Michelle McClure

Geneticist and health policy professional. Tweets/opinions are my own and do not represent those of any organization.

[Michelle McClure @mcclureml1]

Stepping in when our government steps out. #NewbornScreening #PublicHealth

[ACMG @TheACMG]

In response to the #ACHDNC dissolution, ACMG is organizing a new advisory framework for #newbornscreening, starting with a virtual stakeholder roundtable this summer. Outreach to key groups begins soon. More to come. https://t.co/NBMFrN8QBj #MedicalGenetics #RUSP #PublicHealth

[National Organization for Rare Disorders (NORD) @RareDiseases]

Today, the U.S. #Senate passed legislation that, if signed into law, would impose dramatic and harmful barriers to #Medicaid, threatening access to quality, affordable health care for the #RareDisease patients who need it most. The fight isn’t over, and we urgently need your help! TAKE ACTION TODAY and urge your Representatives in the House to reject the Senate-passed bill!

1. Call the Capitol Switchboard at [phone] and request to be connected with your Representative’s office. We prepared this quick script to help guide your conversation: https://t.co/AHfFnv3Vc5

2. Send this action alert urging your Representative to stand with the rare disease community and protect Medicaid: https://t.co/G16NnDISVC

[ACMG @TheACMG]

With #IndependenceDay near, exercise your voice! Use ACMG’s interactive State Policy Map to track genetics bills by state or topic. View bill details, sponsors & status - and advocate for responsible #genetics policy: https://t.co/3zZwQhrMiX

[Regulatory Relief Coalition @regrelief]

🚨BREAKING NEWS🚨Champions reintroduce the Improving Seniors’ Timely Access to Care Act! The bill already has support from over 140 organizations, 47 senators, and 73 representatives. #FixPriorAuth

[ACMG @TheACMG]

It’s National Adverse Drug Event Awareness Day! ADEs are the 4th leading cause of death in the US, but this can change w/ #PharmacogeneticTesting. ACMG thanks @RepSwalwell & @RepDanCrenshaw for introducing the Right Drug Dose Now Act. #Pharmacogenomics #ADEAwareness #fourthcause

[Michelle McClure @mcclureml1]

So long, LA! #ACMGMtg25 was fantastic. Already working on session proposals for #ACMGMtg26 in Baltimore!

[ACMG @TheACMG]

ACMG and the #ACMGFoundation are all about volunteers! Thank you to all Board members and committee members. #ACMGMtg25

[Michelle McClure @mcclureml1]

One more day of #ACMGMtg25. It goes by so fast!

[ACMG @TheACMG]

We hope you were able to attend the #ACMGFoundation heartwarming Day of Caring event today at #ACMGMtg25. Specially adapted bikes were presented to kids from the @DownSyndromeLA...on World Down Syndrome Day! Thanks to @RevvityInc and @JustRideLA

[Michelle McClure @mcclureml1]

Check out this incredible list of partners whose contributions help ACMG advance #MedicalGenetics! #ACMGMtg25

[Michelle McClure @mcclureml1]

Wonderful session at #ACMGMtg25 on how to implement N of 1 antisense oligonucleotide therapies – eligibility, design, institutional support, costs, & FDA regulations. #PrecisionMedicine #GeneticTherapy

[American Clinical Laboratory Association @ACLAlabs]

Unless Congress intervenes, clinical laboratories will face Medicare cuts, stifling investment in next-generation diagnostics. Congress must pass a long-term solution to #StopLabCuts: https://t.co/qbFCXzCotE.

[Michelle McClure @mcclureml1]

Day of Caring - always the highlight of the conference! ACMG Foundation provides customized bikes to local kids. This year’s partner is Down Syndrome Association of Los Angeles @DownSyndromeLA #ACMGMtg25 #WorldDownSyndromeDay

[Michelle McClure @mcclureml1]

Session on Navigating the Current Landscape in Prenatal Genetics- interesting discussion on how an Alabama abortion law continues to impact IVF services #ACMGMtg25

[ACMG @TheACMG]

Opening Reception tonight! Stop by the ACMG booth (#423) in the LACC West Exhibit Hall A beginning at 5:00 PM! Take a selfie in front of our #MedicalGeneticsAwareness wall, learn about ACMG programs, member benefits & discounts. Eat, drink, be merry! #ACMGMtg25

[Michelle McClure @mcclureml1]

#ACMGMtg25 plenary session - Dr. Wayne Grody has the audience laughing with stories about consulting on movies/shows incorporating genetics in their story lines. #genetics #Hollywood

[Michelle McClure @mcclureml1]

#ACMGMtg25 is officially in full swing as ACMG President @SusanKlugman gets us started with the Presidential Plenary - Genetics in the Media – Entertainment, Public Education, Controversies and Ethical Dilemmas

[ACMG @TheACMG]

“Rare Disease Advisory Councils – State Advocacy for the Rare Disease Community” will begin at 1:30 in LACC, Rm 408 B at #ACMGMtg25. Learn about Rare Disease Advisory Councils in NH, MN & UT. #ELSI #publichealth #advocacy.

[ACMG @TheACMG]

Hey, it's #MedicalGeneticsAwareness Week (March 18-21)! Celebrate by sharing your joy about working in the medical genetics field in a short video (30-45 secs) posted to social media during this week. Visit https://t.co/CCjBqpQcpd for details.

[Michelle McClure @mcclureml1]

#ACMGMtg25 kicks off today! Don’t miss today’s session on Rare Disease Advisory Councils – State Advocacy for the Rare Disease Community. 1:30pm-3:30pm PT #RDAC #raredisease #medicalgenetics #advocacy