

Applications for this award are now open “Principal Investigator Award 2025”

For further details and to submit an application please click https://t.co/YGVyVmSKhG

[Lee Bullen @leeabullen]

So good to see the growth of research within General Practice. https://t.co/zs13fhZrfP @NIHRrdn @julie_mugarza @EmilyMc968 @james_conno

[Lee Bullen @leeabullen]

Job alert 🚨 Research Nurse at Brownlow Health in Liverpool

https://t.co/uLWam57zjW

[Lancaster Medical Practice @LancasterMedics]

🟥 Today, we’re going #Red4Research! 🟥

Let’s show our support for the incredible researchers working tirelessly to improve health and care for us all. Lets celebrate the power of research! 🔬💡

#ResearchMatters #SupportScience #WearRed #ClinicalResearch

[Lee Bullen @leeabullen]

#EHUHRIshowcase @NIHRCRN_nwcoast here today at Edge Hill University, come say hi !👋

[Nichola Verstraelen @nicholaverstra1]

Delighted to attend HazelValley family practice today in Rossendale to open up their new research hub @NIHRresearch such a forward thinking practice @LSCICB #Luckypatients @arc_nwc

[The Ehlers-Danlos Society @TheEDSociety]

📢New Research Identifies Potential Biomarkers for Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD)!

🩸A recent study funded by The Ehlers-Danlos Society, and published in the American Journal of Medical Genetics, has identified potential blood-based biomarkers that could help diagnose hEDS and HSD.

❗This discovery is significant because diagnosing hEDS and HSD has been challenging due to the lack of established laboratory tests and molecular markers.

What was the study, and what did it find❓

🔬In this study, researchers examined blood samples from 466 adults, including 94 diagnosed with hEDS and 80 with HSD.

1. The study revealed the presence of a specific 52 kDa fragment of fibronectin in the blood of every individual with hEDS and HSD. This fragment was notably absent in healthy controls, individuals with other types of EDS, and those with various kinds of arthritis.

2. The consistent presence of the 52 kDa fibronectin fragment in individuals with hEDS and HSD suggests a possible common underlying pathophysiology, thus questioning the differentiation between these conditions.

3. Additionally, a fragment of collagen I was found in all individuals with hEDS and HSD, although this fragment was also present in other conditions.

What could this study mean❓

The identification of these fragments could lead to the development of the first blood test for hEDS and HSD, providing a more reliable diagnostic tool for healthcare providers, and reducing the time to diagnosis, which currently averages around 12 years.

What are the next steps❓

The study's findings are a significant step forward, but the authors emphasize that before this test is ready for diagnostic use, other investigators must confirm the results in additional cohorts of hEDS, HSD, and controls.

The Ehlers-Danlos Society is sponsoring further confirmatory work. Currently, no diagnostic lab offers this test, but if validated, it could become an important tool in diagnosis and treatment trials and provide new insights into the underlying causes of hEDS and HSD. Of course, we will keep you up to date with all developments!

Find an FAQ and further information, including a link to the research paper here: https://t.co/1rrN1bcGvS

#hEDS #HypermobileEDS #HSD #hypermobility #hypermobilityspectrumdisorder #EhlersDanlossyndrome #medtwitter #meded

[NIHR Research Delivery Network @NIHRrdn]

Yesterday, Monday 9th September, we launched another Primary Care Research Hub at Liverpool Women's Hospital @ResearchLWH @LiverpoolWomens Thanks to all that came and celebrated the launch with us, we can't wait to see all the research that takes place in your new unit!