ASIF

Axial Spondyloarthritis International Federation. Talking all things relating to axSpA. Retweets are not endorsements.

[ASIF @ASIntFed]

Great to be at the #EULARPARE Conference in Brussels last week!

We enjoyed reconnecting with friends, meeting new colleagues, and seeing so many ASIF member organisations involved in EULAR PARE and International PARE.

A key theme was how patient organisations can use AI while ensuring access, equity, and responsible use. Lots of great examples, discussions, and ideas to take forward.

#ArtificialIntelligence #PatientVoice #AxialSpondyloarthritis #ASIF

[ASIF @ASIntFed]

Too many people living with #axSpA still face barriers to accessing the treatments they need.

This #GlobalBiosimilarsWeek, we are advocating for equitable access to safe and effective treatment options for all, regardless of where they live.

🌍 #HealthEquity #AccessToCare

[ASIF @ASIntFed]

On #WorldArthritisDay, we stand with people living with RMDs, including #AxialSpondyloarthritis (#axSpA). Their voices, experiences and #RMDreams matter. Many challenges of living with an RMD are invisible. Let’s make them visible, understood and supported. #WAD2026 #EULAR

[ASIF @ASIntFed]

At our AGM today, Yuri Tsueoka, Japan Ankylosing Spondylitis Club, was elected to the ASIF Board. Lillann Wermskog, Spafo Norge, and Cassie Shafer, SAA, were also re-elected. Congratulations 👏💙

We look forward to working together to strengthen our global community and collaboration.
#ASIFCouncilMeeting2026 #axSpA #AxialSpondyloarthritis

[ASIF @ASIntFed]

💙 What an incredible few days in Athens!
#ASIFCouncilMeeting2026 has been about learning, sharing ideas, building relationships and, above all, collaboration. 🤝🌍
We hope delegates leave with new knowledge, practical skills and connections to share with their communities.
The meeting may be ending, but the conversations, ideas and collaborations will continue. 💙
#axSpA

[ASIF @ASIntFed]

🤝 Learning, sharing and collaboration at #ASIFCouncilMeeting2026!
Today, delegates explored the latest #axSpA research before getting hands-on with AI, working in teams to create their own newspapers. 🤖
New ideas, practical skills and shared learning to take back to patient organisations around the world. 💙

[ASIF @ASIntFed]

🤝 Collaboration in action at #ASIFCouncilMeeting2026!

After kicking things off with speed networking last night, delegates from around the world are sharing experiences, ideas and expertise today in Athens.

New connections, shared learning and stronger relationships. That’s what ASIF Council Meetings are all about. 💙
#axSpA #PatientAdvocacy #AxialSpondyloarthritis

[ASIF @ASIntFed]

Delegates are arriving in Athens for the #ASIFCouncilMeeting2026! We're delighted to reconnect with friends and welcome new colleagues from around the world.

From Australia, Japan and the Philippines to Iceland, Italy, the UK, South Africa, Argentina and beyond, our global community is coming together to learn, share and collaborate. 🌍

Tonight's welcome reception is the perfect opportunity to meet, reconnect and start new conversations before the programme begins tomorrow.
#AxialSpondyloarthritis #axSpA

[ASIF @ASIntFed]

If you are interested in pursuing remission in lower income countries, this @globalremission webinar is for you!

Register using the link below!

#axSpA #AxialSpondyloarthritis

[Global Remission Coalition @globalremission]

Join the GRC next week for its webinar, "Pursuing Remission in Lower Income Countries," on September 28 at 1:00 pm CEST.

Global experts will explore the unmet needs of people living with chronic inflammatory conditions in low- and middle-income countries (LMICs). Speakers include:

⏺️ Andrew Briggs, physiotherapist and professor at Curtin University in Australia,
⏺️ Dzifa Dey, MD, FWACP, MSc, rheumatologist and founder of the Rheumatology Initiative, Ghana
⏺️ Franklin Hiagbe, patient advocate and member of the Rheumatology Initiative, Ghana.

📢 Register now: https://t.co/kjPaN3sfXe

[ASIF @ASIntFed]

Many people living with axial spondyloarthritis (axSpA) also live with psoriasis. This #PsoriasisAwarenessMonth let's raise awareness. break the stigma and drive action for change!

[IFPA @PsoriasisIFPA]

It's #PsoriasisAwarenessMonth. 💜
People living with psoriasis and psoriatic arthritis deserve to be seen, heard, and taken seriously.
Let's raise awareness, break stigma, and drive action for better care and better lives.
No one should have to face these diseases alone.

[ASIF @ASIntFed]

Catch up on #EULAR2026 with video clips and highlights from our latest report.
Read more: EULAR 2026 Report (https://t.co/PMsuF69kOj)
For the latest ASIF news and events, visit our website. 🌍
#AxSpA #Rheumatology

[ASIF @ASIntFed]

👏 Congratulations to @Neil_Betteridge and @martinusdewit on receiving the prestigious Carol Nachman Medal – a truly well‑deserved honour.
For over 20 years, both have been tireless advocates for people with rheumatic conditions, shaping patient-centred care at local, national and international levels, including key roles within EULAR PARE.
An inspiring recognition of their impact. 💙

[Global Alliance for Patient Access @globalafpa]

The Global Alliance for Patient Access is proud to congratulate @Neil_Betteridge on receiving the 2026 Carol Nachman Medal, one of the most prestigious awards in rheumatology.

