@Labcorp Mayo Clinic and I have been trying to get pathological slides sent to the Mayo Clinic since November 20! Mailer sent, many messages left and no response from your company. Ha, is this normal? If so I can’t imagine a company ignoring requests and messages!
Thank you @RepLaHood for meeting with me to discuss the importance of The Life Saving Leave Act and the C.W. Bill Young Cell Transplantion Program. Your support is needed to save the lives of blood cancer patients like me. @NMDP_advocacy#SaveMoreLives
A big thank you to @RepLaHood for meeting with two of our @BTMPublicPolicy advocates today about the Life Saving Leave Act. A national and uniform policy will allow more potential donors to say “yes!” and help save more lives without risking their jobs. #ProtectDonorJobs
Thank you to @RepSteel and staff for meeting with our amazing advocates today to talk about H.R. 7770, the Life Saving Leave Act, which would allow more donors to say yes when they get the call that they could be the life-saving match for a patient in need. 💚💙
Thank you to @RepJuliaLetlow and staff for meeting with our amazing advocates to hear how H.R. 7770, the Life Saving Leave Act, would help more donors say yes to answering the call to giving blood cancer and blood disease patients a second chance at life. 💚💙
Grateful to talk with @SenBobCasey and staff about the Life Saving Leave Act which would reduce barriers so that bone marrow and blood stem cell donors can say yes to answering the call to save a life without fear of risking their job. 💚💙
What a week! Thank you to everyone who participated in our Virtual Fly-In and Virtual Day of Action! We are humbled by each and every person who advocated for blood cancer and blood disease patients. Thank you. 💚 💙
#HappyValentinesDay 💚 💙 Take a moment to watch two of our Connecticut ambassadors, Amanda and Jason, share their inspiring love story and why they advocate for the Nation's Registry, via @NBCConnecticut. https://t.co/a8fyVk6LAu
For many patients, a transplant is the only cure for their blood cancer or blood disease. Congress can help expand our lifesaving mission by funding our appropriations ask. 🗣📢
Will you take a moment to email your Senator today? https://t.co/U66vhVFCy5
Today is #RareDiseaseDay!
There are over 6⃣0⃣0⃣0⃣ rare diseases
🌏 300 million people live with a rare disease accross the world
Rare diseases currently affect 3.5% - 5.9% of the worldwide population👨👩👧👦
Learn more about what is a #raredisease
👉https://t.co/4axpDU3ofy
Thanks @RepLaHood for meeting with me and other advocates and learning how you can support NMDP/@BeTheMatch patients like me. Together, we can save more lives through cellular therapy. #TransplantHope2021 @BeTheMatch @mofun63