Lynnette Ellison

Using marketing to bring entrepreneurial vision to life | Duchenne Parent | inclusion & diversity | education | empowering others

[Lynnette Ellison @lynnetteellison]

https://t.co/JeuDAX6waL

[Lynnette Ellison @lynnetteellison]

Thanks Nothing But Thieves for spending 1,461 minutes with me in 2022. I couldn’t stop listening to You Know Me Too Well. #SpotifyWrapped https://t.co/SGkdYbsVxa

[Lynnette Ellison @lynnetteellison]

@HughesAlex01 @borofergie Literally looks brilliant doesn't it! Can't wait to get down there for some summer garden furniture!

[Stephen Ferguson @borofergie]

This is such an exciting development for St Neots. I spend so much money on eBay but I’ve never been to a real auction.

[Lynnette Ellison @lynnetteellison]

Put your questions to pharmaceutical companies at the Conference https://t.co/lrA4Ptkiug

[Lynnette Ellison @lynnetteellison]

Join us for two days in November as we explore the latest research, treatments and updates. Watch presentations, Q&A sessions and join discussions in our 4 content streams.

BOOK NOW https://t.co/ROLJBzAxQn

#adconf22 #inperson #duchennefamily #comingtogether #unmissable

[Lynnette Ellison @lynnetteellison]

PTC reveals winners of STRIVE awards on World Duchenne Awareness Day

https://t.co/aEffkwKNnK

#worldduchenne #wdad2022 #duchenne #ptctherapeutics #striveaward

[Lynnette Ellison @lynnetteellison]

**Conference registration open**

Get your tickets to the unmissable Action Duchenne International Conference.

BOOK NOW https://t.co/ROLJBzAxQn

#longawaited #together #experts #duchenne #research #care #tech

[Lynnette Ellison @lynnetteellison]

Florence's postcard from just over halfway through the Science on Tour workshop programme this summer.

https://t.co/VgRuDjBe4G

#scienceontour #allwelcome #foreveryone #research #treatments #Duchenne #genetics #molecular

[Lynnette Ellison @lynnetteellison]

COMING SOON - booking link, agenda, speaker details and what's in store at the unmissable #ADCONF22!

Add the date to your calendar https://t.co/vGwnFtE57o

#experts #knowledge #duchenne #power #support #families #allwelcome

[Lynnette Ellison @lynnetteellison]

Tomorrow's theme is really close to my heart - focussing on today, rather than looking too far forward https://t.co/LpWPxu8bPB
#Allthroughsupport #support #families #Duchenne #DMD #rare #together #parents #carers #SEN #weunderstand #peertopeer

[Lynnette Ellison @lynnetteellison]

Absolutely awesome achievement for them all

[Lynnette Ellison @lynnetteellison]

Golly last night was a powerful session. I learned so much.

Watch the recording here https://t.co/LYB8n1D7AN

#Duchenne #raredisease #anticipatory #grief #bereavement #parenting #SEN

[Lynnette Ellison @lynnetteellison]

💙TONIGHT AT 6PM💙 Get help and support from our expert speaker Dr David Schonfeld (crisis and bereavement specialist) about how to talk to children about Duchenne.
▶️Register here https://t.co/NSu9ORLUsF

[Lynnette Ellison @lynnetteellison]

Check out my latest article: We are together, with you https://t.co/CYUgka6YDv via @LinkedIn

[Lynnette Ellison @lynnetteellison]

Sam has been working her absolute socks off again this week, getting everything ready for the pre-conference event for Newly Diagnosed Duchenne families, and the Conference in November. Here's her blog https://t.co/BIycw64JTH

#Duchenne #DMD #support #education #research

[Lynnette Ellison @lynnetteellison]

I am so happy and proud to share the news that The National Lottery Community Fund has chosen to support our much-needed ‘All-through Support’ project.

Read more here https://t.co/PSMWNsYyYw

#WDAD2021 @worldduchenne #communityfund #support #Duchenne

[Lynnette Ellison @lynnetteellison]

Join us in celebrating World Duchenne Awareness Day. Take a look at Mark Silverman's video highlighting some recent achievements from the Duchenne community.

https://t.co/pHI7ONmLAa

#WDAD2021 #support #education #research #awareness #Duchenne @worldduchenne

[Lynnette Ellison @lynnetteellison]

Hear from young people and #adults living with Duchenne as they share their personal experience and knowledge in the final session at the #ADCONF21.

E-tickets here https://t.co/AmZSxWGx5g

#agenda #whatson #research #care #support #education #duchenne #event #international

[Lynnette Ellison @lynnetteellison]

Starting with the science, find out why dystrophin is in the brain, what is its purpose and what happens when it is missing.

Get your e-tickets here https://t.co/3j7MLAqexO

#agenda #whatson #research #care #support #education #duchenne #event #international