📢 We have received the positive news today that the National Institute for Health and Care Excellence (NICE) have agreed to review parts of their guideline on #endometriosis.
#thread 👇
Just listening to people who are going cold and hungry on the radio and it heartbreaking. How can a country where people routinely go hungry and go to bed cold talk about being the best at anything. We need a change.
The family of the late Sir David Amess MP has asked the public to donate to a group of five charities, including Endometriosis UK, ahead of his funeral next week. We are very grateful to be included and will never forget Sir David's support for this cause. https://t.co/FDlvC5VisO
Thanks to the 20 MPs who attended todays UK parliament debate on #endometriosis & #PCOS#research. Pleased that MPs recognised lack of research into both conditions & need for improvements; now time for concrete action! #PCOSandEndoDebate#EndoPCOSDebate
Your voice will be heard – on Monday, after 100,000 signatures on a petition and more than 6,000 letters sent to MPs, funding for #research into #endometriosis and #PCOS will be debated in parliament.
Thanks to everyone who made this happen https://t.co/YDp7E0DTly @veritypcos
@Kazgall66 @tomgabion @EndometriosisUK Sorry Karen, trans men (who were born the female sex and have transitioned) can still have a uterus. Therefore, "people with a uterus" is so much easier and has no negative impact on endo treatment/research. Let's not exclude trans men who still have a uterus, thats unhelpful
All streams of this new take on a classic raises money for @EndometriosisUK who provide support, advocacy, advice & more to people suffering from Endometriosis - a chronic condition that currently takes ~8yrs to diagnose & has no treatment plan...#endometriosis#Christmas2020
@Kazgall66 @tomgabion @EndometriosisUK I only share these as I was diagnosed after 8 years and so know the fight for both diagnosis and treatment (currently going through that fight again) Is tough, so when I learned how much it tougher it was for trans/non binary people I thought - best educucate myself to help them!
@Kazgall66 @tomgabion @EndometriosisUK https://t.co/7LmAUEJrvW
https://t.co/LTrzx8AwuM
And obviously a lot less common if you've never had a uterus before but there have even been cases in men who aren't trans(which inwas amazed to find out!) - https://t.co/lqlWnhWDzh
Exactly this, I currently battling to get my #endometriosis specialist appointment rescheduled after 2 COVID related cancellations...nobody telling me when I can expect that or how long I may need to wait.
Emma Cox from @EndometriosisUK states that "There needs to be clear communication with patients so people know when they can can expect care to resume as well as when they can expect telephone consultations"