Lymphedema Diary

Squeaky wheel. Stubborn optimist. Believer in the underdog.

[Lymphedema Diary @lymphedemadiary]

Just watched the @LymphedemaAct Congressional Briefing. TY @janschakowsky & @RepBuddyCarter for championing & to my Sens @SteveDaines &
@SenatorTester for cosponsoring this bill. @RepRosendale please help us correct Medicare's penny-wise, pound-foolish policy. @Born2lbFat

[Dr Garry Cooper @Nurse_Everafter]

I am still recruiting for men diagnosed with lymphoedema to take in a research study! Please share my poster below and I am always happy to talk at events! 😀 @lymphsupport @BritishLymph @Lymphtraining @LymphIreland

[Lymphedema Diary @lymphedemadiary]

This simple strategy has helped to slow the progression of my #lymphedema for more than two decades. Read about it here: https://t.co/3nex0kziIP

[Lymphedema Diary @lymphedemadiary]

@TheLymphieLife @lymphnet So sorry to hear this happened to you. Thanks for sharing!

[Lymphedema Diary @lymphedemadiary]

It's not every day my feet make the newspaper! Thx @washingtonpost for highlighting the critical need for compression garment insurance coverage. Pass the @LymphedemaAct now! @SenatorCantwell @SenToddYoung @janschakowsky @repblumenauer @RepBuddyCarter @MikeKellyPA #raredisease

[the Lymphie Life @TheLymphieLife]

“Right now there is a patch quilt across the country to navigate to get the care that you need,” said William Repicci, chief executive of @LymphaticNet, a patient advocacy group.
via @washingtonpost #lymphedema
https://t.co/MyhAiY6QsM

[Lymphedema Diary @lymphedemadiary]

So proud of our beloved @MsKathyBates for Standing Up To Cancer and to cancer's "nasty little secret" - #lymphedema! @LymphaticNet #StandUpToCancer

[Stand Up To Cancer @SU2C]

The #StandUpToCancer mission:

[Lymphedema Diary @lymphedemadiary]

"We never let him use it as an excuse," his mother said. "'You’re still going to ride a bike, you’re still going to run, you’re still going to do whatever you want to do, and this leg is not going to be the reason you’re not going to do it.'” GO RUDY! #nolimits #lymphedema https://t.co/uZx8LoWbh6

[Lymphedema Diary @lymphedemadiary]

My friend @TheLymphieLife says my video is like watching "Lymphie QVC". Best compliment ever. I think I found my calling. https://t.co/wLy5Kljhh6

[Lymphedema Diary @lymphedemadiary]

The image that most captured my attention at @ArlingtonNatl. Here's why: https://t.co/eq1NNun5Lj #MemorialDay @LymphaticNet

[Lymphedema Diary @lymphedemadiary]

Her best role yet, #lymphedema champion. For me and @MsKathyBates. @LymphaticNet @brittavl #InauguralDCVAWalk

[Lymphedema Diary @lymphedemadiary]

@littlelymphie Love! Is that a toe cap?

[Lymphedema Diary @lymphedemadiary]

Cold water is good for #lymphedema, right? 😉 #polarplunge #snowday

[Lymphedema Diary @lymphedemadiary]

#LymphedemaAwarenessMonth halfway mark! Thank you, #MediUSA for inviting me to speak to your #LymphedemaAngels and for getting the word out about @LymphaticNet

[Lymphedema Diary @lymphedemadiary]

And the #Oscar goes to....the 73 @LymphedemaAct volunteers from 30 states for Most Determined Advocates! This is our year, #Lymphedema Lobby Days begin tomorrow. Congress, here we come! Thank you to our sponsors @JuzoUS @Medi_USA @JOBSTforUSA @LRmedical

[Lymphedema Diary @lymphedemadiary]

SHARE YOUR STORY! Support the @LymphedemaAct from home by telling our elected officials in D.C. why #compressiongarments should be covered by #Medicare https://t.co/2lnmdVK4Gn

[Lymphedema Diary @lymphedemadiary]

VIDEO: Ever try #drybrushing? I did! Find out how many butterflies dry brushing earns on @lymphedemadiary’s five-butterfly rating system. https://t.co/zszIxqhS1T #lymphedema #selfcare #detox

[Lymphedema Advocacy Group @LymphedemaAct]

On your mark, get set...our LTA 2018 virtual walk starts tomorrow! Help us cross the finish line: https://t.co/4LGm5rmW5H #lymphedema

[Lymphedema Diary @lymphedemadiary]

VIDEO: This is your year to THRIVE, not just survive, with #lymphedema. What's your #NewYearsResolution? https://t.co/n9ptOSdVLq

[Lymphedema Diary @lymphedemadiary]

I've got my #lymphedema New Year's resolution...and I could use your help in keeping it! #NewYearsEve2018
https://t.co/n9ptOSdVLq

[LE&RN @LymphaticNet]

Double your impact on #GivingTuesday - https://t.co/CP96YARlo7