LucyTweeting

Faffer extraordinaire. Write things now and then. Possibly eating potatoes.

[Cure EB @CureEBorg]

Here's Sohana's moving story on @5_News: the daily pain of #EB and the need for research funds #EBtonguetwister http://t.co/uSKuPRuHdK

[LucyTweeting @LucyTweeting]

Benedict Cumberbatch #EBtonguetwister with Sienna Miller http://t.co/0hEr7hKJyk for the @SohanaResearchF.

[LucyTweeting @LucyTweeting]

@JoannaMoorhead thank you SO much for writing about EB. I have EB and the work of @SohanaResearchF makes me more hopeful than ever.

[LucyTweeting @LucyTweeting]

This is why I support @SohanaResearchF. Please read x
RT @guardian: My fight to save my daughter’s skin http://t.co/XMu29MsqGx

[The Guardian @guardian]

My fight to save my daughter’s skin http://t.co/Hl3sdXGWVG

[LucyTweeting @LucyTweeting]

@BigPawedBear I've paid bills to 95degrees every month for over two years. Not sure what's happened or how they have my details.

[LucyTweeting @LucyTweeting]

.@First_UtilityCS are scum. Never signed up to them or had any utility from them, but they say I have to owe £855 within seven days.

[LucyTweeting @LucyTweeting]

@laura128bb lol not so much recently. My tweet count is low compared to some..!

[LucyTweeting @LucyTweeting]

@SohanaResearchF LOVE the new logo!

[LucyTweeting @LucyTweeting]

TV show name Dapper Laughs = restaurant name Scoff and Bant--(nope can't even finish it). Both make me want to scratch my brain.

[LucyTweeting @LucyTweeting]

The Daily Mail must hate me. I have (foreign) carers making my sandwiches.

[LucyTweeting @LucyTweeting]

@indigojo_uk ooh really? Thanks for letting me know! Hope you're well?

[Cure EB @CureEBorg]

EB awareness week 25-31 October
It is time for change, time to heal the wounds - for good

[King's Cross, N1C @kingscrossN1C]

Only a month to go!!! @Dishoom OPENING NOVEMBER IN KING'S CROSS http://t.co/DSlVAAYusV

[LucyTweeting @LucyTweeting]

What fun! Oh wait...

[LucyTweeting @LucyTweeting]

@Milo_Rossi :'(

[LucyTweeting @LucyTweeting]

@sparklehooves I’m figuring out how to steal PUDSEY. My phone auto-corrected that but I ain’t changing.

[LucyTweeting @LucyTweeting]

At #BGCCharityDay representing the Sohana Research Fund @SohanaResearchF. Met @jonsnowC4 who supports I CAN.

[LucyTweeting @LucyTweeting]

At #BGCCharityDay with Sohana and Damian Lewis @lewis_damian representing the Sohana Research Fund @SohanaResearchF.

[LucyTweeting @LucyTweeting]

At the #BGCCharityDay with the Sohana Research Fund @SohanaResearchF. Here’s Amanda Holden with Mason: