Greetings fellow humans! I'm Mr. Autoimmune, a writer and photographer who has dedicated himself to raising awareness and knowledge levels of Immune diseases.
Our group's Chair and her son have both been very busy in Spain, attending a conference and increasing awareness of rare, #autoinflammatory diseases! #RareDisease#Awareness
Thank You!!! to all my subscribers, You are both an inspiration and motivation. I hope soon to have a website for telling the stories of people living with autoimmune and autoinflammatory conditions, and I'm hoping you will join me in sharing my story.
More details soon.
Caleb is 4 years old with a VUS for TRAPS. He suffered from high fevers, abdominal and back pain, and rashes. Caleb recently went through a 6 month flare with labs continuously elevated. He has been symptom free for 6 weeks on increased Ilaris.
#autoinflammatory#TRAPS
The @carrainc (Childhood Arthritis and Rheumatology Research Alliance) SVARD CRMO/CNO work group has stated that there is "increasing incidence" of CRMO.
#SOS#KidsInPain#Urgent#CRMO
JJ was diagnosed as #USAID in 2017. AIA helped her find doctors, report symptoms, and explain her disease. Now she is living her dream of working in the music industry. Her new normal is a shot of Kineret before heading into Manhattan. #autoinflammatory#autoinflammatoryalliance
Actor Jonathan Groff supports KIF1A Warrior Gia & KIF1A research w/ this #GoFundMe. Join us for a chance to win tickets & tour to see Jonathan perform in “Little Shop of Horrors.” Most importantly help parents fund lifesaving treatment for our kids.
https://t.co/rqVsm270oU