Lettercase

Lettercase is a medical outreach program under the University of Kentucky's Human Development Institute.

[Lettercase @lettercaseorg]

Come to poster p530 at #ACMG2025 for free resources about spina bifida and to learn about consensus group process to develop them 😊

[Lettercase @lettercaseorg]

Come on by Booth 439 for all the patient education materials we have for new and expectant parents learning about genetic conditions. We also have a beautiful photo taken by an adult with Down syndrome with an unexpected twist! #nsgc2024 #nsgc24 #GeneChat

[Matt Tschirgi, CGC @Matt_Tschirgi]

Every single person affected with sickle cell on today’s panel has reported about their terrible experience with healthcare professionals. This needs to change. #NSGC24 #GeneChat

[Lettercase @lettercaseorg]

Come by Booth 439 at #NSGC2024 #NSGC24 for free Down Syndrome Pregnancy materials while they last!

[Lettercase @lettercaseorg]

Come check our our new FREE Spina Bifida resources at Booth 439 at #NSGC2024 #NSGC #genechat

[Lettercase @lettercaseorg]

Come stop by booth 726 to find out how this photo is like a prenatal diagnosis experience. Ask me! #GeneChat #NSGC23

[Lettercase @lettercaseorg]

Looking forward to hearing Maryam share about the preliminary results of our data about GCs and the prenatal Down syndrome dx experience! #genechat #NSGC23

[Lettercase @lettercaseorg]

Andrea Schelhaas: providers need to asses if the space is accessible; also think about other barriers people might face like child care, transportation, and school. #genechat #nsgc23

[Lettercase @lettercaseorg]

Aarin Williams: Asking insightful and caring questions is the key to better serving intersectional patients and also working as a team. Treat as participant instead of specimen. #genechat #nsgc23

[Lettercase @lettercaseorg]

Andrea also indicates providers need to be careful when discussing a medication like Voxzogo not to further marginalize people of short stature. Again—height is not a medical problem. #genechat #ndsc23

[Lettercase @lettercaseorg]

Appreciate so much hearing Andrea Schelhaas sharing at NSGC EBS not to make assumptions abt life with disabilities, height is not a medical problem, and education about the lived experiences of ppl with disabilities needs to be a required part of GC training. #NSGC23 #genechat

[Lettercase @lettercaseorg]

Also we have info about free CEUs via our online course on how to sensitively deliver a prenatal or postnatal diagnosis at booth 726! (Across from the pizza!) #nsgc23

[MUN Centre for Bioethics @MUNBioethics]

Non-Directive Prenatal Counseling: A Myth Under the Shroud of Ableism https://t.co/Oqw7VaLZDf by the brilliant Stephanie Meredith @lettercaseorg via @impactethics

[Lettercase @lettercaseorg]

@MUNBioethics @ImpactEthics Thanks so much for sharing!

[Lettercase @lettercaseorg]

Come visit us for free nationally recommended patient education resources at the best booth our nonprofit can afford! (726) #nsgc2034

[Lettercase @lettercaseorg]

Our research shows that biases about disabilities in prenatal care can significantly impact the information, healthcare & support expectant parents. Disability cultural competency is a critical part of prenatal patient care. https://t.co/OZ2Zjz9qJK

[Kara Ayers @DrKaraAyers]

A quick thread on erasure of disability advocacy: I’m happy folks are celebrating the declaration of disabled people as a health disparity group and I get the pull to share the original source from the NIH but can you also share another article? See next for what and why.

[Lettercase @lettercaseorg]

Our research shows that biases about disabilities in prenatal care can significantly impact the information, healthcare & support expectant parents. Disability cultural competency is a critical part of prenatal patient care. https://t.co/OZ2Zjz9qJK

[TIME @TIME]

"We needed a vision formed by real families with real struggles and celebrations in their lives," writes Amy Julia Becker. "Instead we got a list of potential problems" https://t.co/b6d6jAXQHL

[Lettercase @lettercaseorg]

At the @AADMD conference to share recommendations for improving patient experiences w/prenatal screening & reduce bias toward people with disabilities—also happy to be attending this fireside chat where @AmerDentalAssn and @AmerMedicalAssn are committing to disability advocacy.