Feb 28 was just a typical day for my family, until last year.
Now, we celebrate Rare Disease Day by spreading knowledge ❤️🩹
Jordan’s Syndrome is very rare, making each individual truly one in a million.
Venmo: https://t.co/tJYWDUv74d
PayPal: https://t.co/p8UfIvFWei
What a weekend! A LOT to learn, process and apply. A huge THANK YOU to all involved at every level. Carole Bakhos, Christina Janes, Larry Farris, Kayla Saavedra, Brittany Cardoza, Dr Wendy Chung & the research team, Joe & Cynthia Lang.
#theskyisthelimit#jganyc2022 🌎