Aetna recognizes PANS and PANDAS in its medical policy and supports IVIG treatment as medically necessary when established clinical and diagnostic criteria are met. https://t.co/AcdwZb2MNh
🚨 Bartonella (aka cat scratch disease) is one of the most
prevalent & misrepresented infections you need to know about.
MDs are largely unaware (therefore, fail to test or treat for it) that it drives huge #’s of autoimmune, PANS, neuro, psych, vascular issues. It also reactivates in face of COVID!
Can be spread via many bugs & animals—-even by dog/cat saliva! (Likely human saliva, too 🤐)
Clips from my interview w world’s leading expert, @NCState’s Dr. Ed Breitschwerdt 🧵
Here, he reveals that the @CDCgov website is NOT following the science on Bartonella…& so MDs & patients are being misinformed.
New paper highlights how the Children’s Postinfectious Autoimmune Encephalopathy (CPAE) Center of Excellence model emphasizes integrated treatment of immune & behavioral drivers in PANS/PANDAS. This interdisciplinary approach can improve patient outcomes. https://t.co/bbfctozEtk
Many diseases were once called “psychological” or “all in the mind”.
Again and again, biology later proved otherwise.
This thread shows clear cases where medicine got it wrong, then changed its mind once real mechanisms were found.
Clinicians sometimes ask: “Is vagus‑nerve stimulation just another wellness fad?” My answer: we mapped the inflammatory reflex from brain stem to synapse and validated its effects in controlled trials, a standard not met for fads.
Trent of the National PANDAS/PANS Youth Alliance shares what PANS and PANDAS took from his childhood and why youth voices, lived experience, and hope must lead the future.
#PANS#PANDAS#YouthVoices#LivedExperience
🚨 Hot off the press: my new paper that moves this field forward 🚀 and changes the narrative on what #POTS, #MECFS and #LongCOVID are... Neuroimmune Disorders!
🧠 The brain and the autonomic nervous system are involved in the immune system regulation.
🧠 There is evidence of autoimmunity, immune dysregulation, cerebral hypoperfusion, neuroinflammation and other mechanisms in all three disorders.
🧠 #Neuroimmunology is a field that should embrace these disorders: #MultipleSclerosis, the staple of neuroimmunology, used to be called hysterical paralysis before CT and MRI were invented. We're at the same crossroads with these disorders.
❌ These disorders are not "mysterious", "anxiety", "deconditioning," "functional neurologic" etc. etc.
‼️ Classifying these disorders as neuroimmune and including them as part of neuroimmunology training is critical.
🛌 #PatientCare and lives of millions of people living with these disabling conditions are at stake!
Thanks to my esteemed colleagues and co-authors, Dr. @TaylorDoherty8, immunologist from UC San Diego and Dr. Lawrence Steinman, neuroimmunologist from @StanfordMed, for their support!
Read open-access paper here: 👇
https://t.co/wr7kMNKj3c
Children’s health research involving genetics is vital, which is why it’s central to #DCYPHR. Many conditions begin in childhood, yet most research focuses on adults. If you have a child aged 0–15, you can help shape future health by joining today: https://t.co/ALpqzOM7LP
@MassDPH Seems like a great opportunity to lead by example and perform PANS/PANDAS screening consistent with the current bill we are trying to pass. Would be happy to discuss implementing this quick common sense measure! https://t.co/ZfJeMCTuFI
Because looking deeper changes everything.
Kirk Lord’s words remind us why families, advocates, and providers keep fighting for answers. 🧡
📖 Read the newest blog on https://t.co/gLL7DkXhRA
#HopeForPANS#LookFoundation
🌟Now Open!🌟
The Look. Foundation Healing Grant is accepting applications through December 4th to support children and young adults (up to age 28) affected by PANS/PANDAS.
Learn more and apply at : https://t.co/ljBHdfBiSu
🎂 Make your birthday bigger. Start a Look. It’s My Birthday fundraiser & ask for donations instead of gifts to support kids with PANS/PANDAS. 🧡
✅ Easy setup ✅ Tax-deductible ✅ Funds hope & healing
🎉 Start here: https://t.co/oKQlnq0ApA #LookItsMyBirthday#GiveHope
@jtimberlake reveals Lyme disease diagnosis https://t.co/jyxE8nXwv4 via @GMA
"If you've experienced this disease or know someone who has -- then you're aware: living with this can be relentlessly debilitating, both mentally and physically," Timberlake wrote
Keep Sharing.🧡
🎙 Lyme Legend Dr. Joe Burrascano, MD
In this must-see interview with @thedanaparish on the Ticktective Podcast, Dr. B shares critical truths about diagnosing & treating Lyme, especially when early treatment fails.
📺 Watch now: https://t.co/1sGnFfKWiB
🔁 RT to spread awareness.
We’ve got a story to tell, actually, lots of them. 🧡
Our blog, Look. forward, is officially live and filled with stories from the people who make this community what it is.
Send it to someone who needs hope today.
📝At https://t.co/pPbUQtilWr
🧡 Sponsor the Look. Walk 🧡 Support kids fighting PANS/PANDAS by backing a cause that brings real change. Oct 4, 2025 | Boston Common + remote Details:
✍️ https://t.co/7qOuEWui3I 📩 [email protected]#LookWalk2025#SponsorWithImpact
From Boston to Baton Rouge—lead a team for the Look. Walk! 🏃♀️
On Oct 4, step up as a Team Captain for kids fighting PANS/PANDAS.
✅ Volunteer hours
✅ Leadership cred
✅ Look. swag + promo tools
🧡 Walk loud. Walk proud. #LookWalk2025 👉 https://t.co/gLL7DkXhRA