Mahsa Shabani

Associate Professor @adamlawschool @LawHealthLife & @Ugent | Health Law | Biomedical Research Policy| ELSI genomics| Data sharing| Health Privacy| Data Ethics

[Mahsa Shabani @Mahsashabani]

@moji_kh 😔پاشو ببا اینجا دوستم ❤️

[The BMJ @bmj_latest]

This paper describes the FUTURE-AI framework, which provides guidance for the development and deployment of trustworthy AI tools in healthcare, @KarimLekadir and colleagues
https://t.co/VMOdLpa88g

[Karim Lekadir @KarimLekadir]

🚨 It’s finally here! After 3 years of dedicated work, we’re thrilled to share our landmark article presenting the FUTURE-AI framework. This effort united 117 experts to define best practices for building trustworthy AI!
🔗https://t.co/C1DaBpzZoU
➡️https://t.co/47zuspoM8N

[European Society of Human Genetics (ESHG) @eshgsociety]

We wish you all a Happy New Year!
Do not forget to submit your abstract to the #eshg2025 conference until Thursday, January 30, 2025, 23:59 CET. More information and guidelines for submission on our website: https://t.co/26f98JvQEx

[IViR @ivir_uva]

With great pleasure we announce the next lecture in our IViR Lecture Series, this time co-organised with the @LawHealthLife. On Friday 18 October Leonardo Cervera-Navas (@EU_EDPS ) will give a talk about AI & Data Protection:
https://t.co/P6qXrslGdp
cc @k_irion @AdamLawSchool

[Anna Lewis @acflewis]

What do we mean by diversity in data in genetics, and how should we achieve the benefits it is designed to bring? Piece in Nature Genetics out today, summarizing a new GA4GH policy framework. A thread. https://t.co/ZYQBzah6xH

[Alexander Hoischen @ahoischen]

It’s a wrap! The wonderful SPC has done its magic again - ⁦@eshgsociety⁩ ⁦@eshg_young⁩ have a great program for #eshg2025 in Milan.
Many thanks to you all (on picture plus online!)…I can promise everyone: it will be worth everyone’s trip to Milan!

[Mahsa Shabani @Mahsashabani]

@JongsmaKr Thanks so much for coming! 😊

[Mahsa Shabani @Mahsashabani]

Session towards #equity in genomics calling for large-scale African data collection for PRS #eshg2024

[Mahsa Shabani @Mahsashabani]

New paper out! Reconciling diversity in health and genomic data collection with the regulation of AI in clinical genomics - Genetics in Medicine https://t.co/FAkt7F14Gk

[Roxana Daneshjou MD/PhD @RoxanaDaneshjou]

🚨 We just released the results of a survey that SHOCKED me. AI is already in clinic. 🚨

We asked dermatologists -- are you using large language models in your clinical care? And then we explored what they were using LLMs for. @theJIDJournal https://t.co/AXYZ9qsOxW

[European Society of Human Genetics (ESHG) @eshgsociety]

Join us in Berlin or online for the #eshg2024 #hybridconference! 2 days left to register at the reduced rate until April 10, 2024 at 23:59 CEST before fees increase!
https://t.co/KcEJKwLnpb

[Mahsa Shabani @Mahsashabani]

@idemiguelb agree, specially as it has been highlighted as a main point in the press release...

[Mahsa Shabani @Mahsashabani]

The revised #EHDS reads sometimes like a manuscript after revisions requested by the reviewer #2.

[Mahsa Shabani @Mahsashabani]

@idemiguelb Not in the regulation itself, but very implicitly comes in the recitals ( e.g. 9 a), the possibility for using consent for genetic data under MS's competences.

[Mahsa Shabani @Mahsashabani]

@andganna I just sent it to you.

[Mahsa Shabani @Mahsashabani]

@idemiguelb Hi Inigo, are you referring to the reference to the scientific research for public interest vs "important" reasons of public interest as one of the bases for opt-out?

[Mahsa Shabani @Mahsashabani]

@NicoliniME @HarvardEthics @HMSbioethics congratulations Marie! very well-deserved!

[Ethics Section Winkler @EthicsWinkler]

Some impressions of Day 2 of our NEW_LIVES-conference. 🧬👶
This morning with talks by Hannah Straub, @Mahsashabani and Karla Alex
in the beautiful International Academic Forum Heidelberg @UniHeidelberg

[Mahsa Shabani @Mahsashabani]

Fantastic talk by Stephen Kingsmore on the use of AI in genomic newborn screening for rapid diagnosis, and how this can save lives. Thanks to @EthicsWinkler for organizing the event!