This is a questionnaire for everyone with PKU or their carers. We want to know if you have been tested with sapropterin or not. What is your experience? We look forward to hearing from you https://t.co/r1C1HHeL6b
π’ Reminder for PKU professionals: Abstract submissions for the #ESPKUConference2026 Professional Meeting are still open!
Share your research and developments in PKU.
Submit by 25 July 2026:
https://t.co/tLJFWtemXP
π£ Every life carries traces.
Living with PKU leaves traces on our lives and our mental health.
Welcome to #tracesofpku
π¬ What traces has PKU left in your life?
#IPKUDAY2026#pkumentalhealth
https://t.co/ob6EvYDiSU
Disease Burden and Pharmacological Treatment Patterns in Children and Adults With Phenylketonuria: A Real-World Matched Cohort Study
π Calling adults with PKU worldwide! If you are 16+ and living with PKU, please take part in an important questionnaire about adult life with PKU.
π² https://t.co/UOCCIYgVrA
Please share!
#PKU#adultpkuawareness#raredisease