Lucy Shepherd

Research Fellow in Evidence Synthesis at the University of York

NIHR Doctoral Fellow investigating the value of surveillance imaging for CYP with brain tumours

[Lucy Shepherd @lucy_shepherd29]

@drjessmorgan @ConnorJEvans

[Lucy Shepherd @lucy_shepherd29]

We've started a new research project at @crd_york, looking at early phase trials of treatments for children/young people with relapsed and refractory #neuroblastoma, funded by @cclguk! We're looking for parents to help us with the research. Drop me an email/DM for more info ✉️!

[Bob Phillips @drbobphillips]

If you or someone you know fancies working with us at the @CandlelightersT Supportive Care Research Centre at @UniOfYork @HullYorkMed a PhD looking at wellbeing interventions for families of children with cancer - chat with me! (Please share widely)
https://t.co/moLozdEH2O

[The SCAN-ME Study @SCAN_ME_Study]

We have launched a video to explain what we’re doing in the SCAN-ME project 📽️The SCAN-ME study is looking at follow-up scans for children and young people with #medulloblastoma and #ependymoma. Take a look below 👇

https://t.co/WEfsMReLxh

#childhoodcancer #braintumourresearch

[Lucy Shepherd @lucy_shepherd29]

I've learnt so much already from parents of children who have had follow-up scans for #medulloblastoma and #ependymoma.

The study, based at the University of York, is still recruiting and we'd love to hear about your thoughts, feelings and experiences!

[The SCAN-ME Study @SCAN_ME_Study]

Have you ever experienced #scanxiety?

We’d love to hear about about your experiences of follow-up scans after finishing treatment for #medulloblastoma and #ependymoma 🗣️

For more information, drop me a DM, or send me an email on [email protected] 📨

#childhoodcancer

[REFoRMS Project @REFoRMS_Rhabdo]

📢 The 1st spin-off project from the baseline review has been published!

The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇

https://t.co/sehUxDN20G

[REFoRMS Project @REFoRMS_Rhabdo]

We have some fantastic news just before Christmas!

The original systematic review as part of the REFoRMS project has just been published in the International Journal of Cancer!

This is a massive achievement for the team. Well done everyone involved! 😃

https://t.co/vZ5ISwaFQJ

[Lucy Shepherd @lucy_shepherd29]

The interview study that I'm doing for my PhD is open for recruitment!

I'm really excited to learn about the experiences of parents of children who've had follow-up care for medulloblastoma or ependymoma.

Please contact me for more info if you're interested in taking part🙂

[The SCAN-ME Study @SCAN_ME_Study]

We are happy to say that the SCAN-ME interview study is OPEN for recruitment! If you are a parent/guardian of a child who has had follow-up scans for #medulloblastoma or #ependymoma, we would love to speak to you about your experiences.

Find more info about the study below👇

[Lucy Shepherd @lucy_shepherd29]

@ASinglespeeder Sent you a DM!

[Lucy Shepherd @lucy_shepherd29]

WE NEED YOUR HELP!

In the New Year, I’ll be starting a PhD with help from @drbobphillips other members of the University of York, looking at follow-up scans for children with medulloblastoma and ependymoma (1/3)

[Lucy Shepherd @lucy_shepherd29]

If you, or your child, have experience of having follow-up scans after finishing treatment for medulloblastoma or ependymoma, and want to be a part of our patient/parent group, we would love to hear from you! Just drop me a DM, if you want to help out, or have any questions (3/3)

[Lucy Shepherd @lucy_shepherd29]

We want the research that we do to be meaningful to those who it will impact, so we are looking for families with experience of follow-up scans for medulloblastoma or ependymoma to help shape the research we will be doing (2/3)

[REFoRMS Project @REFoRMS_Rhabdo]

We are happy to say that we are now OPEN for recruitment for the interview study for the REFoRMS project!

We want to hear from parents/guardians & children/young people about how they make treatment decisions for relapsed/refractory #rhabdomyosarcoma

Further info below 👇

[REFoRMS Project @REFoRMS_Rhabdo]

What a way to end the week...

We have finished title & abstract screening for the first stage of our #SystematicReview 😀

We have narrowed down almost 17,000 possible abstracts to just 600 papers to be looked at in the next stage of screening!

#AcademicTwitter

[REFoRMS Project @REFoRMS_Rhabdo]

Hello👋and welcome to the REFoRMS project twitter page!

An academic project focused on RElapsed and REFractory RhabdoMyoSarcoma in children and young people - known simply to us as 'REFoRMS'.

The following thread describes our project and what we set out to achieve. 🧵
(1/11)

[Connor Evans @ConnorJEvans]

Great to see that our systematic review evaluating early phase interventions for relapsed & refractory rhabdomyosarcoma as part of the 'REFoRMS' project is now registered on PROSPERO!
https://t.co/8Q124tOjyh

@drbobphillips @drjessmorgan @drgemmabryan @LucyBeresford7 @crd_york