“Why should you feel guilt for using the things you need to help you live? You didn’t ask for your body to just stop working… I never thought at this age I would have a body of someone decades older.” When Little Things Become Struggles https://t.co/H2FqFoEJg7 #chronicillness
“It can feel like #chronicillness is like living in a prison. Symptoms imprison you to spending a large amount of time at home… Your world becomes smaller and smaller, leading to #loneliness and isolation.” Silent Symptoms https://t.co/qaitwd82oh @DespitePainBlog#ChronicPain
“If you know someone living with #invisibleillness, believe them. Listen without trying to fix. Avoid saying things like “but you don’t look sick”…these phrases though well-intended, deepen the isolation. Instead, ask how you can help. Ask how they feel.” https://t.co/TVkFZ6dtfd
“I’m just so tired of being strong all the time. Of saying I’m fine, when really, I’m not. I’m tired, lonely, in #pain, and some days… just done. But to make someone else feel better, to not make others uncomfortable, I just say I’m fine.” https://t.co/GcxQINBxTn #chronicillness
Something most don’t understand with chronic illness is how symptoms stack.
You’re not dealing with one thing.
You’re dealing with ten things that pile on each other.
It’s never one symptom that destroys you. Most of us can tolerate one.
It’s the combination that breaks us.
Invisible disabilities exist.
Dynamic disabilities exist.
People with the same disability but different severities exist.
Better days and worse days with disability exist.
You cannot always judge someone’s disability just by looking at them. And you shouldn’t. Their abilities are none of your business.
@LarryWeis7@ThePOTSPostman I completely agree. I’ve had several “medical professionals” demonstrate they have little understanding of chronic illness/chronic pain.
I can confirm that Monsters Unchained: The Frankenstein Experiment is not only the best attraction at Universal Epic Universe but also one of the best attractions ever created, and no, I’m not exaggerating.
Universal Creative delivered an experience unlike any other, telling an incredible story before you board the ride. The preshow, set in Dr. Victoria Frankenstein’s lab, features Frankenstein’s Monster, who walks tall at nine feet and weighs over 800 pounds. The preshow is an attraction on its own, with multiple jaw-dropping moments.
When you board the ride and head deep into Frankenstein Manor’s catacombs, you enter large-scale physical scenes that are some of the most impressive ever created by Universal Creative. Digital media in the attraction enhances the scenes and the story, seamlessly blending with the physical sets and their environments.
While I won’t disclose any other specifics out of respect for the teams that have worked tirelessly to bring Dr. Victoria Frankenstein’s demonstration to life, I wanted to share something exciting about this incredible attraction, which will be unveiled to the world very soon.
I intentionally waited to post this until 10:31 PM EST, the night before Team Member Previews begin. Now, let’s have some fun! 👀
“Living with #chronicpain is exhausting—not just physically, but emotionally. Every day is a balancing act. You’re trying to be a parent, spouse, friend…and, simultaneously, a full-time pain manager. It’s like juggling; only the balls are on fire.” https://t.co/5dyewcJ0sG
“Please don’t stop inviting them…even though your loved one with #chronicillness may have to cancel a lot, they’ll appreciate feeling included. They hate canceling on you and wish they didn’t have to…but it’s their illness that’s undependable, not them.” https://t.co/gTBzQ7iL17
Living with a chronic illness turns everyday tasks into hurdles.
Folding laundry? Exhausted after one load.
Making dinner? Pain kicks in halfway through.
Chat with a friend? Brain fog steals your words.
Grocery shopping? Need a day to recover.
Quick shower? Feels like you ran a marathon.
Standing up? Overcome with dizziness.
Invisible struggles with constant battles.
“I wish people had more empathy for anyone who has a #chronicillness of any kind. I wish they knew how much I miss working…socializing…I would give anything to have the old me back…but I'm fighting and doing my best to survive.” https://t.co/n0davb0mk1 #ChronicPain#Disability
“People who see us ‘able’ to carry out activities are oblivious to the pain involved, aftermath or inability to repeat that activity. The swift flare from ‘normal’ pain to being entirely unable to speak can also be perplexing.” https://t.co/PhzwWE1RDE #NERVEmber#ChronicIllness
“Those who are not able to work due to #chronicillness are not on vacation. They are instead, struggling every day to do simple tasks: getting out of bed, getting dressed, making a meal, bathing… They are often too sick to leave their homes.” https://t.co/44NWhum9Ch
“As someone with multiple #chronicillness(es) I can sometimes stretch my limitations…but I will crash… This “crash” can last for days or weeks, but I never know in advance how long it will be. It means choosing to expend extra effort is a constant risk.” https://t.co/kgYBDfYdic
“I wake up in pain and I go to sleep in pain. I cannot explain the kind of toll this takes on you mentally, physically, emotionally… Unless you live in #chronicpain or with #chronicillness, you cannot possibly imagine it.” https://t.co/xu1kovHAzF #PainAwarenessMonth