Martha’s Rule aims to protect patient safety, but focusing on the obligations of the health system— not the "rights" of patients—will best serve this goal. From our new paper - Getting rights right: implementing ‘Martha’s Rule’ https://t.co/w4bU6vBrUv @Ethox_Centre
Not only does calling something ‘trusted’ not make it so, calling something ‘trusted’ does not make it trustworthy.
TREs are (still) not about trust - Our reply to critics https://t.co/35nTVlnx5Y @mark_sheehan_ox@rjmilne@Paige_Fitzs
Why should we trust institutions with our genomic data? New commentary in CMAJ: Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent https://t.co/M4Wvg3fG1H #Genomics#bioethics#dataethics
Thrilled to be invited to contribute to what will be a lively and thought-provoking discussion: 'Disclosing Biomarker-Based AD Assessments to Cognitively Healthy Individuals, led by @LorinaNaci https://t.co/tszfVvB085
A state-of-the-art vault makes a (data)bank more secure, but not more trustworthy. Read why in 'Trust and the Goldacre Review: why trusted research environments are not about trust', with @mark_sheehan_ox, @rjmilne, and @Fitz_Paige https://t.co/Zf8Jo7ol03 #bioethics#dataethics