LoveFest Philly

Promoting cool philanthropy stuff in the Philly area, especially groups that support CHOP.

[Dragon Master Initiative @beadragonmaster]

The matching grant expires on #Halloween2021! We are at 74% of goal to help kids with cancer. Please donate today! https://t.co/70XncUbpRM

[Amanda Haddock 🧬 @AmandaHaddock]

We have one day left to get to the $5,000 match. We are currently at $3,955. Can you help us break past $4,000? It’s all to help kids with #braincancer. #dipg #braintumor #ChildhoodCancer https://t.co/FMuVQRLu94

[The White House 46 Archived @WhiteHouse46]

Big news from the CDC: If you’re fully vaccinated, you do not need to wear a mask – indoors or outdoors, in most settings.

We’ve gotten this far. Whether you choose to get vaccinated or wear a mask, please protect yourself until we get to the finish line.

[Amanda Haddock 🧬 @AmandaHaddock]

It’s #RandomActsOfKindness Day! Please retweet to help brain cancer warrior Emily Hood fulfill a dream of meeting any of the @Avengers #helpEmilyMeetAvengers

[Dragon Master Initiative @beadragonmaster]

#WandaVision is trending! If that’s your show, please read this thread and #HelpEmilyMeetAvengers she is only 19 and has #dipg brain #cancer #WandaMaximoff

[Amanda Haddock 🧬 @AmandaHaddock]

This is Emily. She just turned 19 a couple of days ago and is battling a deadly brain cancer called DIPG. She is a badass - kind of has a #NickFury vibe, doesn’t she? @SamuelLJackson #HelpEmilyMeetAvengers 1/

[Jeff Stevens, Black Lives Matter @speedingticket4]

@VitanzaNick @seattlechildren @fredhutch These laboratory models are so important for discovery. What a delightful representation of everyone's dedicated efforts to fight DIPG.🙏🏼🙌

[Nick Vitanza @VitanzaNick]

Our @seattlechildren and @fredhutch team has developed biopsy-derived treatment-naive #DIPG models that we share, but to help other labs make their own models, we OA published a methods approach from biopsy to model development to genomic characterization
https://t.co/WrfUjpBly1

[swiss army woman @gayforbrains]

“yes i did” took me out

[LoveFest Philly @LovefestPhilly]

@raubrey Aw, so honest!♥️

[Mateusz Koptyra @koptyram]

First large scale proteogenomics study on pediatric brain tumors. Extraordinary collaboration effort, thanks to CPTAC, CBTN, MountSinai, FredHutch, Children’s National and CHOP teams #glioblastoma, #CCDI, #BrainTumors, #childhoodcancer so happy to be a part of this

[Dr. Anthony Letai @NCIDirector]

@theNCI's #CPTAC collaborated w/ @CBTNetwork for the first large-scale, multi-center #proteogenomics study on pediatric brain tumors, revealing new insights across 7 distinct tumor types. #ChildhoodCancer #Data4ChildhoodCancer #BrainCancer #Glioblastoma https://t.co/FsSZP0gJyK

[Jena Lilly @jvlilly]

A new paper from CBTN Collaboration with CPTAC. Thank you to all the families that participate and mandate the acceleration of research through shared resources for improved treatments today.

[Amanda Haddock 🧬 @AmandaHaddock]

Part of improving #PatientExperience is being willing to meet them where they are. For some, face to face is best, but others would rather have something written, & even that will vary from formal communication to text. All hinges on circumstances, but speediest is usually best.

[Anna Middleton @Genomethics]

This is a fabulously down to earth course that is genuinely helpful for learning about variant interpretation

[LoveFest Philly @LovefestPhilly]

Proud of the work being done in Philly to support #datasharing

[National Cancer Institute @theNCI]

The Childhood Cancer Data Initiative is building a community centered around childhood cancer care and research data, as advocates and researchers explain: https://t.co/0T2OowIbo7 @AmandaHaddock

[Amanda Haddock 🧬 @AmandaHaddock]

Help us get the $1,000 match so we can keep funding research and expanded access for care for brain cancer patients - https://t.co/fIYPYBoOBE

[Brian Wallach @bsw5020]

Tonight I can’t be positive. A 25 year old fighting ALS passed away. Her name was Jaci. Her family had already lost her twin, Alex, to ALS.

She was a warrior. Let’s build an army to finish her fight. Follow me and I’ll follow you. Together we will make her legacy ending ALS.

[Amanda Haddock 🧬 @AmandaHaddock]

PSA: if you’re a medical care provider, please, PLEASE, don’t assume that families know what #hospice care means. Even if they have a vague idea, they most likely haven’t had first had experience and may not know it will mean stopping treatment or other critical things like that.