A person with migraine walks into the doctor's office. The conversation begins where it usually ends.
Not a joke.
I just relaunched the Migraine Aura Foundation — with a new feature in early testing. Looking for people to try it.
🧵
I wanted to solve a persistent migraine/aura problem my daughter suffers with. I didn't have the data so I extracted all migraine events programmatically from five years of our text message history.
For each event identified I pulled 96-hours of weather data preceding its onset, including barometric pressure, temperature, and humidity.
The result is a dataset of 79 migraines with their preceding weather patterns, which proved my hypothesis that a dip in pressure followed by a spike, precedes a migraine by about ~12-14 hours.
A temperature dip, and spike in humidity accompanies that pattern, every single time. So with accurate forecasting data it would likely be possible to provide fairly confident windows of migraine risk, which can be mitigated ahead of time.
If you have any kind of chronic or persistent health issue the best thing you can do is collect data. Track symptoms daily. Soon enough someone somewhere will be able to do something with it that solves it.
This first round is about feasibility and acceptability (clinical validation comes next).
First 10 testers, first come first served. Reply or DM for a password.
https://t.co/yyNuoU1NPH
A person with migraine walks into the doctor's office. The conversation begins where it usually ends.
Not a joke.
I just relaunched the Migraine Aura Foundation — with a new feature in early testing. Looking for people to try it.
🧵
It's called the MigraineAuraScan:
A structured aura anamnesis that walks you through the ICHD-3 diagnostic criteria.
At every step you can compare your experience against other patient accounts (collected since 1998).
INSTEAD OF WATCHING AN HOUR OF NETFLIX TONIGHT.
This 60-minute Cambridge lecture by Demis Hassabis will teach you more about the future of AI than most people will learn in the next 5 years.
Bookmark it and give it an hour, no matter what.
I’m seeking legal counsel (IP, domain, health ethics).
Migraine Aura Foundation gave voice to invisible pain for 20+ yrs. Now our website's content was hijacked — promoting erectile disfunction drugs.
(Already send DMCA Takedown & Abuse Report)
https://t.co/OR0sljdMmc
Do you want to discuss clinical trial methodology for #CNS disorders? I recently learned about @isctm https://t.co/w2oXow88er when they invited me to speak and serve on an upcoming panel at their annual scientific meeting.(I will present virtually.) #mhealth#migraine@WNGtweets
How cortical spreading depolarization (CSD) affects meningeal afferents to drive migraine headache? Our new afferent imaging study in awake mice implicates acute calcium response and prolonged sensitization to locomotion-related meningeal deformation. https://t.co/gViJIdvmWy
Frisch on der Wochenendepresse:
»Altamirage ist dieses quixotische Abraham-Maslows-“Law of the Instrument”-zum-Feature-Erheben. Wenn man nur einen Hammer hat, sehen alle Probleme wie ein Nagel aus. Altamirage sagt: Na und? Feature it!«
https://t.co/6fmwFFQ8Pd
Migraine friends, I need ideas to help with sleep. I take melatonin gummies 10mg before bed. Makes me tired and I can doze for max 2 hours then I’m up. Such a vicious cycle of no sleep and migraine. #MigraineChat 🥱 @beth_morton