CRPS awareness

Ran by @JodieVolunteers // 22 // CRPS warrior since 14 years old // Affected in the right foot and internal organs // Wishing every warrior a low pain day

[Jodie 🇵🇸 @Jodie_ag_]

"Remember, Christmas Day is, in the end, just a day. It isn’t a test or a scorecard of you or your life, so be kind to yourself" - J.K Rowling

[Jodie 🇵🇸 @Jodie_ag_]

If you are sitting in an accessible seat on public transport and are able to stand, PLEASE be extra aware of passengers that are less able to stand.

We are so often on autopilot that we don’t acknowledge those around us but it can make a huge difference to someone when we do.

[Burning Nights CRPS @BNightsCRPS]

Infographic: ‘But you don’t look sick’ understanding #invisibleillness #CRPS #chronicpain https://t.co/UpUXvv2e1o

[Brian Barr Solicitors @BrianBarrLaw]

"Pain is invisible, and that makes living with it even harder. You have to be a fighter."
This article by @Channel4 explores the difficulties of living with #CRPS: https://t.co/pPctFRuT9O

#chronicpain

[CRPS awareness @makeawareCRPS]

“CRPS is a monster. It shows no mercy. It doesn’t care if you have plans or deadlines. It doesn’t care that you are exhausted and just want to sleep. It comes out of nowhere like a figure hiding in the shadows of a dark alley. It is relentless.”

https://t.co/Pcyo5hDx8F

[Jodie 🇵🇸 @Jodie_ag_]

We desperately need to tackle the idea that someone has to hit ‘rock bottom’ in order to receive mental health support.

I cannot reiterate enough how vital early-intervention is.

You wouldn’t wait for every bone in a persons body to break before you treated their broken arm.

[Burning Nights CRPS @BNightsCRPS]

The McGill pain scale ranks #CRPS as the highest form of #chronicpain https://t.co/v0kV5eWRRk

[CRPS awareness @makeawareCRPS]

@tayotony @crazyjane125 @lisa19576 @TreatmentCrps @Canterburymcc @BNightsCRPS @karenmurraygray @eddiewoodman11 Complex Regional Pain Syndrome

[CRPS awareness @makeawareCRPS]

https://t.co/ho0ZM26vjl

#CRPS

[CRPS awareness @makeawareCRPS]

@Gerard36Delaney So glad that there are certain things that help a little for you!

[CRPS awareness @makeawareCRPS]

Summer weather is causing absolute havoc to my #CRPS this year, with the heatwave in the UK the burning pain is becoming more extreme with much more frequent flares. Anyone else whose pain levels are negatively impacted by heat have any tips on how to manage the summer heat?

[CRPS awareness @makeawareCRPS]

@HighJackFlash @BNightsCRPS Sorry to hear today has been a rough one for you! Wishing you a better day tomorrow! All my best!

[CRPS awareness @makeawareCRPS]

@SammyBr0 Does anything help you sleep? I find I sleep less in the heat because it’s so uncomfortable and pain levels rise. So thankful the temperatures have reduced a little now and I’ve been able to better sleep!

[CRPS awareness @makeawareCRPS]

@starspring @BNightsCRPS I felt the same, always seeing people that found the heat helpful and I was honestly starting to feel alone in struggling with the heat

[CRPS awareness @makeawareCRPS]

@tracialowry @BNightsCRPS So awful that there only solution was to not leave the house! Can’t just hibernate through the heat and stop life, how wonderful if we could hibernate aye!

[CRPS awareness @makeawareCRPS]

@tracialowry @BNightsCRPS This sounds horrendous! So sorry it gives you such a rough time!

[CRPS awareness @makeawareCRPS]

@HighJackFlash @BNightsCRPS Thank you!!

[CRPS awareness @makeawareCRPS]

@HighJackFlash @BNightsCRPS Having to spend a fair bit on disposable ice packs to give me any chance of getting out of the house when the heat is bad! Sorry you struggle too!!