💙 Hayley 101 Tips Author💙

🩵 #SevereME since 2011 🏥 Organ failure 🛌 Bedbound & Housebound ♿️ #Disability advocate 🫲🏻 Author of 7 books📚 to raise funds & awareness for IIME Charity

[💙 Hayley 101 Tips Author💙 @MeInfoUK]

You can check out all of my books here:

https://t.co/6oRWr6jwfn

100% of all royalties to @Invest_in_ME Research!

#MyalgicE #Mecfs #MyalgicEncephalomyelitis #MillionsMissing #CanYouSeeMEnow

[Jo Greer @DrJoGreer]

Completely unethical writing off people with #severemyalgicencephalomyelitis & talking about Assisted Dying w/specific reference to Severe ME while so many are denied even basic care (including hydration & nutrition) due to no pathway & a failure to recognise NICE guideline NG206

[💙 Hayley 101 Tips Author💙 @MeInfoUK]

@benh_mecfs Amen xx

[Ben H @benh_mecfs]

I wish the naysayers—from the simply ignorant to the science-deniers—knew the extraordinary restraint that needs to be utilised on a daily basis with #MECFS.

It’s one of the most insanely difficult things to have a heart and mind that is so willing, yet a body that is so broken.

[Dr Jay Watts @Shrink_at_Large]

Fourteen minutes into the #budget, Reeves was talking about new laws to snoop into claimants’ bank accounts, a crackdown on welfare fraud to save £4.3bn, and ‘measures’ to get people back to work.

[Bateman Horne Center @BatemanHorne]

The #MECFS community is not resting until it is recognized by John Oliver (@iamjohnoliver) or Jon Stewart (@jonstewart) and media worldwide.

@JohnVsJonVsME
@thephysicsgirl
#JohnVsJonME
#GreatestMedicalScandal

[Ina • SPOTLIGHT VERY SEVERE M.E. @tink_ina]

One of the worst parts of being sick for over a decade, + getting sick really young before you even finish high school — is that there is NO LIFE to go back to. First of all, no life was ever started. (!) Second, it has gone far, far too long to “pick up” where you were.

[Michael Rosen 💙💙🎓🎓 NICE 爷爷 @MichaelRosenYes]

Long Covid day. For the record, Long Covid takes many forms. In my case, it's more of a matter of permanent damage: numb toes, aching joints, loss of most of the sight from my left eye and blurred vision, and loss of nearly all the hearing from my left ear.

[Whitney Dafoe @DafoeWhitney]

No one with #MECFS or #LongCovid should ever feel embarrassed by how they look or have to live their life, nor feel like we need to hide what our life is like from the public.

New post on my blog:
https://t.co/tzLPTFXxt9

[BBC Radio 5 Live @bbc5live]

The COVID-19 Inquiry’s looking at long Covid this week.

It’s an umbrella term to describe a range of different problems caused by an initial Covid infection.

Has it affected you?

@NickyAACampbell asks: Long Covid and you?

[ThePOTSPostman @ThePOTSPostman]

What are some things doctors DONT tell you when you are diagnosed with a chronic illness?

[💙 Hayley 101 Tips Author💙 @MeInfoUK]

@Dan_Wyke Much love to you xxxxxxxxx

[Adam @ABrokenBattery]

The recent media coverage about Maeve Boothby O'Neill is definitely having an impact. I saw a new GP today, the first doctor i've seen in a few years. He had read about Maeve and asked me how I felt I had been treated and if I thought I was believed.

[💙 Hayley 101 Tips Author💙 @MeInfoUK]

@FrickerAlice @MEResearchUK @Invest_in_ME 💯 they are a cut above the rest, number #1 charity out there. Xx

[Whitney Dafoe @DafoeWhitney]

I’m just living to live today.
Sometimes that’s all you can do.  Use all your energy to take care of yourself so you don’t get worse.  Riding on hope.  The unknown promise of a better future.  Investing in today so that I can have tomorrow. #MECFS #LongCovid

[💙 Hayley 101 Tips Author💙 @MeInfoUK]

💙💙💙

[Neurologist Mom @NeurologistMom]

It was another very tough night. She rarely talks about the nightmare she lives in. These are some of the words from my previously healthy 16-year-old daughter, now suffering from COVID-induced #MECFS #LongCovid

“I feel like I am betrayed, betrayed by my own body. I don’t want to be in this body anymore. I literally feel like my flesh and bones are being eaten alive, like I am rotting, and none of this is psychological. In fact, I feel that I am very strong—strong enough not to end my life even in this misery. My body is becoming a great torture machine day by day, and yet I still want to live.” #LongCovidKids

[Billy Hanlon @bhanlon15]

'Forgotten faces of ME - 'harrowing' inquest, constant agony, and urgent call for change'

As the inquest into ME suffer Maeve Boothby-O'Neill concludes, the Mirror looks at other cases of those whose lives have been ripped apart by this cruel and widely..
https://t.co/YNMaRikQFp

[Severe ME @Severe_ME]

“Last year Royal Devon Exeter Hospital changed its care plan for Alice - for her to be fed lying down, a deviation from hospital's usual policy. The same hospital that treated Maeve two years before”

Maeve’s death was preventable! 😡

https://t.co/a2emnLHqiq

[Adam @ABrokenBattery]

Forgotten faces of ME

https://t.co/ButXrazBWP