❌atthew Doran

Psal❌ 91 and Buckeye Football ; [phone]

[❌atthew Doran @mCdoran]

@JackCarrUSA Take my money….

[❌atthew Doran @mCdoran]

Best steak house in Kalispell, MT. Need some recommendations. @AndyStumpf77

[❌atthew Doran @mCdoran]

@firstwefeast Played little league baseball with Cody in East Cobb. So wild to watch all this play out, had no clue as a kid who his dad was.

[❌atthew Doran @mCdoran]

@elonmusk Now do Atlanta! Traffic here is unbearable. Would be a game changer.

[The White House @WhiteHouse]

AMERICAN DOMINANCE. 🥇

[Jimmy’s Famous Seafood @JimmysSeafood]

Johnny Hockey forever! 💙❤️

[USA Hockey @usahockey]

THE GOAL HEARD AROUND THE WORLD 🥇🥇 #WINTEROLYMPICS

[Bleacher Report @BleacherReport]

USA DEFEATS CANADA TO WIN THEIR FIRST MEN'S HOCKEY GOLD MEDAL SINCE 1980 🚨🇺🇸

[The White House @WhiteHouse]

AMERICA WINS GOLD!!! 🥇🇺🇸

[Old Row @OldRowOfficial]

If you’re not jacked up to beat the shit out of some Canadians tomorrow morning then you might not be American

USA USA USA 🇺🇸

[❌atthew Doran @mCdoran]

@BarstoolOSU I was not one of those. But being a falcons fan and living through the Smith era…I’m not thrilled.

[❌atthew Doran @mCdoran]

@CoopersBucks2

[❌atthew Doran @mCdoran]

@Buckeye_Nation

[❌atthew Doran @mCdoran]

@woodyVSworld As a Falcons fan and watching him here…..

[College Sports Only @CSOonX]

Ohio State kickers whenever they need to make a clutch FG:

[Ohio State Football @OhioStateFB]

Gearing up ⛓️

[Ohio State Football @OhioStateFB]

Built for these moments 😤

@CottonBowlGame x @CFBPlayoff

[Ohio State Football @OhioStateFB]

𝗧𝗵𝗲 𝗧𝗿𝗮𝗶𝗹𝗲𝗿 𝗩𝗼𝗹. 𝟭𝟰 𝗧𝗛𝗘 𝗦𝗧𝗢𝗥𝗬 𝗖𝗢𝗡𝗧𝗜𝗡𝗨𝗘𝗦 🍿🔥🎥

[C🅾️🅾️per @CoopersBucks2]

Time for war!!!

[Brutus Stark @iron_brutus]

D-Day (Diagnosis Day).

A year ago today, we got the call that changed everything.

The call telling us that Clark has Sanfilippo Syndrome Type A and that it’s terminal, there’s no cure or treatment, and that supportive care is all that exists. Take lots of photos and love him as much as you can.

I still can’t fully put into words the pain we felt that day, but even in the middle of all of it, there was still light.

I needed to tell someone, but I wasn’t ready to tell our family. So I shared the news with all of you, and I am still blown away by the immediate outpouring of love and support you offered.

Buckeyes, Vols, Wolverines, and so many more stepped up to remind us we aren’t alone in this. We even got to meet @BoCamaro, who organized the experience of a lifetime and a Christmas we will never forget with all of your help.

A year later, the days are still hard, but not like they were then. Every day still starts with tears and the questions, “Why us?” and “Why him?” But even in the middle of that, we have hope. Profound hope.

Clark’s story is not set in stone. We are seeing firsthand through his clinical trial just how close we are to the prognosis of Sanfilippo completely changing. He’s almost 6 and is defying everything that would normally be expected for a child with this disease.

He’s physically doing things he couldn’t do before. His brain is stable. His hearing loss has disappeared. He’s learning more words and songs every day. He’s beating this thing.

We are on the verge of Sanfilippo no longer being a death sentence, but a manageable disease where kids can live long, healthy, happy lives, and no family has to hear the words: “There is no treatment. Supportive measures only. Love them while you can.”

So today, I’m allowing myself to be a little sad that this is our journey… but then I’m thinking of all of you who have rallied behind us, and I’m focusing on the hope.

Thank you all for your continued love, prayers, and support. Thank you for being a part of our family. 💜