Life with a Livewire

A blog about parenting a child with epilepsy and additional needs #epilepsy #ketogenicdiet #additionalneeds #send #sendblogger

[Life with a Livewire @livewire_life]

This piece is brilliant. So very relatable and written in a way that I can only aspire to. I loved the humour in it too. It’s how we get through. Thank you for this, Archie

[Archie Bland @archiebland]

I wrote for the Guardian’s Saturday magazine about my son Max, who changed how I see the world. Took ages. More jokes after the first bit.

Thanks @meropemills for being the most patient and generous editor.

https://t.co/jabxDujTiV

[Life with a Livewire @livewire_life]

@TheShowstoppers Ends with Peat being alive after all

[Life with a Livewire @livewire_life]

@TheShowstoppers musicals: Cats / Matilda. Ends with a cat and weasel rescue centre being built

[Life with a Livewire @livewire_life]

@RachelAdamSmith @CarersLeeds This is awful. We have been in similar position, nurse looked taken aback when I explained my husband needed a bed, said she’d ‘see what she could do’. A camp bed was produced but had to push for it. Last thing we needed when our child was having seizure after seizure.

[Life with a Livewire @livewire_life]

@meropemills @HelenRumbelow Thank you Merope, for your work in this area. My child has complex needs and severe epilepsy. We have been in serious situations where we desperately wanted a second opinion but had no clear route to ask. This can make a huge difference for families like ours. Thank you, Sharon

[Life with a Livewire @livewire_life]

@richjamesuk @theipaper Hi Rich, I loved your piece. I am a parent of a daughter with a rare gene too. She's now 10. Life is full on but wonderful. In my experience the pain is real but the joy intense and powerful. We have learnt so much. Best wishes to you and your family.

[Life with a Livewire @livewire_life]

I am still blogging away but my posts have not been auto shared for some time. So here's a link with lots of new posts. https://t.co/YW04WwxQbk

[Life with a Livewire @livewire_life]

@HuaweiMobileUK
I can't get a response from live chat, phone or email. My Freebuds have broken and the repair form is saying repair centre not found so I cant send them in. Please help.

[Life with a Livewire @livewire_life]

@TieredOT @SaskiaGrassie A very interesting question!

[Life with a Livewire @livewire_life]

Mum https://t.co/tXdKqrj6xj

[Life with a Livewire @livewire_life]

Strikes https://t.co/L2ORmEt338

[Life with a Livewire @livewire_life]

Latest blog. It's been a particularly tough week. #epilepsyawarenessmonth https://t.co/tjIvxFmEoE

[Life with a Livewire @livewire_life]

@FoxwellFilms

[Dylan Kosaski @Dylan_Kosaski]

Three of the hardest things to say:

1. I was wrong
2. I need help
3. Levetiracetam

[Helen Dallimore @dallimorehelen1]

A brief summary of Johnson’s legacy. His impact and destruction will be long lasting and deeply felt. Truss and Sunak supported him and many of the people and systems that enabled all this are still there. The country needs change, a bold new government and a fresh start #Labour

[Epilepsy Society @epilepsysociety]

Are you one of the missing voices? We want to hear the views of the entire #epilepsy community, from every walk of life, to ensure the UK Epilepsy PSP is truly respresentative!

Make sure your voice is heard and have your say here 👉 https://t.co/m7r3pbopk1

#UKepilepsyPSP

[LDEngland @LearningDisEng]

Do you have #epilepsy? Do you support someone who does?

@EpilepsyRUK survey to ask you what their top 10 priorities should be

Take part: https://t.co/D3ZqAE7Sdj

Closes 1 Sept 2022

[Life with a Livewire @livewire_life]

Holidays with a Livewire https://t.co/JiWyVQ4zTv

[Life with a Livewire @livewire_life]

@stephen_collins @dallimorehelen1 @swimmaf

[Life with a Livewire @livewire_life]

Now here's what I'd write if I were a better writer...

[Life with a Livewire @livewire_life]

@EvaWiseman Wow. Beautiful. This resonates strongly.