Maffucci & Olliers

Visit to find information on
Maffucci Syndrome and Ollier's Disease. Visit to support these conditions.

[Maffucci & Olliers @maffucci_ollier]

@PaedSarcomaCNS @johngleeds Hope to see you both at our 2020 conference ❄

[Maffucci & Olliers @maffucci_ollier]

Book your place at the Maffucci and Ollier's Conference 2020 !

Saturday 3rd October 2020
Wembley, London UK

❄ Contact us and book your place now ❄

#olliers #maffucci #olliersdisease #maffuccisyndrome #raredisease

[Maffucci & Olliers @maffucci_ollier]

The Maffucci & Ollier's Association Research Nurse needs your help!

We want your say! We want to know the met and unmet needs of people with Maffucci Syndrome and Ollier's Disease.

https://t.co/aTlpEVKdNK

#olliers #maffuccis #raredisease #ollierdisease #maffuccisyndrome

[Maffucci & Olliers @maffucci_ollier]

Lisa presenting about the role of an Occupational Therapist in supporting these conditions #maffucci #olliers

[Maffucci & Olliers @maffucci_ollier]

Mr Gooden is currently presenting on Maffucci and Ollier's and gliomas #maffucci #olliers

[Maffucci & Olliers @maffucci_ollier]

The 2019 Maffucci and Ollier's Conference. Professor Ashford has presented details on our next project for Clinical Practice Guidelines #maffucci #olliers

[Bone Cancer Research Trust @BCRT]

Did you know... We currently have research underway to validate the worlds first biomarker for chondrosarcoma.

If successful, this will be the first and only biomarker for chondrosarcoma – which has been searched for by researchers worldwide! More info: https://t.co/1MhKe4PikR

[Maffucci & Olliers @maffucci_ollier]

Fantastic and positive response to the Association and Red Robin Trust's announcement yesterday.

❄ Thank you as always for the incredible support that has enabled this to happen ❄ #timeforchange #olliersdisease #maffuccisyndrome

[Maffucci & Olliers @maffucci_ollier]

It is with great pleasure we announce the first project managed by the Maffucci and Ollier’s Association and funded by Red Robin Trust and partners. Please welcome Milli Lipshaw, The Maffucci and Ollier’s Association Research Nurse #wehavehope #answerscanbefound #timeforchange

[Maffucci & Olliers @maffucci_ollier]

❄ Our 7th year of Conference.....Take a look at our growth from 2013!!!❄

2019 Maffucci and Ollier's Association Annual Conference
Saturday 5th October 2019
Wembley, London, UK.

BOOK EARLY! Places are being filled.
To book your place comment below! #maffucci #olliers

[Maffucci & Olliers @maffucci_ollier]

BIG ANNOUNCEMENT UPDATE!

We are excited to announce that the final details of our first major project are being sorted and we will soon be able to share what the Association, Red Robin Trust and partners have been working on with you all.
#timeforchange

[Maffucci & Olliers @maffucci_ollier]

Conference planning is well underway for October 2019!! This year's theme is 'bring a professional'. If you are a professional wanting to know more about Ollier's/Maffucci please get in touch, this is a fantastic opportunity to meet other professionals, patients and families ❄

[Maffucci & Olliers @maffucci_ollier]

Our 2019 Conference is now taking bookings! Do you have a Ollier's/Maffucci diagnosis? Would you like to meet others AND talk with professionals to learn more?... Contact us for more info #maffucci #maffuccisyndrome #olliers #olliersdisease #raredisease

[Maffucci & Olliers @maffucci_ollier]

Fantastic news Professor Flanagan has joined our Medical Advisory Board #maffuccisyndrome #olliersdisease

[Maffucci & Olliers @maffucci_ollier]

Help others, share your answers to this months 'Care & Share' question using #care&share tag @maffucci_ollier

[Maffucci & Olliers @maffucci_ollier]

Maffucci & Ollier's Association Conference 2015 - vote for us now in the Aviva Community Fund https://t.co/p0e6zjBMPk

[Maffucci & Olliers @maffucci_ollier]

#Ihavehope campaign launched to raise awareness for Maffucci Syndrome & Ollier's Disease @RedRobinTrust Pls Support

[Maffucci & Olliers @maffucci_ollier]

Red Robin Trust have good news, you can now find us on BT Mydonate to send donations or organise online donations through sponsored events!

[Maffucci & Olliers @maffucci_ollier]

@mnapoleonwelch If I can help further - [email protected], thank you

[Maffucci & Olliers @maffucci_ollier]

@mnapoleonwelch we also have a useful links page that may help. We understand the importance of bringing us all together,please email me