A really important study by @marsharko and colleagues. This remains one of our enduring challenges, especially in the new era of health data transparency. I am hopeful that a new Requestor Preferences Exception in the @HHS_TechPolicy HTI-2 Proposed Rule will help improve privacy
Read our paper on Equitable Interoperability Through Precise Control of Sensitive Health Information: An Emerging Pathway to Health Equity in Annals of Internal Medicine https://t.co/VOTM7Vtl5Z
NEW: Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else) https://t.co/B3JmEolBou
@chethanr@hgalvinmd@marsharko @SurvivorshipIT
Hot off the press! Dr. Marianne Sharko of #WCMPeds joins @FYInformatics to discuss policy and the practice landscape of the 21st Century Cures Act and its focus on adolescent health data sharing and consequences. #curesact
For unified organizational approach and policy when it comes to Information Blocking mandate, it’s critical to have alignment and agreement between health IT, patient engagement, operational leadership and health information management.
There are differences in how patients want to see their health information. We need to be cognizant of health literacy, numeracy & factors that influence patients’ comprehension of their health data. Great work!
@StephanieNDR@sabrina_mangal@MeghanTurchioe@anniecmyers#AMIA2022
Happening NOW in Jefferson East. The 21st Century Cures act is an important advance towards the era of data liberation, but nothing comes easy. #AMIA2022 come join the conversation! #S11
If you’re looking for things to do at #AMIA2022, come see me speak about adolescent privacy in session 11, communicating numbers in session 24, and informatics/statistics education in session 33!
So excited to discuss Challenges and Strategies for Protecting Adolescent Patients in the Setting of the 21st Century Cures Act with this impressive panel 8:30 tomorrow (Monday) morning in the Jefferson Room!! @trentrosenbloom@culehmann@jsancker@LinaSulieman#AMIA2022
If you're a teen, your medical privacy protections vary a lot from state to state. That's bad for patients and providers. Read more in our new article in @aap_peds.
Our study highlights challenges in a system where state-by-state variability in adolescent consent laws complicates clinical data exchange and the ability of adolescents to access confidential sensitive healthcare, such as mental and reproductive health. https://t.co/W7e9j7hkKQ
State laws vary in the consent and privacy of adolescent patients for services including mental health care, contraceptive management, immunizations, and more. Dr. Marianne Sharko and colleagues observed the impact of these differences in @AmerAcadPeds. https://t.co/b4fq4bqk8I