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MDA Greater DC
@mdadcmetro
The Greater Washington, DC Chapter of the Muscular Dystrophy Association
Washington, DC
Joined October 2016
142
Following
33
Followers
31
Posts
MDA Greater DC
@mdadcmetro
over 9 years ago
I thought 'We did it!' Now the door's open for more research for other deletions & a pop. of boys has treatment now https://t.co/YLXfbWW7nG
MDA Greater DC
@mdadcmetro
over 9 years ago
Researchers are looking for boys & men age 10 years & older w/DMD to participate in a phase 3 clinical trial https://t.co/EqMgEKZI57
MDA Greater DC
@mdadcmetro
over 9 years ago
Author Brandy Lay, shares her family's battle against ALS & how she's raising funds through her children's book https://t.co/2twTEylPv3
mdadcmetro
retweeted
Muscular Dystrophy Association
@MDAorg
over 9 years ago
One woman shares her experience sleeping with a chronic health condition via
@TheMightySite
https://t.co/vrhTBKuZDp
Who to follow
Joel Kobersteen
@Kobersteen
Firefighter, avid Fill the Boot fan and 'trying like hell' dad.
mdadcmetro
retweeted
Muscular Dystrophy Association
@MDAorg
over 9 years ago
Today we send our sincerest thanks to all of the men and women who have bravely served our country. Thank u for protecting our freedoms.
mdadcmetro
retweeted
Muscular Dystrophy Association
@MDAorg
over 9 years ago
Researchers seeking volunteers for clinical trial to test investigational drug vamorolone in boys ages 4 - 6 w/DMD https://t.co/p15ucupiFe
MDA Greater DC
@mdadcmetro
over 9 years ago
.
@biogen
& Ionis Pharm announced hopeful results from clinical trial testing experimental drug nusinersen (Spinraza) https://t.co/Qnjn0Irb5b
MDA Greater DC
@mdadcmetro
over 9 years ago
See how the unparalleled benefits social workers bring to MDA Care Centers will be able to help MDA families https://t.co/hXkNJ4WYgZ
mdadcmetro
retweeted
Muscular Dystrophy Association
@MDAorg
over 9 years ago
The National ALS Registry is here! Learn how ATSDR is working to fight
#ALS
. https://t.co/TYBfmPazR1 .
#ALS
MDA Greater DC
@mdadcmetro
over 9 years ago
The Smiths, whose daughter Clara has congenital muscular dystrophy, share their love for their local MDA Care Center https://t.co/JGZbTRq2px
MDA Greater DC
@mdadcmetro
over 9 years ago
nusinersen https://t.co/7rCP4IbKCt
MDA Greater DC
@mdadcmetro
over 9 years ago
State Goodwill Ambassador: Jared https://t.co/i1dfFnNew2
mdadcmetro
retweeted
Muscular Dystrophy Association
@MDAorg
over 9 years ago
Lauren Carter talks higher education, independence & thriving in her corporate role w/longtime MDA supporter
@CITGO
https://t.co/f1JiEeOIvc
mdadcmetro
retweeted
CDC Environment
@CDCEnvironment
over 9 years ago
A new journal article using National
#ALS
Registry data was recently published and can be found at https://t.co/r4CIpK4g1G.
MDA Greater DC
@mdadcmetro
over 9 years ago
Deflazacort https://t.co/zemZK0v1TU
mdadcmetro
retweeted
MDA Advocacy (Archived)
@MDA_Advocacy
over 9 years ago
The ACAA passed 30 years ago. Advocate for more
#ACAA30
progress—share your travel story.
#TravelTuesday
https://t.co/5MDUd1g9Qe
MDA Greater DC
@mdadcmetro
over 9 years ago
National Disability Employment Awareness Month https://t.co/L2c9yTHjc4
mdadcmetro
retweeted
Muscular Dystrophy Association
@MDAorg
over 9 years ago
These wheelchair accessories are helping MDA families live longer and grow stronger https://t.co/GlmpEUHltK
MDA Greater DC
@mdadcmetro
over 9 years ago
Jermia White Follows Dreams https://t.co/tswlj6lEou
mdadcmetro
retweeted
Muscular Dystrophy Association
@MDAorg
over 9 years ago
Spring 2017 Muscle Walks are now open for registration! Sign up & start a team today https://t.co/1xHNNXRJmz
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