Lupus UK

The national charity for #lupus.

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[RAIRDA @RAIRDA_org]

Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients 👉https://t.co/gxbLDWbRiN

[Lupus UK @LUPUSUK]

Nominate LUPUS UK (Charity No 1200671) for a chance to win £1,000 in the #MovementforGoodAwards
The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: https://t.co/znQHr9BdTk🔗

As a small charity, this grant will make a huge difference💜

[Lupus UK @LUPUSUK]

Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!!

For more information and to sign up, visit: https://t.co/Vzep0XzSaZ

#Lupus #SLE #VirtualDogWalk #Fundraising

[Lupus UK @LUPUSUK]

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study.
Your participation will help in developing suitable support for SLE patients in the UK.

Take part here: https://t.co/QS1KkK6isD

[Lupus UK @LUPUSUK]

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study.
Your survey response will help develop appropriate support for SLE patients in the UK.

Take part here: https://t.co/QS1KkK6isD

[EATC for Children @EATC4Children]

Amongst friends for lunch and an information sharing discussion today, thanks so much to @LUPUSUK for braving this chilly weather to join us in the #instituteinthepark #alderhey

We hope you enjoyed it!
#bettertogether #partnership #lupus #childhoodillness #lunch #eatc4children

[Lupus UK @LUPUSUK]

The National Office is now closed for the holidays and will re open on 02/01/25.
THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus 💜

[Lupus UK @LUPUSUK]

@JunePar15419961 If you are interested in taking part, please feel free to do so. If you have any questions, you can contact the researcher Bea on [email protected] (this is not research Lupus UK is running). Best wishes, Debbie (3/3)

[Lupus UK @LUPUSUK]

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study.
Your participation will help in developing suitable support for SLE patients in the UK.

Take part here: https://t.co/QS1KkK6isD

[Lupus UK @LUPUSUK]

@JunePar15419961 That's why they're now specifically advertising it to men (other post) & people from an ethnic minority (this post) to try to find more participants from those groups. (2/3)

[Lupus UK @LUPUSUK]

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study.
Your survey response will help develop appropriate support for SLE patients in the UK.

Take part here: https://t.co/QS1KkK6isD

[Lupus UK @LUPUSUK]

Join over 9,000 people who have already spared 60 secs to take @WeAreSRUK's online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions. https://t.co/bA0nBDsxro

[Lupus UK @LUPUSUK]

Spare 60 seconds to take @WeAreSRUK's online Raynaud's symptom test.

See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma. https://t.co/bA0nBDt5gW

[Lupus UK @LUPUSUK]

What does good care & treatment for rare disease mean to you?
The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease.
Complete the survey on their site: https://t.co/06XbJe5P2G
Or read our FAQs: https://t.co/dlfRhCOjAf

[Lupus UK @LUPUSUK]

What is CAR-T cell therapy and what does it mean for people with lupus?
You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post: https://t.co/dQKTHGC6bA

[Dalila @dalilatm]

🤩 Since our 1st meeting in 2019, time has flown by! Fast forward to today’s meeting with 2️⃣ wonderful guest speakers helping us understand roles & holistic care in #lupus @mel_chieza 🙌 Thanks everyone who has joined us on this journey & shared the many faces of lupus! #Cardiff

[Lupus UK @LUPUSUK]

It’s #BoneAndJointWeek and we’re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety & depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints

[Lupus UK @LUPUSUK]

@InfoAffair Thank you for your support!! 🤗

[Lupus UK @LUPUSUK]

@Redtigger101 Thank you for your support! 💜