Maja Bartoszewicz-Moritz

Patient ambassador.Rare disease.Mef2C. diagnostics

[Maja Bartoszewicz-Moritz @MajaBMoritz]

”Supporting patient right (to the right help) through diagnosis” Thank You for these words @Tanya Collin-Histed #RE(ACT)Congress # earlydiagnosis #raredisease

[Maja Bartoszewicz-Moritz @MajaBMoritz]

@SBDRareProject & @shirlenebadger thank You for bringing me back my voice ! #raredisease #earlydiagnostic #WGS #journeyofhope #hearusout @irdirc @react_community

[Maja Bartoszewicz-Moritz @MajaBMoritz]

Thank You @SirMCaulfield @KrawitzPeter @VirginieBF31 and others great speakers for inspirational session today at @react_community RE(ACT) congress #diagnosticjourney #earlydiagnostic #wholegenomsequencing

[Maja Bartoszewicz-Moritz @MajaBMoritz]

WGS #wholegenomsequencing-early and timely testing .. wishing for equal acces for all patients across the world .#hearusout @react_community @eurordis @SirMCaulfield

[Shirlene Badger @shirlenebadger]

Powerful contribution from @MajaBMoritz and #JourneyofHope alongside @GenomicsEngland @KrawitzPeter @VirginieBF31 and others at @react_community @irdirc @EJPRareDiseases Congress

[Maja Bartoszewicz-Moritz @MajaBMoritz]

Every day might be ”the day” inspired by others let’s try to do smth good! #StrongerTogether #patientadvocate #raregeneticdiseases @eurordis @SBDRareProject @shirlenebadger @CarolynDumond
@illumina

[Foresight in Rare Disease Policy @rare2030]

.@yann_eurordis closes #ECRD2020 & cites the importance of Rare2030 in building robust solutions. "Our collective goal is that by 2030 every person living w/ a RD in Europe live the full potential of their life. That calls for a holistic approach, a 360 view all along their life"

[Maja Bartoszewicz-Moritz @MajaBMoritz]

Brilliant, really well prepared session #alessiacosta and Dr Sofia Douzgou @SofiaDouzgou thank You for answering my question🎉 #ECRD2020 @eurordis @shirlenebadger @illumina Thank You for this opportunity to participate in this # online #conference #patientadvocate #rare

[SamebutDifferent @SBDRareProject]

This is a difficult time for all of us so we are now giving away a free zebra themed face mask to children with both diagnosed and undiagnosed #RareDiseases in the UK.
Register at https://t.co/9rG51zJ4wS
Let’s face this together!
@TNLComFundWales @stevemorganfdn

[Maja Bartoszewicz-Moritz @MajaBMoritz]

@SBDRareProject @TNLComFundWales @stevemorganfdn That would be awesome👏🎉

[Maja Bartoszewicz-Moritz @MajaBMoritz]

🧚🏻💪🏻

[Shirlene Badger @shirlenebadger]

@Ring20UK @eurordis If you see the wonder of a fairytale, you can take the future even if you fail

[Maja Bartoszewicz-Moritz @MajaBMoritz]

diagnostic journey at #ECRD2020 @eurordis,reminded me about amazing collaboration with @SBDRareProject and @illumina.A short movie about our amazing kids and the importance of the diagnosis. #journeyofhope #RareDisease

https://t.co/JPaBYqp9oM
@TomAlmerothW @shirlenebadger

[Maja Bartoszewicz-Moritz @MajaBMoritz]

Incredibly inspiring speech by Dr Gareth Baynan #ECRD2020 #conference #online @eurordis #rare #learning #genomics

[Maja Bartoszewicz-Moritz @MajaBMoritz]

@shirlenebadger @TomAlmerothW Love it How in this difficult time #illumina and people who really care prepared this supportive movie. Thank You @shirlenebadger and @CarolynDumond #RareDiseases #isolatedNOTalone #togetherwewillgothroughthis

[Maja Bartoszewicz-Moritz @MajaBMoritz]

@eurordis What a job!!! #ECRD2020 #online #conference ,great speakers #importance of #diagnostic #earlydiagnostic #IT Julian Isla #Genetics Prof.Lucy Raymond and Dr Lucy McKay well explained.

[Maja Bartoszewicz-Moritz @MajaBMoritz]

@EJPRareDiseases @SBDRareProject @irdirc @eurordis Thank You for today .truly inspired @EJPRareDiseases @SBDRareProject @shirlenebadger #ECRD2020 # online #conference

[Maja Bartoszewicz-Moritz @MajaBMoritz]

so excited about to learn more at today's conference #ECRD2020 @eurordis @SBDRareProject