@vicilou@DanielBaker_eu A few in England have experienced issues. I know Daniel was informed by the Royal Brompton he may not receive his usual supplies.
Unfortunate that many people won't be able to attend today's BLM protest because of Covid-19. Remember that those at home are still fully supportive! #BlackLivesMattters
In lieu of gifts for his birthday, Mark has asked for donations to support DMD Pathfinders to carry on his legacy and great contributions to the Duchenne community.
You can donate on virgin money giving here:
https://t.co/YXB0OOK80n
Tomorrow we are celebrating our co-founder Mark Chapman's 50th birthday with an online party!! Please join us for a prize draw, thrilling entertainment and more than a few surprises. Zoom - https://t.co/FXrdz1hBGF or watch the livestream on Facebook - https://t.co/FWHE14b3pX
Please RT this video from my friend Jon, It echoes my current feelings, as disabled people we are all very scared. Please help give this exposure, especially any of you with a blue tick or celebrity status. It could really help - A plea for our lives https://t.co/7nGdkLJG0H
We're celebrating our Chair @markichapman's 50th birthday with an online party on 19th April at 2pm. Please send video messages and get in touch if you want to join. Find out more here: https://t.co/47jtwI6qK1
Advice from CHC "The advice is that budget holders provide a letter for PAs stating that that they are employed private carers; shopping on your behalf due to your health needs and that you are in receipt of health funding." 1/2
I have 2 personal care assistants off sick so far. Given the absence of testing I'll probably have no idea if they've had Covid-19, when to allow them back to work, and what risk they pose to me. This just makes it harder to stay safe.
Do we HAVE to have a storm every fucking weekend now? Is that it? 2020, post Brexit, and all we’ve had are fucking storms and diseases.
I might move to a tiny tiny island and live out my days in a coconut bra eating bananas and fish I’ve caught using my knickers.