Saz Bailey

Hi, I'm Saz - Max's mum. Max has scoliosis. I've proven surgery wrong for him before and this time it's so much more serious...

[Saz Bailey @maxipotential]

We’ve had a very challenging week this week as Max’s high school have excluded him due to ‘safeguarding’ processes around his scoliosis bracing therapy. I was advised that if I put it back on him I would be... https://t.co/PQmJT97nit

[Saz Bailey @maxipotential]

A typical 11 hour stint taking Max to clinic for his Scoliosis brace review today. This is the first time he has had his scan without a complete meltdown because of the noise. Chocolate buttons and cheeseburgers work wonders!

#progress #scoliosis #mummyisknackered

[Saz Bailey @maxipotential]

TODAY IS RARE DISEASE DAY! 28th FEBRUARY.

Max is now age 11. Despite 5 years of DNA sequencing, and global database comparisons, he is still not diagnosed. It's a battle to get recognition, and support when you don't tick any... https://t.co/ac9P3qMBtw

[Saz Bailey @maxipotential]

The Wilmslow Guardian gave an update on both Max's and my own joint stories last week. It highlights that Max is... https://t.co/BqNW598Qtm

[Saz Bailey @maxipotential]

THE GREAT IMPLANT SCANDAL....

This BBC Panorama documentary aired a few months back. It validates all the concerns I have about the UK's solution to Scoliosis, and why I will continue to do... https://t.co/T9xrm1eqYJ

[Saz Bailey @maxipotential]

https://t.co/VfRzFtBjs1

[Saz Bailey @maxipotential]

This is actually the first time I have ever seen Max do this. Age 11. He’s mixing the correct primary colours to make tertiary ones, and painting inside the lines! Whooot!👏👏👏👏

#GDD #globaldevelopmentaldelay https://t.co/wzSgG5pTco

[Saz Bailey @maxipotential]

Max finishing off his school Christmas show today in epic style on the sax 🎷 again, ending his moves with #thedab. 😎😂🥰 https://t.co/B5v7zCU9Ea

[Saz Bailey @maxipotential]

A little creative thinking to get Max to have his hair cut! https://t.co/t4wmeF6Arr

[Saz Bailey @maxipotential]

Another trip to London for Max to check and update his #gensingen brace. Dad took him this time. It’s like a lads trip. Max looks forward to his train journey with Dad, books, and toys he’s gets to see again.... https://t.co/uYb1IP4KYa

[Saz Bailey @maxipotential]

Max is off on his first high school residential! He’s so excited. This is his first time away from family. Big thanks to Paul Windram for making it possible by being Max’s buddy for the duration. Let’s see if he stays to enjoy the whole three days... https://t.co/AFLVjCvNYK

[Saz Bailey @maxipotential]

https://t.co/cYod6jK7wk

[Saz Bailey @maxipotential]

Max had a blast on his lads tour in Wales. I don’t think they got outside of the camper van much as it was raining but that’s not the point, he was on a jolly with his favourite people, and that’s what counts. 😍💙💙💙
#ladsontour

[Saz Bailey @maxipotential]

We bought Max his high school uniform. I think it may require tayloring slightly. Hos spine is getting straighter but he’s not that tall! 🤔😂 He’s sooooooo excited! 😆

[Saz Bailey @maxipotential]

💚💚💚 JUNE IS SCOLIOSIS AWARENESS MONTH 💚💚💚

This is Charlie's Journey with Infantile Scoliosis
Please LIKE and share information that might help others.

I've now set up a dedicated initiative that shares... https://t.co/9DgpCeELUb

[Saz Bailey @maxipotential]

Ian Dodds epic solo ride from Landsend to John O'Grotes is complete! 💚💙💚💙💚💙💚💙💚💙💚💙💚💙💚💙
The last picture here is at an absolute low point at Glen Coe ski resort in the middle of nowhere, as desolate a place as you... https://t.co/JHIzrkmazu

[Saz Bailey @maxipotential]

Ian is half way through his solo bike ride from Lands End to John O'Groats - travelling close to Max at home on his Birmingham to Lancaster leg. This pic is his entire luggage allowance.... https://t.co/q2gEySxc6j

[Saz Bailey @maxipotential]

Help raise £5000 to help little Max get critical therapies. https://t.co/8x2NuHmenK

[Saz Bailey @maxipotential]

TODAY IS UNDIAGNOSED CHILDREN'S DAY!

My little boy Max is a SWAN - he has a Syndrome Without A Name. Around 6000 children are born each year with a condition so rare that it may never be diagnosed. This makes it... https://t.co/7qXJRKxlUz

[Saz Bailey @maxipotential]

Mighty Max moonwalking and running! (kinda)

His NHS orthotics were a hindrance and I’m befuddled that he’s been discharged from clinics whilst my focus had been on his scoliosis.

Look what can happen when you... https://t.co/20OieLcWLg