The Life Raft Group

Enhancing survival & quality of life for people living with GIST & other rare diseases through research, education and empowerment, and global advocacy efforts.

[The Life Raft Group @Liferaftgroup]

GIST 101s are great for the newly diagnosed & also a good refresher for those well-versed in GIST. View this updated GIST 101 recorded at Life Fest 2024. Have any questions or did you learn something new? Comment below. https://t.co/Ilqlry6su3 #gisteducation #lifefest #gist101

[The Life Raft Group @Liferaftgroup]

There’s still time to join us at GDOL Minnesota! Connect, learn, and find support. Register now: https://t.co/2r9lCnqP6v
#GDOL #GIST #RareDisease #GISTSupport

[The Life Raft Group @Liferaftgroup]

Today is #RareCancerDay. The Life Raft Group stands for dedicated research, education, and support for every rare cancer patient.

[The Life Raft Group @Liferaftgroup]

What should patients know about #NF1 and its connection to #GIST? Join us October 14 at 12 PM for a patient-centered discussion on research, treatment considerations, and lived experience. Register: https://t.co/544dSWxuPp #GIST #NF1GIST #RareCancer #GISTResearch

[The Life Raft Group @Liferaftgroup]

Stay informed on the latest treatment & research updates, clinical trials, events, patient stories, expert webinars & other resources for those living with #GIST. Subscribe: https://t.co/D5ZcB6rNBV
#ThrivingTogether #TheMoreYouKnow #GISTEducation

[The Life Raft Group @Liferaftgroup]

What's the difference between an interventional study & an observational study? Learn more about these current #ClinicalTrials for #GIST. Questions? Contact Simran at [email protected]
#ClinicalTrialsWednesday #GISTResearch #ThrivingTogether

[The Life Raft Group @Liferaftgroup]

Triage Cancer is hosting a webinar on *September 22* about open enrollment, key deadlines, and tips for choosing the right health insurance coverage.
Register now: https://t.co/GfOglUtDgk
#TriageCancer #OpenEnrollment #HealthInsurance #CancerSupport

[The Life Raft Group @Liferaftgroup]

Learn more about GIST & how to navigate your journey at a fall #GISTDayofLearning.
#Minnesota - September: https://t.co/2r9lCnqhgX
#SanDiego - October: https://t.co/63o2z4AnSV
#GDOL #GISTEducation #FindYourCommunity

[The Life Raft Group @Liferaftgroup]

Our special Life Fest & GIST Awareness Day Newsletter is out now! Catch up on highlights, stories, community moments, and more.
Read it today: https://t.co/Jqw8irvrkY
#GISTeducation #LifeFest2026 #GAD #GISTnews

[The Life Raft Group @Liferaftgroup]

September is #DesmoidTumorAwarenessMonth. Receiving both a GIST and Desmoid Tumor diagnosis can be daunting. The Life Raft Group is here to help patients navigate both diagnoses with confidence and support.

[The Life Raft Group @Liferaftgroup]

Don’t miss your chance to join our #PokerFundraiser ! Play for a cause, support the #GISTcommunity , and make a difference. Register: https://t.co/8MWR3NZoeu
#OaklandNJEvents #DealMeIn #NJEvents

[The Life Raft Group @Liferaftgroup]

Connect with the #GISTcommunity at GDOL Minnesota September 26! Register: https://t.co/2r9lCnqhgX #GIST #GISTdayoflearning #YouAreNotAlone #Minnesota

[The Life Raft Group @Liferaftgroup]

Our August Patient of the Month, Betty, shares her #GISTory and the experiences that have shaped her journey with #GIST. Read Betty’s story: https://t.co/nCdYbYS7s7
#PatientOfTheMonth #PatientStory #ThrivingTogether #YouAreNotAlone

[The Life Raft Group @Liferaftgroup]

Let’s meet the #GISTcommunity in San Diego! 💙 Register for GIST Day of Learning: https://t.co/63o2z4AnSV
#GIST #GDOL #SanDiego

[The Life Raft Group @Liferaftgroup]

Join us in #Minnesota for a #GIST Day of Learning! Register today: https://t.co/2r9lCnqhgX #GISTAwareness #YouAreNotAlone #GISTEducation

[The Life Raft Group @Liferaftgroup]

Explore The Life Raft Group’s YouTube channel for #GIST stories, expert insights, and helpful resources. Check it out! https://t.co/HBqm04j6nF #Sarcoma #RareDisease #GISTCommunity

[Sylvester Comprehensive Cancer Center @SylvesterCancer]

Does fructose “feed” cancer? The science is more complex than the headline suggests.

Our very own @DrTracyECrane explains why “sugar feeds cancer” is an oversimplification and what emerging #research actually means for your #diet and #cancer risk. https://t.co/xPCUY0dQt6

[Maurício Ribeiro, MD @mauriciofribei1]

Much needed tweet, @Liferaftgroup !
If you live in Florida (even if you don’t) and were diagnosed with metastatic/unresectable KIT/PDGFRA-mutant GIST, @MoffittNews is recruiting pts to both KQB198 (1st line KQB198 + Imatinib vs. Imatinib) and StrateGIST-3 (2nd-line Velzatinib vs Sunitinib) trials. Schedule an appointment at Moffitt to have a conversation about these potential opportunities.

[The Life Raft Group @Liferaftgroup]

Clinical trials can open the door to new treatment options & hope. Learn more about #clinicaltrials by contacting Simran - [email protected]. #GISTeducation #GIST #ExpandedAccessProgram #PEMIGIST #KQB198

[The Life Raft Group @Liferaftgroup]

Learn about your rights when returning to work after cancer. Join #TriageCancer on August 26 at 1 PM ET for “Ready to Return” and get guidance on workplace rights, accommodations, & navigating your return. https://t.co/jhs6G46ims #CancerSupport #ReturningToWork #PatientAdvocacy

[The Life Raft Group @Liferaftgroup]

Ready to go deeper into #GIST? Join us at UC San Diego for a day of expert insights, research, treatment updates, Q&A, and connection. Register: https://t.co/63o2z4AVIt #GISTDayOfLearning #GISTAwareness #Sarcoma #RareCancer #SanDiego