Presented in Wiesbaden and introduced by laudatory remarks from Prof. Désirée van der Heijde, the award recognizes Neil's more than 25 years at the intersection of patient experience and health policy. From his tenure at Arthritis Care UK and @eular_org to advising the UK government on patient access and disability policy, Neil has never allowed patient experience to be decorative. He has made it structural.

That commitment is exactly what drives his leadership at GAfPA and @globalremission. Patient-centered care is not a symbolic value. It is the standard health systems should be held to, and Neil has spent a career showing what that looks like in practice.

Congratulations, Neil. This recognition is very well deserved.

#PatientAdvocacy #PatientCenteredCare #Rheumatology #GAfPA

[ASIF @ASIntFed]

🌍 Legal or governance professional? Want to make a global impact?
ASIF is recruiting a voluntary Legal/Governance Trustee to support our international work improving lives with axial spondyloarthritis.
🕒 1–4 hrs/month
📍 UK-based
🗓️ Apply by 30 July 2026
📩 More info: https://t.co/uvmjjf06bl
#Trustee #Volunteering #NonProfit #GlobalHealth #ASIF

[ASIF @ASIntFed]

What an incredible few days at #EULAR2026!

It was inspiring to listen to presentations by patient representatives during the PARE programme; encouraging to hear about the clinical developments and research taking place around the world; and rewarding to ensure the voice of the international #axSpA community was heard throughout the congress!

Thank you to our Trustees and members who spoke on behalf of people living with #AxialSpondyloarthritis.

Thanks to everyone who raised awareness during EULAR by wearing their orange shoelaces! #LaceUpForAxSpA

@eular_org - European Alliance of Associations for Rheumatology

[EULAR @eular_org]

Missed a session or want to revisit your favourite highlights?

📺Access the #EULAR2026 Congress On-Demand and watch inspiring Scientific Sessions presented throughout the Congress, available from Monday 8 June until 31 December 2026!

Register here 👉 https://t.co/LZWAOj5ife

[ASIF @ASIntFed]

ASIF is at @eular_org - European Alliance of Associations for Rheumatology in London!

So good to see old friends and meet new ones and tell people about the International Map of AxSpA and PsA (IMAP).

Lots of inspiring information being shared by our friends and colleagues at different patient organsations around the world during the PARE sessions today!

And lots of people Lacing Up For AxSpA to raise awareness! We are loving seeing all the orange laces!

Come and pick up your pair at our booth on level 3 near the ICC Capital Suits.

@NASSchiefexec

#Eular2026 #axSpA #AxialSpondyloarthritis #LaceUpForaxSpA

[ASIF @ASIntFed]

The global average delay to diagnosis is 7.4 years.

If you are searching for an explanation of your back pain check out the @spondylitis resources - could it be #AxialSpondyloarthritis (#axSpA)?

[Spondylitis.org @spondylitis]

It's not stress. It's not your mattress. It's not in your head.

1 in 4 patients have seen five or more health professionals in search of a diagnosis. We Move Differently with Spondyloarthritis—long before diagnosis.

If your pain improves with movement, it might be time to ask why.

Getting answers starts with awareness.

https://t.co/LbgHhzAjsL

#WeMoveDifferently #NotJustBackPain #InvisibleIllness #axspa #spondylitis

[ASIF @ASIntFed]

Today is World AiArthritis Day!

Join AiArthritis in DRIVING awareness this World AUTOimmune & AUTOinflammatory Arthritis Day!

This year they are showcasing lived experience and amplifying the voices of individuals affected by autoimmune and autoinflammatory arthritis through the campaign theme #MyAiArthritisDisease.

Every lived experience is unique and valuable. By sharing yours, you help shape awareness, advocacy, research, and future recognition for conditions that may still be overlooked.

#axSpA #AxialSpondyloarthritis #AiArthritisDay #LearnArthritis #DRIVEawareness #autoimmune #autoinflammatory

[WorldAiArthritisDay @AIArthritisDay]

It's World AiArthritis Day! Awareness is the starting line. 🏎️💨

World AiArthritis Day brings the world together to move that forward.

Join in: https://t.co/hpFaFoVGwD

#AiArthritisDay #DRIVEawareness #autoimmune #autoinflammatory

[ASIF @ASIntFed]

Today we are proud to stand with the IBD community.

IBD also affects many people who live with #AxialSpondyloarthritis (#axSpA).

Access to healthcare should not depend on where you live!

#WorldIBDDay #IBDHasNoBorders #AccessToIBDCare #IBDCommunity

[ASIF @ASIntFed]

We are looking forward to recognising #WorldAIArthritisDay.
Check out the post below and find out how you can get involved!

[WorldAiArthritisDay @AIArthritisDay]

For the 450 million people worldwide living with autoimmune and autoinflammatory diseases, understanding is often the missing piece.

Get involved: https://t.co/hpFaFoVGwD

#AiArthritisDay #LearnArthritis #DRIVEawareness #autoimmune #autoinflammatory

[ASIF @ASIntFed]

Patient organisations around the world are raising awareness about #AxialSpondyloarthritis today - #WorldASDay!

#axSpA is #NotOnlyBackPain - find out more at https://t.co/sK32gCAP0i

Thank you @trighana and everyone for raising awareness!

[#tRi @trighana]

Today is World AS day. Axial Spondyloarthritis day. It's generally highlighted by persistent lower back pain. Sometimes pain in hips, buttocks, fatigue and widespread pain.
Find out more about this condition.
https://t.co/ypbSchKfvz
#WorldASDay2026
#LaceUpForAxSpA