Lipodystrophy UK

Lipodystrophy UK is here to support people affected by lipodystrophy and raise awareness, while working towards better patient well-being

[Lipodystrophy UK @LipodystrophyUk]

Kicking off #ECLip2025 in Paris! #Lipodystrophy #RareDisease #Research #PatientAdvocacy

[Lipodystrophy UK @LipodystrophyUk]

Ready to #RepresentPatients at #ECLip2025 in Paris. #Lipodystrophy #RareDisease #RaisingAwareness #PatientVoice #LipoSistersOnTour

[UoA Medicine, Medical Sciences and Nutrition @AbdnLifeScience]

March 31st was #WorldLipodystrophyDay but @rowett_abdn learn more about Lipodystrophy every day.

Photographed are just some of the scientists who are researching treatments for this rare and debilitating condition with support from @diabetesUK @lipodystrophyUK @theBHF and more!

[Lipodystrophy UK @LipodystrophyUk]

Today is #WorldLipodystrophyDay2025. #Lipodystrophy encompases a group of rare conditions characterised by a loss of #AdiposeTissue, causing severe #MetabolicComplications. You can find out more at https://t.co/dKLtqaoJBE
#TreatmentEquity #PatientVoice #StrongerTogether #WLD2025

[Lipodystrophy UK @LipodystrophyUk]

Kicking off our Lipodystrophy Patient Day 2025!

[Lipodystrophy UK @LipodystrophyUk]

All ready for our Lipodystrophy Patient Day 2025! We have a packed agenda tomorrow - Can’t wait. #Lipodystrophy #PatientSupport #RaisingAwareness #StrongerTogether #LipoSisters

[Lipodystrophy UK @LipodystrophyUk]

I celebrated #RareDiseaseDay2025 in #ZebraStyle! Some wonderful colleagues joined me in bringing some joy& #Awareness to the office. We had great fun prancing about & entertaining the team! More importantly, we're helping #RaiseAwareness of #RareDisease, including #Lipodystrophy.

[Lipodystrophy UK @LipodystrophyUk]

#ShowYourStripes #Care4Rare #Lipodystrophy #StrongerTogether #RareDiseaseDay #RaisingAwareness #PatientVoice

[Rare Disease Day @rarediseaseday]

💜🌍 Today is Rare Disease Day! 🌍💜

Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! ⚖️

Learn more: https://t.co/AUKfGZJLJB

[National Organization for Rare Disorders (NORD) @RareDiseases]

One week until #RareDiseaseDay! 🦓 On Feb. 28, we unite for the 300 MILLION people worldwide living with a #RareDisease. 💙💜💚

This is your moment to step up: #ShowYourStripes, share your story, and take action with NORD! Check out our social media toolkit and other resources here: https://t.co/mIlLU4yqCW

[Lipodystrophy UK @LipodystrophyUk]

Ready to represent, here at the “Connecting the Dots” first Oxford Rare Disease Student Conference 2025. #RaisingAwareness with the next generation of Clinicians and Researchers at @magdalenoxford #PatientVoice #RareDisease #Lipodystrophy

[Lipodystrophy UK @LipodystrophyUk]

And that’s a wrap! Heading home. Fantastic meeting with some real progress made. Watch this space… #Lipodystrophy #RareDisease #PatientAdvocacy #PatientVoice

[Lipodystrophy UK @LipodystrophyUk]

Ready for day 2! #Lipodystrophy #GlobalLeadersForum #PatientVoice #RareDisease #PatientAdvocacy #LipoSistersOnTour

[Lipodystrophy UK @LipodystrophyUk]

Kick off day one of the Global Lipodystrophy Leaders Forum #StrongerTogether #PatientVoice #GlobalAlliance #patientadvocacy

[Lipodystrophy UK @LipodystrophyUk]

Ready to represent! Flying towards the next Lipodystrophy Global Leaders Meeting where we’ll be discussing all things #Lipodystrophy and how we can make the biggest impact for #patients. #PatientAdvocacy #PatientVoice #GlobalAlliance #StrongerTogether #LipoSistersOnTour

[Rebecca Sanders 💙 🇺🇦 @Becky_Sanders_]

Just nominated my favourite charity 💜😉
There is the option to nominate ⁦⁦⁦@LipodystrophyUk⁩, then other charities too if you have lots of favourites! Took me a few seconds 🤗 Please support us and share 😊
https://t.co/PDjM3OyNfk

[Lipodystrophy UK @LipodystrophyUk]

Just nominated my favourite charity 💜😉
There is the option to nominate ⁦⁦⁦@LipodystrophyUk⁩, then other charities too if you have lots of favourites! Took me a few seconds 🤗 Please support us and share 😊
https://t.co/1RyVApFV0L

[Diabetes UK @DiabetesUK]

Researchers have developed a ‘smart’ insulin (NNC2215) that switches on & off based on blood sugar levels, effectively lowering glucose without causing hypos. Created by an international research team, it uses a unique ‘switch’ mechanism to respond to changing glucose levels.

[Lipodystrophy UK @LipodystrophyUk]

Working together towards a better future for patients! #lipodystrophy #research #diabetes #science

[Rowett Institute @rowett_abdn]

Promising advances towards treating people with #lipodystrophy and #diabetes in this new paper from Dr George McIlroy's lab - the first as lead author by Mansi Tiwari. Thanks to @DiabetesUK for funding this very important #research.
Details here: https://t.co/9RODHitoRM

[Prof Nisreen Alwan 🌻 @Dr2NisreenAlwan]

1/ As a professor from a severely under-represented intersectional background I sometimes get asked by mentees & peers how I deal with people’s & system bias adversely impacting me personally. So what works for me might not work for other but here goes:
🧵
#AcademicTwitter