Autoinflammatory UK -Making the Invisible Visible

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[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

Fyi: @rheum_covid @icedcoffeecreat
@wendycostello2
@AAlliance_SAID
@PeriodicFeverUK
@RareRevolutionM
@MD_Briggs
@camraredisease
@eurordis

Whole genome sequencing could save NHS millions of pounds, study suggests
https://t.co/k84UDkbOMD

[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

fyi @wendycostello2 @AAlliance_SAID @PeriodicFeverUK @PReSEMERGE @rheum_covid @ACRheum please retweet and share widely.

[Dr Devang Pandya @dvpandya0]

Basics of Autoinflammation by Prof Amita Aggarwal...Crystal Clear & Easy to Understand...#PRSI2021 @vignesh_pgi @IsabelleMeyts @Sanket_JIPMER @RACC_UK @AAlliance_SAID @PeriodicFeverUK @AutoinflamMonth @sjiafoundation @DrSagar_Bhattad @PanktiMehta24

[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

fyi @PeriodicFeverUK

[Autoinflammatory UK -Making the Invisible Visible @PeriodicFeverUK]

Proud to be an inaugural member of the new Scottish Parliament Cross Party Group for Rare, Genetic and Undiagnosed Conditions. Looking forward to representing the #rare #autoinflammatory community at our first meeting on October 26!

[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

FYI @AutoinflamMonth @AAlliance_SAID @PeriodicFeverUK @EmmaLouiseEos @Emmy_ShieldUsNI @Emmamilne77

[EATC for Children @EATC4Children]

Calling patients and parents:
We want to understand what you see as the TOP priorities for research into CNO/CRMO. Your priorities will then be used to set the agenda for our 2022 conference. Complete the survey here:
https://t.co/5Lt4BeqjT9

[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

2021 International Autoinflammatory Awareness Month Official Video https://t.co/iTIhtortoP via @YouTube

[Michelle Holder @sweetsfiend]

The Flying Lifeguards - You are not alone https://t.co/2KQaB0VEHJ #AutoinflammatoryAwareness

[Carrie Lucas @lucasite_lab]

I am excited to share this @NatImmunol manuscript describing our study of a pediatric autoinflammatory, IBD-like disease that led to discovery of the ELF4 transcription factor as a key regulator of inflammation in humans and mice. Here’s a summary. (1/n)
https://t.co/YH2h1EapO0

[Autoinflammatory UK -Making the Invisible Visible @PeriodicFeverUK]

Proud to have been a part of this excellent research serving our wider #autoinflammatory community and published in the Lancet https://t.co/0Lxf8NYthm

[ImmunAID_EU @ImmunAID_EU]

[New centre opening] The English centre @LeedsHospitals is now open! Welcome on-board @sinisauksav and team! All centres in UK are now open. Find out more: https://t.co/ffMUi0aYT6 #autoinflammatory

[Michelle Holder @sweetsfiend]

"#SweetSyndrome is a rare cause of full-body rash and #pharyngitis which can progress to clinically significant #laryngitis." A Sweet Voice: Acute Febrile Neutrophilic Dermatosis of the Larynx. https://t.co/aDIwgUOK5e

[NatRevRheumatol @NatRevRheumatol]

Our latest #Review is now online:

Molecular mechanisms of phenotypic variability in monogenic #autoinflammatory diseases

Check it out at https://t.co/sjby6qlo17

#Rheumatology #Rheumtwitter

[Frontiers - Immunology @FrontImmunol]

New Research: Behçet’s Disease—Do Microbiomes and Genetics Collaborate in Pathogenesis?: Behçet’s disease (BD) is a multisystem autoinflammatory condition characterized by mucosal ulceration, breakdown of immune privilege sites and… https://t.co/LLHatIgozQ #immunology

[AiArthritis @IFAiArthritis]

“But you don’t look sick”, often said with good intentions, it often is a reminder of the all invisible challenges that come with #AiArthritis. What’s something invisible you have to deal with? #AiArthritisDay

[JointHealth @ACEJointHealth]

May 20 is World Autoimmune & Autoinflammatory Arthritis Day. Join @AIArthritisDay & other patient orgs to help raise awareness about the different types of inflammatory arthritis: https://t.co/1AHoaToLOZ

#AiArthritisDay @CherylKoehn @IFAiArthritis @ASIntFed @CRASCRRheum @RheumAb

[NatRevRheumatol @NatRevRheumatol]

Today is World Autoimmune and Autoinflammatory Arthritis Day

To raise awareness, we will be sharing some of our recent content on different kinds of adult and childhood #arthritis throughout the day

#aiarthritisday #RheumTwitter #Rheumatology

[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

FYI @PeriodicFeverUK @AAlliance_SAID @AutoinflamMonth @GeneticAll_UK @GlobalGenes @saskya_angevare @camraredisease @RareRevolutionM @eurordis @yann_eurordis @RareConnect @doctor_oxford @trishgreenhalgh @BBCNews @TYoungstein @GlasgowPam @mikegalsworthy @rheum_cat @ACRheum

[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

Adult #autoinflammatory patients.

From NAC at @RoyalFreeNHS London.

Results from a recent patient with #autoinflammatory conditions survey.

FYI @AAlliance_SAID @PeriodicFeverUK @wendycostello2 @rheum_covid @emilysirotich @saskya_angevare @TYoungstein @_ERNRITA @ern_reconnet