sulla luna

profile picture by ilya kuvshinov

[sulla luna @luna_sulla]

@doktoradler Dann vielleicht etwas deutlicher ausdrücken. :D Dein Tweet klang halt so, als würde er sich auf den Artikel beziehen und diesen folglich falsch darstellen.

[sulla luna @luna_sulla]

@BritishTinnitus @SMagazineUK While I appreciate the article for raising awareness, I’m worried it also undermines how debilitating severe tinnitus and hyperacusis can be. They absolutely can ruin lives. They absolutely can leave people homebound, unable to work, to travel or to have children.

[sulla luna @luna_sulla]

@jenbrea *and the perception of loud noises. #tinnitus is often overlooked as a benign symptom but can be debilitating in severe cases, especially in combination with #hyperacusis.

[sulla luna @luna_sulla]

@lindalinked To me it seems like the surgery is treating the symptoms but not the cause. If painful hyperacusis is due to type II cochlear afferents this will not fix the original cause. However, I’m nonetheless glad surgeries for #hyperacusis are being more discussed.

[sulla luna @luna_sulla]

And I never cry during panic attacks, not because I’m better or strong or anything but just because I’m frozen during those moments, completely focused on not fainting and breathing regularly that I couldn’t even cry if I wanted to

[sulla luna @luna_sulla]

@JaclynGlenn Happen out of nowhere for me, always feels like I’m going to faint, can’t breathe (can’t feel the air go in and out), tunnel vision, need to lay down immediately, usually last up to an hour, pulse goes through the roof, convinced I’m going to have a heart attack

[sulla luna @luna_sulla]

@hatttiegladwell Severe chronic tinnitus, severe hyperacusis, plus chronic pain, have been mostly homebound for a year now - doctors have given up on me, they say tinnitus can’t be that loud, must be anxiety, should reduce if I’m not stressed - tinnitus is not a mental health issue

[sulla luna @luna_sulla]

@BritishTinnitus In one sentence: Tinnitus robbed me of the life I could have had. I had to drop out of college and am unable to work. No children, no traveling, no going out. Highly reactive tinnitus is disabling and even other sufferers seem to think I’m making it up.

[sulla luna @luna_sulla]

@Marie_Indigo This!!

[sulla luna @luna_sulla]

@ovi_fisk I’m not in a wheelchair but I’m nonetheless homebound due to my chronic conditions. And you don’t have to be in a wheelchair to be able to call yourself disabled.

[sulla luna @luna_sulla]

@_dsutherland_ One problem with this is that a) many people with chronic illness are not taken seriously and b) people love to turn it into ‘if you think you’re healthy you will be healthy’ and fail to understand that chronic conditions are, in fact, chronic. It’s not that simple.

[sulla luna @luna_sulla]

@PaddyBriggs Really hope we’ll get a real treatment in the future, my life’s on hold with this condition.

[sulla luna @luna_sulla]

@bbydvas This is especially horrible for people with #tinnitus and #hyperacusis and could actually cause further damage to them! Their hyperacusis could relapse or their tinnitus could temporarily or in rare cases even permanently increase!!

[sulla luna @luna_sulla]

@_yupls i remember using this one: https://t.co/9mnfBsZUcs i would simply type things such as ‘personality traits list’ or ‘hobbies list’ into google 😄 hope it helps!

[sulla luna @luna_sulla]

@lindalinked This looks great, thanks so much for all the hard work you’re doing!!

[sulla luna @luna_sulla]

@Iancevld i feel like it was so obvious they were going to do that, gaybaiting the whole time with keith & lance but never having the guts nor the intention to follow through with it so let’s make a side character gay for a minute to get representation points

[sulla luna @luna_sulla]

@Imani_Barbarin 4. And if you’re not functioning well (enough) and aren’t inspiration porn you’re just not trying hard enough

[sulla luna @luna_sulla]

@marcaeonbradley Wasn’t disagreeing with that at all! Just said that diet doesn’t always have an impact on tinnitus but it’s always worth trying. In my case nothing helps unfortunately and my tinnitus continues to get worse, I’ve tried everything.